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• TODAY SHOW
• Posted: 2009-03-21 01:49:41 By Oscar N
• Did anyone catch the TODAY show with Rebecca and her interview and her brother that works for NBC...?
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• Getting RP and Macular Degeneration Treatments in other country's
• Posted: 2009-03-20 11:23:53 By Max S
• Does anybody tried getting treatments in other country's? If you one of those people, please share information about what kind of treatments you have done overseas? Personally I gave up on US vitamin treatments 17 years ago and getting my treatments in Eastern Europe every year or twice a year.
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• peripheral pigment mottling on the retina
• Posted: 2009-03-19 20:36:05 By Mary O
• I have rp (autosomal dominant). My niece went for her regular check up with her eye dr. and he thought he saw rp. He referred her to an opthamologist and he said it wasn't rp but peripheral pigment mottling on her retina. Has anyone heard of this? Her dr. says this happens in very fair skinned people. We both are fair. My daughter (24) was diagnosed 2 yrs. ago. My niece is 39 and has gone for regular check ups knowing she has a family history of rp. This is the first time her regular dr. has said anything. Does this mottling just suddenly appear? Should she go for a second opinion? Any other thoughts?
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• Y&R
• Posted: 2009-03-17 18:24:42 By racer x
• sorry i meant young not yound:) you know how it is:)
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• yound and the restless
• Posted: 2009-03-17 18:23:33 By racer x
• hello. does anyone watch y&r? there is a guy name adam on the show whose character is diagnosed with RP.i thought it was pretty interesting to see this storyline...his mom was blind to although we were not sure why,or at least i wasnt,until the other day he said he was hoping he would not inherit his mothers disease. Thanks for the public awareness Y&R!!
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• To Katie
• Posted: 2009-03-16 10:21:53 By Alvaro G
• Hi, this is Alvaro, I am sorry to hear about your bad week but things will get better, trust me, besides there will be a treatment soon to help us all, I am sure of that, you will drive again someday soon, stay positive!
  If you want to chat, youc an email me at: alvarorp30@yahoo.com.
  Now I want to recommend you a terrific website where you will find RPers who have cataracts like you and they are going thru the same you are, I have cataracts and they are just forming and for now I will not get the surgery done.
  The website is:
  www.mdjunction.com
  
  And I also recommend you to join the Retinitis Pigmentosa group on Yahoogroups, is like a mailing list for RP, very useful with nice people too.
  Hope this helps abit and stay positive, all is going to be just fine.
  Alvaro.
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• Vitamin A
• Posted: 2009-03-15 21:15:43 By paul g
• I have RP with moderate loss. My question is simple, where can i purchase vitamin A ?
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• what do you think?
• Posted: 2009-03-13 21:04:59 By katie c
• i wrote last week about the shock of hearing that my driving might not be safe- found out today that i am indeed a non-driver from this day forth-bummer!!!! its been a crazy week, lots of adjusting to do, lots of crying, lots f "what now", luckily i have a great group of friends and family. my question for everyone is what is the current option about cataract surgery? saw a retina specialist and he supports the surgery as it will improve the central vision i have. seem to see conflicting opinions on this website- has anyone had the surgery? what did they think? also is this the best way to get support? my doc said to talk with those who have gone thru this...
  katie
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• Posted: 2009-03-10 20:54:29 By Scott S
• Stephen, Why are you not using the Vitamin A? My email is scottandsmith@hotmail.com if you want to reply privately.
  
  Scott
  
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• Posted: 2009-03-09 22:13:25 By Stephen S
• I understand what you are going through. Our son was diagnosed July of 2007 and he had just turned 7 years. I have spent hour after hour since that time reading everything I could get my hands on. In January of 2008, we took him to see Dr. Berson. My wife and I really like him. He is GREAT with kids. His estimates are only estimates, and obviously not exact science. We have not been using Vitamin A (even though he obviously recommends it), and our son will not eat fish. We purchased him transition lenses, which he uses at times. Dr. Berson will tell you not to concern yourself with sunglasses all the time.
  
  We also have no history in our family. Our son's night (and low light) vision is very poor. And he has some peripheral island losses. But he can hit a pitched baseball, rides his bike and scooter, and lives a normal life. He is on the swim team, does gymnastics, and plays like an 8 (almost 9) year old boy.
  
