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• RP TESTING
• Posted: 2007-12-14 14:48:36 By Heather W
• I myself was recently told it looks like I have RP in association with Usher Syndrome. I saw a pediatric optha for years. I just saw another who refferred me to the retina specialist, who told me about testing and diagnosing. I'd try to see about taking your son to one also.The specialist said while it looks like RP, certain things are needed for a definitive diagnosis. You need to have an ERG and genetic testing done. Often, just looking at the eye cannot accurately diagnose. Your son may actually have a different problem.
  
  Also, don't be devastated! There are things being done to develop cures. In the meantime, there are things to help. Your son should be able to function close to normally. After all, I'm deaf/blind and I function pretty well. I'm in a mainstream school in the top 10%. Just don't let anybody try to use his impairment against him.

• Re: RP TESTING
• Posted: 2007-12-14 14:50:03 By Heather W
• OOps, sorry. I got misdirected. This was a reply to "RP in children"