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• parent support group
• Posted: 2008-01-08 09:33:39 By Colleen P
• Hello,
  Just wondered if there is a parent support group that I could ask some questions, etc. My 20 yr. old son was recently diagnosed with cone-rod dystrophy. He is doing ok so far, but I am having a hard time with it I'm afraid. Thanks for any help. Colleen P.

• Re: parent support group
• Posted: 2008-01-08 11:43:35 By Katie V
• I have a private yahoo group. Parents of children with RP.If you would like to join just give me your email address. We keep it private as we talk openly about our children and have pictures posted etc. Most of them are minors so we chose to do it that way. In the meantime we are always looking for new members as we do not want any parent to go this alone.
  
  Cheers
  
  Katie