  What have we told him? This is the controversy. So many parents on this website have said "we have told our child everything, and you need to do the same". Here is my response: you do what you think is right for your child and your family. We first told our son that he had a condition affecting his night vision. Recently I told him a little more, explaining peripheral vision. Next step - who knows. But my wife and I did not see the advanatge of telling our son it will continue to go downhill. Since no one knows how bad, or how soon, we did not see the advantage of telling him. And Dr. Berson agreed 100%.
  
  It is painful, and I know how hard it is. But remind yourself that research is moving so fast (gene therapy, implants, and now as of today with President Obama's signature, stem cell). We may have something soon for our kids.
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• daughter recently diagnosed
• Posted: 2009-03-09 21:07:07 By Scott S
• My 9(10 this month) yr old daughter was diagnosed 6 weeks ago with RP. I think we have taken the normal parental steps. Research, be depressed, resarch some more, call a bunch of Dr's, call the FFP, etc. She has an appointment with Dr Berson in May. We have started her on 5000(iu) vitamin A daily, tuna for dhea twice a week and sunglasses outside at all times. No one in our family that we kno of has RP. So...if anybody has comments:
  
  1.My biggest fear is she will lose her vision in childhood. Dr Berson has stated his machine can give an estimate on the number of years of vision, so we will see in May.
  
  2.We have not let her know the true diagnosis. She plays soccer and tennis, has some loss of field but it is normal to her.
  
  3. It makes me very sad for her.
  
  Anyone have any words of wisdom, encouragement, advice?
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• Aspartame - Diet Foods
• Posted: 2009-03-08 15:00:39 By Thomas B
• What do you know about Asparatame being bad for patients with RP? Asparatame is the sweetner ingredient in diet soda, Equal and Sweet n Low. I find that I ingest a lot of it. Now I read on many websites that it is bad for retinal problems.
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• Hi Katie and welcome
• Posted: 2009-03-08 14:26:47 By Alvaro G
• Hi Katie:
  My name is Alvaro and I have RP and cataracts at age now 34.
  First off I want to offer you my friendship, RP is not easy and cataracts neither and so if you ever want to chat about anything, let me know.
  My email is: alvarorp30@yahoo.com
  
  I also want to recommend you a wonderful website I use lately:
  www.mdjunction.com
  
  Katie, dont be scared, I am sure things will get better, I havent really had the opportunity of driving ever because my RP was too advanced at 18, my reflexes were bad even at that age, so I dont know what is like to drive and then not be able to, but I know you must feel frustrated about this possibility of having to quit driving but I think at the end of the day your doctor after analyzing your vision field will advice you what to do, obviously only YOU have the information necessary to decide whether or not you are capable ofd riving, at day, during the night, with thuinderstorm, with glare, cloudy days, etc...
  But make no mistake Katie, you will be fine, the cure for RP and a possible treatment to help us all is on its way and so there are millions of reasons to be optimsitics about the present and the future.
  Please feel free to email me if you want to talk.
  Have a great day.
  Alvaro.
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• time to pull my head out of the sand
• Posted: 2009-03-07 16:19:25 By katie c
• i am new to this site, but not new to RP. I was diagnosed 20 yeras ago and have happliy gone along my way. till yesterday! yesterday i went in to see a doctor about getting m cataracts removed and she starts talking about driving...it has been more than 15 years since i have had a visual field- didnt feel i needed anyone to tell my my vision was getting worse. i get my prescription updated every two years and they dont seem upset about my RP so neither was I. I thought it wouldnt really effect my life for many more years-i am 36 and expected to be "fine" until 50 or so. after reading some of the post on her- sounds like i was naive. i am going to get a visual field done on monday-many friends an family want me to put it off (as it could change my life dramatically if i cant drive anymore) but i want to know! if i shouldnt be driving i want to deal with it- not put it off any longer. does anyone know the process- will they tell me at the test or wait until i see the doctor again?
  katie
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• Congratulations to Scott MacIntyre!
• Posted: 2009-03-05 11:49:10 By Kristine A
• It’s time for America to “Idolize” Scott MacIntyre
  
  Congratulations to Scott MacIntyre! His dynamic performance on Tuesday night secured him a place in the Top 12 in American Idol!
  
  Thank you to everyone who voted for Scott. Be sure to tune in again next Tuesday at 8:00 p.m. EST and cast your vote for Scott as he performs in the next round. With FFB’s support, Scott MacIntyre is destined to be the next American Idol!
  
