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• Recently diagnosed
• Posted: 2007-10-25 19:22:04 By James B
• I was recently diagnosed with a form of macular dystrophy. I go to a specialist tomorrow to find out what that really means. The last doctor didn't want to go into details and referred my questions to the specialist. It's been a month or so of waiting to find out. I am trying to find out more information, but it's rather had without much information. They have found drusen in both eyes, but I have no other symptoms. I guess I am looking for more information or more of a starting point. What I have found seems to be minimal. Any suggestions would be appreciated.

• Re: Recently diagnosed
• Posted: 2007-11-09 17:01:27 By Debra U
• Hi
  
  Vitamins will probably be recommended and a diet rich in dark colored vegetables.Protect
  self from sun.
  Debra Ulm

• Re: Re: Recently diagnosed
• Posted: 2007-11-09 17:03:39 By James B
• Yes, after speaking with the retinal specialist, that is exactly what he said. Thank you kindly for your response.

• Re: Re: Re: Recently diagnosed
• Posted: 2007-11-09 17:20:35 By Debra U
• Doesn't it make you sick? I went to two different opthamolgists after an optomistrist told me. The offered me different brands of vitamins Preservision and Icaps. I was concerned about the high vitamin A content. My primary care said I would have to make a choice on risks. Univ of NC prescribed the Icaps. The did a lot of photography of my eye.
  The 1st opthamologist said I had it in one eye.
  UNC said I had it in both which I believe. I think zinc is questioned, maybe need the same level of copper. I also read vit a is safe when taken with vitamin e, I think, but there are different names for vitamin a. Oh well,
  thank you, thank you, thank you for just talking to me. Please don't stop.

• Re: Re: Re: Re: Recently diagnosed
• Posted: 2007-11-09 17:27:40 By James B
• Yes, I am sick of all the conflicting information. And honestly I haven't felt great taking such high dosages of vit's either. And you can only each so much kale.

• Re: Re: Recently diagnosed
• Posted: 2007-11-09 17:03:40 By James B
• Yes, after speaking with the retinal specialist, that is exactly what he said. Thank you kindly for your response.

• Re: Recently diagnosed
• Posted: 2007-11-09 17:23:58 By Debra U
• I also thing drinking water is important. It is all about cleaning your eyes. And of course, I hate drinking water.

• Re: Recently diagnosed
• Posted: 2007-11-09 17:41:02 By Debra U
• Your comment about the kale is funny. Thank you for making me laugh.

• Re: Re: Recently diagnosed
• Posted: 2007-11-09 17:49:50 By James B
• Your most welcome and thanks for the water info, I will keep that in mind. Water, kale and vit's.... yummy...