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• 11yr old 'probably' RP
• Posted: 2008-01-07 12:29:50 By wendy f
• Hi, we're in the UK, pleased I found you here!Really hope someone can give me some tips/info/guidence..
  My 11yr old daughter has recently failed her Field Vision Test, twice. She has had an abnormal ERG. The doc said 'she has all the signs of RP...BUT without the pigmentenation'??!! He's referrred her to another specialist. He said what he is seeing and what the ERG shows is 'very rare, quite unusual' We're waiting for the next appointment.
  She is hearing impaired with a progressive (Unknown cause) sloping severe hearing loss. She was diagnosed age 3yr 8mth with a 45dB loss, it slips bit by bit and she is now 78dB. Both ears about the same. She has night blindness, bright light blindness and tunnel vision.Don't know the exact measurements yet tho, early days as far as diagnosis goes.
  Thanks in advance for tips etc. Wendy