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• Question
• Posted: 2008-01-04 12:00:30 By maris s
• This is my first time posting. My 11yr old was dx at age 6 with RP. We just found out she also has a macular involvement(macualr scar). Is it possible to have both conditions? the other question is, what is large interior para foveal scotoma.
  Please help.

• Re: Question
• Posted: 2008-01-04 14:58:28 By Darran Z
• It sounds like the fovea scotoma and the macular scar are related. The fovea is the most central part of the macula which is responsible for details. I suspect that if there is RP it may be an atypical form such as Cone-Rod Dystrophy where the cones (macula/fovea) are affected greater than the rods (visual field).
  
  But yes, some people can develop issues with the macula even if they have typical RP. RP does create an increased risk for other eye conditions.
  
  Darran

• Re: Re: Question
• Posted: 2008-01-04 18:58:50 By maris s
• Thanks Darran for your response, does most CRD progresses at the same rate as RP? She is legally blind since age 10 and does have nystagmus.
  Sorry to bother you again.
  

• Re: Re: Re: Question
• Posted: 2008-01-06 16:27:59 By Darran Z
• Well, I honestly cannot answer that. But what I can say is that there are multiple genes identified that cause RP, including CRD. Some are more aggressive than others. That is why it is difficult for anyone to really determine how fast RP progresses because each gene mutation may impact more than others. Even within the same family, which will have the same gene mutation, can affect members differently. It is been shown that RP affects males and females differently. There are other factors such as influencer genes, and to some extent, people will say environmental factors (such as taking care of ones health).
  
  Darran

• Re: Re: Re: Re: Question
• Posted: 2008-01-06 17:08:55 By maris s
• Thanks again Darran for taking the time to answer, i really appreciate it.
  May

• Re: Re: Re: Re: Re: Question
• Posted: 2008-01-07 09:31:38 By Katie V
• May
  
  My name is Katie. I have a 12 year old daughter with RP. It sure was a tough diagnosis. Meghan has 20/25 central vision not corrected and she is 40 degrees peripheral and night blind. She does very well.
  
  Does your daughter use a cane and has she had mobility training?
  
  I have started a private Yahoo group for Parents of children with RP. This site has been fabulous in advocating the site. If you would like to join just give me your email and I will invite you. We keep it private as we have pictures of our children posted and talk about them openly. Though we are always looking for new members.
  
  Katie

• Re: Re: Re: Re: Re: Re: Question
• Posted: 2008-01-07 15:35:54 By maris s
• Katie,
  Thanks for the invitation, my daughter doesn't use a cane or had any mobility training. Her visual field is 15/25 1yr ago. My email is mades222@yahoo.com I look forward to joining the group. I live in Brampton Ontario Canada