  Millions dream of making it to the final rounds of American Idol but for Scott MacIntyre, the dream has become reality. Born with severe vision loss from Leber congenital amaurosis (LCA), Scott is an incredibly gifted musical performer who has made it to the Top 12 on American Idol. With his remarkable talent, Scott is bound to make it far in the competition, and we need you to support him as he shoots his way to the top!
  
  An Arizona State University graduate, a Marshall scholar, and a Fulbright scholar, Scott learned to play the piano at the age of three. His piano professor, Walter Cosand, said, "He's always been able to do what everyone else could do and many things no one else could do. A lot of things he does are very remarkable, even for someone without a disability."
  
  Scott also has a sister, Katelyn, who has lost her vision to LCA. With their brother Todd, the three siblings have made a splash performing as the MacIntyre Family Singers. Scott even shared his talents with the FFB family when he performed at the opening luncheon of the 1998 VISIONS Conference in Chicago.
  
  Simon, Paula, Randy and Kara have brought him this far; now it’s up to us to make Scott MacIntyre the next American Idol! Scott will be performing live on Tuesday, March 10, as one of the Top 12 contestants to continue to compete. Voting is free, so be sure to vote for Scott!
  
  Stay tuned to the Foundation Fighting Blindness Web site for more information about Scott’s progress and how your votes can help him reach the top and raise awareness of retinal degenerative diseases across the country.
  
  Posted by: Foundation Fighting Blindness
  
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• RP and cataracts
• Posted: 2009-03-04 11:15:06 By
• Hi:
  I am wondering if any of you has RP and cataracts and has had the cataracts surgery done and how it went if so? I am 34 and my vision is about ten degrees in one eye and eight in the other and I am not sure how difficult of a procedure cataracts cvan be for me.
  My email is alvarorp30@yahoo.com
  Thanks alot for any information or experience you can provide me with.
  Alvaro.
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• Employment
• Posted: 2009-03-03 14:33:30 By Chris C
• Hi my name is Chris and I am looking for a job. Does anyone know of any services that I can use for my employment search.. Also does anyone know of any companies that are known for hiring people with low vision.
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• MCS
• Posted: 2009-03-03 09:23:01 By Michael Z
• Hi Marisa:
  
  I was curious to what MCS machine you sre using. I tried calling Dr. Miller but he never returns my calls. I used to use a machine (SCYFIX 600) but it broke after two years. After a couple of months of not using it , I noticed my glare is back and my vision is blurrier. I already had both cataracts out so I know the glare can't be from that. Also, how does the light therapy work?
  
  Thanks,
  Mike
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• Hey all
• Posted: 2009-03-01 13:17:07 By Alvaro G
• Hi:
  For thsoe who dont know, there is an awesome website that someone told me about where we can have our Profile, post blogs and add pictures, also we can communicate with eachother with messages and post in the RP support group, I am sooooo happy i joined, is FREE and you can join here:
  www.mdjunction.com
  If you need assistance please email me at:
  alvarorp30@yahoo.com
  Have a wonderful Sunday.
  Alvaro.
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• cntf trial
• Posted: 2009-02-26 16:50:41 By
• hello,
  Has anyone noticed any improvements? Have not read much from the participants..When will the results be released and do we know if the results are good when this will become a treatment?
  
  thank you
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• Seeing Eye Dog
• Posted: 2009-02-26 12:52:15 By Judy I
• our 15 yr old son has RP. His vision took a turn for the worse and his peripheral vision is now only 8 degrees. He can qualify for a seeing eye dog when he is 16. Of course, we are doing all kinds of research on the pros and cons of having a dog and also have some insight from his mobility instructor. Thoughts/opinions?
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• I forgot
• Posted: 2009-02-22 17:58:47 By Alvaro G
• Hi again, this is Alvaro again, I just want to say alittle about me:
  I am from S. America, I am 34, single guy who was diagnosed in 95 with RP.
  I am a very positive person and very optimistic.
  This past week I was diagnosed with Cataracts in both eyes so now I have RP and Cataracts.
  
  My RP was stable for years but seems is progressing more in the past year or so.
  Rightnow I am starting to search for any person with RP who also has cataracts to see if they are planning a Cataract surgery and if so with whom, and where?
  I have to say I would like a surgeon who has lots of experience with operating RP and Cataracts together.
  Well if you want to talk about RP or anything else, just email me to:
  alvarorp30@yahoo.com
  Thanks.
  Alvaro.
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• I have RP and want to make new friends
• Posted: 2009-02-22 17:26:25 By Alvaro G
• Hi, my name is Alvaro and I am here to make enw friends, especially from the United States where I plan to move to.
  You can learn abit more about me by visiting my Youtube RP channel:
  http://www.youtube.com/user/rphope2009
  
  If you want a nice friend let me know.
  Alvaro.
  
