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• Sector RP? Different? Prognosis? Any experiences?
• Posted: 2007-11-30 18:24:39 By Al U
• After consultation with my genetic doctor, she shared that the retina specialist has classified my RP as “sector RP”. Right now I see fine and don’t know that anything has changed with my eyesight. I do see flashes once in awhile and have some sensitivity when going from dark to bright environments but that is it. I have been reading some things on the internet and it sounds like sector RP has a pretty good prognosis compared to other forms.
  
  Is sector RP really different from typical RP?
  Has anyone here been classified with this and/or know what to expect?
  I’m 37 years old, no one in my family (up to grandparents) including my huge family of cousins has any RP. Would it more then likely be dominant or recessive?
  
  Some of you know my situation from previous postings. My then fiancée left me about 2 months ago one week after I got confirmed that I have RP. I am still very sad, disappointed, and hurt about losing her. I didn’t know about the sector RP diagnosis until a month ago and wonder if it would have changed things. I was very scared and probably scared her when I shared what I knew about RP. I just don’t know how to get over losing her and dealing with the RP news too. Still very depressed.
  

• Re: Sector RP? Different? Prognosis? Any experiences?
• Posted: 2007-11-30 21:02:18 By Barbara C
• I had bone spicules nasally only for a very long time, and thus was told I didn't have "true retinitis pigmentosa." I have had flashing lights since my twenties, never was comfortable driving (and didn't), was nightblind, and only in my early fifties did it begin to interfere with my work (clerical). I was declared legally blind at 57, and was truly surprised. So as you see, the progression of this type (I assume I have "sector rp" now that you have provided a label) can really be slow. Also, I have "bitemporal heminopsia" as a result of the nasal bone spicules concentration. It sounds like you have a very slowly progressinig form.

• Re: Sector RP? Different? Prognosis? Any experiences?
• Posted: 2007-12-01 15:15:12 By carolina s
• What is sector rp ? I have never heard about it. How do you get diagnosed with sector rp and what is the difference with regular rp ?
  Thanks carolina

• Re: Re: Sector RP? Different? Prognosis? Any experiences?
• Posted: 2007-12-03 11:57:27 By Benny M
• For what it's worth,here's the only place I've ever seen it mentioned. www.geneclinics.org/profiles/rp-overview/details.html Maybe someone else can get more out of than I can since I'm not that much into medical jargon.