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• daughter with Iritis plus son and daughter with CME
• Posted: 2007-11-12 23:29:22 By L B
• Both our son and daughter have Cystoid Macular Edema they are 12 and 9 years old. It is much more pronounced in our daughter and fairly insignificant (for lack of a better word) in our son. We have been searching for a cause and even went to the National Eye Institute when it was believed that they may have X linked Retinoschisis but they do not. Last week it was discovered that our daughter also has Iritis though she had no signs a few weeks previously. She is now on Pred Forte drops for the Iritis. The doctors are now looking for a possible inflammatory cause. Our daughter tested negative for Juvenile rheumatoid arthritis (son refused the blood test) but that or some other form of arthritis has not been eliminated. Our son’s fluorescein angiogram shows some leakage. The staff at children’s hospital of LA injected the fluorescein into our daughter’s arm tissue. So we have no results for her. The assumption given my son’s result is that she may also have leakage. Both their ERG’s showed super eye function (50% above normal) except the cones are slightly off.
  
  We first learned of the problem with our daughter in the spring and believe that she may have had it for about a year now. We only checked our son as a precaution. I can’t believe that our children are the only brother sister with this problem (no family history) for which a cause has not been found. I would appreciate any advice or precautions. Oh, our daughter has sensory neural hearing loss and migraines since birth.