Please login to post a response.

• CNTF progress
• Posted: 2007-12-14 17:32:08 By Carol C
• Oops! My brother got the day of his appointment wrong, it's Dec. 18, so we won't know till then if there has been objective improvement( in case anyone was expecting a posting today)..BUT... he notices every day that his vision is improved ( again, he had already lost 75% of his vision, so any improvement is probably noticable). He's 99% sure the implant is in his right eye, as he can tell a noticable difference when closing the left eye. But now he thinks his left eye vision is better,too ( other eye is only supposed to have had "sham" surgery). I have heard about a sympathetic type of blindness that can occur when vision is lost in one eye due to trauma. Sometimes the other eye will also eventually become blind. Has anyone else heard of this? If this is possible, do you suppose vision could improve in one eye that has not been treated,if the other eye begins to see better? Possibly the traumatic situation is because the optic nerve is damaged, and the damage somehow spreads to the other eye, I don't know. Of course, the placebo effect is very real, and possibly my brother is experiencing this. Anyway, I'll post next week when I hear how it goes. Carol C.

• Re: CNTF progress
• Posted: 2007-12-14 23:51:00 By Nikki s
• Carol,
  
  Thank you for keeping us updated as you are one of the few who do!!!! This is so exciting!!

• Re: CNTF progress
• Posted: 2007-12-17 20:56:21 By carolina s
• Carol
  make sure your brother asks for his tests results since they most likely they will not volunteer any info.
  In my case my night vision is worse in the implanted eye due to my pupil not dialating the way it should and therefore making the vision in the non-implanted eye seem better. That is my case, but i hope not your brother's case.
  Anyhow, thanks for sharing
  carolina

• Re: Re: CNTF progress
• Posted: 2007-12-18 08:16:38 By Carol C
• Carolina, I think he asked for specifics last time ( one month check-up), and they wouldn't tell him as they didn't want to compromise the objectivity of the research by giving him details ( and thereby giving away what eye it was in ). They did confirm that his acuity had improved, but not by how much. He won't get field of vision testing done until the end of the year-long trial period ( he is in the acuity arm of the study). They did tell him to warn his opthamologist at home that something was in one eye,so he didn't look in there and go "hey... what's this?!?", again giving it away to Paul. I saw a picture of what the implant looks like ( on a website), tucked away down in the corner so as not to get in the way of vision.Could it move a little, and cause your problems? Paul has said that light isn't as bright and bothersome ( like headlamps coming at you at night), but again, that seems to be in both eyes, so who knows. Carol