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• A new battle!
• Posted: 2009-02-19 23:49:51 By Darran Z
• Many of you know me from the old board and may not be aware of my current battle.
  
  I was diagnosed with angle closure glaucoma! Just what I need! I always thought if I went blind completely it would be the RP. But it may very well be glaucoma to take the remainder of my vision.
  
  I am having surery done tomorrow. They are doing a "two in one" type of thing where they will remove my cataracts at the same time as try to deal with the glaucoma. Hopefully it will work.
  
  Darran
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• New Dr. Berson Study
• Posted: 2009-02-19 15:16:05 By Colleen K
• Hi - when I first diagnosed about 2 years ago I saw Dr. Berson. He said that he was in the middle of a study now but obviously couldn't say what it was. I thought he said he was going to publish it in either 2008 or 2009.
  
  I haven't really heard of anyone who is in a current or recent Berson study nor have I found anything on the clinical trials website that looks like it might be something he is working on. Does anyone on here have any insight?
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• Scott
• Posted: 2009-02-13 15:59:28 By Steven C
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• America
• Posted: 2009-02-13 15:49:35 By Steven C
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• question and experiences
• Posted: 2009-02-12 00:30:34 By LoRena P
• Do you know who has field expander glasses or both field expander glasses and cochlear implant at same time? I have some problems and had experienced about issues. Field expander glasses is like help you see wide more but one hole part special field expander in glasses on one right side lenses and other normal lenses is on left side. For example if you see computer on regular stable glasses but bed is next to computer desk but if you use field expander glasses with hole in it and you will see both computer and bed at same time. Even you can see far away with new feild expander glasses but with stable glasses you won't see far away to see many things but with new field expander you can see many tiny people in different distances and everywhere but like if you see 10 people at one time in one area but without it you only see one or two person closer to you. i had hard time to adjustment and eyes were battle using right or left side but when get on and sometimes my eyes want either right or left side to be battle but sometimes left eye lense could be cheating because not want to practice enough on right side with feild expander part but if i close my left eye so i can get into right side into field expander piece to see more width and far to help see more better but sometimes if i open my left eye and would get on left eye and not want to use right side eye into field expander and use left side to see normal stable but sometimes it happens when i run in something. But i had other problem when i used right side into expander and i could not see forward beside my leg block like if kid is front of me and not see in front becasue when i was using left eye to make problem in dark not really very dark but when turned light on and see more in expander but will explain to you in alittle bit what my experienced and i learned through month with my these experiences. and i got field expander glasses from my special low vision eye doctor who recommendation me and my rehabilition counselor from few years ago and helen keller was discussed about it before and id id not want to used before and i started using now this time. I contacted eye vision dr few times and asked them questions and they are research something when i told them about my issues and it might take them few weeks to get some answers.
  With my cochlear implant it was different becuase sounds directly with new glasses and it was hard not see lip mouth or can not figure out which or who children or people were talking with new field expander glasses even confused which or where sound enviormentals come from since i see big more wideth with new glasses but i was not used to sounds with new feild expander glasses and it was kind of confused,distorted and feel different also. But without field expander glasses and i was used to hear normal and closer near sounds enviormentals and can tell which or where it comes from to know but with new field expander glasses is become very difficult and different.
  when wear new glasses i feel more anxious, shy and nervous and feel funny becuase people see me in differnet glasses looking becuase on right side it has black round with small lenses in hole in right lenses with left side regular stable full size lenses. But no one people did not make fun of me but i was scared at first but at home i was used to it few times then at work we showed and taught kids and adults what glasses was look like and i was scared try on and they had my children try on to see what it was about and explanation to them then they want me to try on it and i was shy try but after children tried on and they want me to try on and they like see me on with it. Then later i started wear it on own try at work but was feeling funny on different days. I was shy and nervous wear it and it was first time when parents or someone see me wear this glasses that was different this time. I work at childcare daycare part time. But i am tell you about my experiences what happened with these glasses and without glasses. At first i started wear at home on crhstimas break and i tried wear both regular stable and field expander glasses that day and i changed both lenses glasses anytime and when i started used field expander glasses for while then i took it off then wear stable glasses to store because i did not want to wear new glasses field expander glasses in store which were more shy and scared worst so i wear stable regular glasses in store and eyes feel funny and differnet with shine star or shiny thing then when i came home and was busy get ready for christmas eve but i was using regualr stable glasses then i did not know parent was moving woods by dining table and i walked to dining table with bowl of fruit to fill it in then i fell down whole body with boards and boards were slick then i hitted by board and dining table and amost hit whole head and back but it was lucky i did not got hit by device of cochlear implant area on head but it was hurt on jaw mouth and back than head bit did got headache but back did got stractch and bleed alittle bit but jaw inside it felt like bruise so i was furioius what happened. then i quitted wear stable regular glasses and not want to wear stable regular glasses for one month and one week now. but regular stable glasses have magnet orange sun light glasses clip but i did not wear it either becuase i dont want happen again. Then i kept try with field expander glasses more than regular stable glasses. My parents know it was cheating on left side eye when i was walk too fast on new glasses and not use practice enough on field expander glasses at home then daycare figured out and see what happened and they know by now about my new glasses with my experiences. Then happen at work that day i wore field expander i was using left side eye and not on right side side into field expander when helped clean up and i was clean under table to pick up toys and my head forehead hitted by under small children table becuase i was using left eye side not right eye and i did not want to using right side of expander that time and somenone noticed when happened and i was furious myself when happen after got hitted by it.But i did some with right side field expander into with walking or sit down with kids. Then on other day i was outside on big ground when it was warm alittle bit nice outside for combination and i wore both field expander glasses and cochlear implant at same time and then when after school teenage came that day to work and one of teenage was make kids too noise like scream or vaccum sound and that new field expander and cochlear implant got too much pay attnetion directly to teenage and could