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• So lost, and need a helping hand!!
• Posted: 2007-12-21 16:10:24 By Terri S
• The man i am in love with and have picked to spend the rest of my life with was told he has RP. he told me early into our relationship so it was not a shock later on...
  
  But we live in a small town in Louisiana, and other than seeing a regular doctor he has done nothing... he strongly believes that if you don't talk about it, nothing is going on and nothing is happening!! i can't stand for him to live like this anylong! i want him to have the best treatment and the best help!
  
  I know the odds and i love him even more for the man he is... he works away from home and other than extremely bad night vision, which he does get around very well i never noticed till he told me, he tends to appear normal...
  
  Any good doctors located in the south united states?? if not who is the best??? i had never heard of any of this until a year ago, and what i have learned has been on my own simply because i don't want to rub salt in his wounds!
  
  he has agreeed to go anywhere and do what ever i find out to be helpful!!! so really anything at this point would be great! but mostly i just want him to see a doctor that specalizes in the condition, not just some average joe!!
  
  Thanks soo much!!!
  ~!Alecia!~

• Re: So lost, and need a helping hand!!
• Posted: 2007-12-21 19:20:16 By Michael P
• Alecia,
  I'm sure you will receive some very good advice from several posters on this site. There are many knowledgable indviduals who suffer from RP and share their experiences in dealing with this disease. As far as finding a doctor with an understanding of RP look under resources on the tool bar on this site. There a doctors are listed by state and city.
  Even though you may feel like it right now it is not the end of the world.Read some of the information about the clinical trials and other reseach going on and it may make you feel a little better.
  Good luck, Mike