not ignore that sound and it got my nerves and i took off my feild expander to see if it helped and i did not want to wear it anymore for the day then i was not remember if i was wear cochlear implant or turned volume down to one for while. Then on other day when happened after i was sick but i did not remember to turn volume up or down cochlear implant but did had some problems hearing and not hearing on that day when i wear field expander glasses and one day it happen i was too hurry rush and was not using right eye in field expander and was using left eye side then i was run in shelve cubby to get kleenex for kid and hitted between legs in shelves cubby and hurried back with left side eye. I feel funny becuaes everyone was check and see on me that day when i wore field expander glasses while i have problems with cochlear implant that day when i was not feel good that day. Then later i was embarrassed and not know at lunch time when i was use left side eye glasses to get milk for kid and i was walk with left side eye and picked up milk off table to give but my boss caught me and stand beside me and did not let me go and kids were watch us what was going on and while i held milk gallon in my hands and kids had to wait for milk but they were watch us and my boss told me or come on about eyes and i was on left side eye glasses and not want use right eye into field expander glasses and she was stand beside me and told me and i had to got on right side into field expander then i got off eye move and peek to left side eye to see if she was still there and she was still there not let me go so then i had to get on right side into field expander to use to battle got in field expander piece and when i got in deep into field expander right side then she let me go and i had to walked with right side field expander side to kid to give kid milk which was first time so i was embarrassed and nervous but i knew becuase who i work with co work keep told my boss what is going on with me with new glasses field expander and cochlear implant and i knew my boss came in classroom often more time when i have field expander glasses than before when not had it before and it was often check more time in room then later other day i was sub in different room and it was really different thing that was first time but scared when it was new to everyone to adjusted on that day then when happened when they cleaned up in dark and happened i did not see kid was front of me and not see eye beside left that i have problem and hitted basket on kid accidently and i had trouble with pick up with new glasses in dark but dont know if noticed but i think maybe staff asked my boss about that question and staff had to turned light on when we cleaned up then i see more light in field expandger glasses better than dark and pick more than slow in dark help kid.But boss office was in that room where i was sub that day and she is around alot out and in and has window see through but it has blind but it was open that time. Then later i had problem on table tried use both right or left eyes depend helped kid with work learning project i had problems and one staff noticed i had problem and i felt so funny and shy as nervous. But before that day i decicded took my cochlear implant off not want to wear it at 330 when i did not want to wear glasses of feild expander glasses at 330 with teenage in my room but then when i was sub then after sub and went my regular room i took field expander and cochlear implant off at 330 not want to wear beucase it was more anxious that time. Then next day i did not wnat to wear field expander after had pain and decided ot want wear field expander glasses or stable glasses for while either but i acted funny when i want or not want to wear cochlear implant hear on different days but mostly time i did not want to wear cochlear implant while we had after school teenage it worried my co worker and kept them figure out and wonder why i did not want to wear those things. but when i work full day on fridsys and sub i wear cochear implant and not want to wear and took it off at 330 when teenage arrived and they been watch and tracked if i had or not had cochear implant everyday for one month because they were try to figure out then they figured out by time lines or something and later on other day someone told my boss what was going on then my boss came in and looked me when i was with kids and i think she was wonder or look me becuase i did not wnat to wear cochlear implant and took it off by time schedule and i think she was trying to figure our but someone was guess what might bother me what i dont want to hear. But i am still doing that until i get back to normal but it would keep them worry about both ways. Then happened last week i was outside but did not wear any glasses but did wore cochlear implnat during daytime then when teenage came outside then i took my cochlear implant off and take it in building put it on cubby then i came out and did not see and was nervous and when i got into cutted tree dead wood trunk and hitted by wood trunk with legs almost fell down without any glasses and not hear anything but i knew becuse staff watched when i took it off that made them worried and i was nervous becuase i knew they would told boss what was going on about glasses and cochlear implant at different time schedules when i have or not have it on. but it was more stressed with these so i had trouble decision and trouble choices but i did have emotional when i took cochlear implant off for two hours felt funny but i do enjoy hear and it helps me hear kids and kow where kids are but with teenage more anixous and nerves with really loud like scream or voaccum sound type did not help me at all but it made ear pain but with no allergy shot either but i had trouble choose if i want wear regular stable or new field expander glasses at one time so i had trouble decision or choices by right or wrong but i know i was not supposed to skipping that much with cochlear implant due to adjustment and brain used to hear and everything. And i know my eyes are getting tired becuase not wear or use stable glasses for one month and i was not wear or using new field expander glasses everyday enough but some of days but i stopped wear it two weeks agos and i did not wear any glasses for while. Now i been work at daycare for 4 years this time. But let me tell you what happened past when i quitted and left work at headstart and was had different 4 bosses but one last boss was mean but she was made fun of me use cane and forced me used canes lot times. Then she tricked on last day of school for summer when job coach was left but that was happened that day when cane man trainer came to train with me with cane at job then after cane man trainer left and i fell over kid becuse not used cane right away then on last day it was waited for one week and i got in trouble for not using cane on that day and had to got warning discplinary paper and changed word to job warning instead of first warning and had to sign name and i was upset and scared nervous then later few months decided quitted and left and cane was still at work and boss gave me cane and i did not want cane anymore and i feel like want to threw canes away and i won't take it but i had my cousin with me so to protection me so mean boss can not hurt or make more problmes and i did not took cane and she gave my cousin cane but she did ont tell me where tty and few book were missed so i was really very upset when i turned key in and picked my tty and book but did not find and no one else not help find tty or book i was really pretty angry and upset and boss just handled cane then i threw all canes away and never used canes anymore to very fearful and not trust cane anymore becuaes of she made me lot of fun and got me into trouble for not using canes at that time so it was really very anixous and very nervous as fearful.
  But my mother told me that now my parents,me and everyone and at daycare where i work everyone is learning experiences and many things whenever i have glasses and or cochlear implant. Hope it helps you better this time. Thanks
  
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• Son with rp
• Posted: 2009-02-04 11:14:52 By Lis d
• Hello. I have a 6 year old son with RP. He is goint to first grade and we are from Panama where the schools don't give you any help. I have heard of a software called MAGIC for computers. Have any of you heard of it? Please let me know. Do you know of any other stuff that could help him as notebooks with brighter lines or something. Please let me know.
  Lis
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• My email to FFB.
• Posted: 2009-02-02 20:27:34 By warren n
• Good day Exalted Blindness.org Management
  
  I noticed i received email from you guys.
  
  I am not american i'm from Philippines,
  The email said i should email the senators to pass the bill.
  Anyway i also noticed that the form is for American citizen only?
  And my country is not included in the drop down box.
  
  I was disappointed, are the people from other countries not allowed to help you guys for these EYE DEGENERATIVE problem?
  
  Why not include all the countries around the world, since many countries out there, their government like my country don't conduct research to solve this problem, why not consider all the countries so we can donate and make us people from other country to see their country donating FFB.
  
  If you like my recommendation please make a custom email for my country so that we can
  pass bill here too, to donate that to FFB.
  
  
  warren nazareno
  ------------------------
  RP patient.
  
  
  -I'm sad my country has no research for these eye degenerave disease.
  
  
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  Hi Darran it's me, AKA -> James.
  How are you guys?
  
  
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