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• my new blog about living with low vision
• Posted: 2013-05-30 21:22:31 By Heather G
• Hi there!
  I have started a blog where I will share stories, offer advice, and generally stay connected with people who are affected by Stargardts or other visual impairments.
  Please take a look! Thank you,
  Heather
  
  http://hgarbitt.blogspot.com/
  
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• opthamologists in Phoenix
• Posted: 2013-04-11 16:57:18 By Jane E
• I would like one - two recommendations for opthamologists in the Phoenix area who specialize in macular. Thank you for your help!
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• Intro with myopicMD, cataracts, and possible glaucoma
• Posted: 2013-04-09 11:06:31 By debra p
• Hello all,I am new here.I have had severe myopia my whole life but in 09 had surgery to reattach retina (insert belt), and 2yrs later left eye has vitreous tear and went from my good eye to my worse eye in moments. I feel that drs don't give you the info you need to make life decisions. Since 2009 my vision is getting progressively worse. My drivers license was taken away from me a few months ago (age 50) which I am still getting over. Was told recently that my cataracts cant be removed (too dangerous). I find that every eye dr, specialist, and surgeon says something different (if they say much at all). I find I have to be my own advocate and am educating myself via internet about my eye issues and my future. I am finding that there is no public transportation in place for disabled like me in my area. I need support, and info. I am depressed and scared. I am out of work and am appealing my denial for ssi/ssd. Knowledge is power and without it I feel powerless!
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• AMD, glaucoma and benefits/risks of yoga
• Posted: 2012-11-28 21:28:26 By Karen C
• 
  Does anyone have knowledge of science indicating whether or not yoga is contraindicated for these conditions
  thank you
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• Micro Acupuncture
• Posted: 2012-08-15 23:23:44 By Ron B
• My 87 year old mother has been diagnosed with Wet Macular Degeneration. The retinologist has shared that there is no cure. She has contacte a Mr Pere Otto who claims to perform microacupuncture with a high level of success in these cases. I am interested, and would very much appreciate feedback from anyone who has experience with microacupuncture,and or Dr. Per Otto in Mt. Hope, WV
  Thanks in advance.
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• Proton Therapy
• Posted: 2012-04-09 10:59:47 By caryn a
• Hi - has anyone used Proton Therapy for treatment of wet macular degeneration?
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• Visually impaired audio Podcast
• Posted: 2011-06-05 17:41:42 By Alvaro G
• Hi, I am Alvaro and i am visually impaired with RP and cataracts.
  I am doing an audio Podcast for the blind and i want to invite you all to listen to it and I WOULD LVOE TO INTERVIEW ANY OF YOU USING SKYPE so we raise awareness about Macular Degeneration.
  The show is lcoated here:
  http://lowvisionbureau.podomatic.com
  You can also add me on Facebook at www.facebook.com/mrmagoony
  have a great day!
  Alvaro.
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• Vision Through Words
• Posted: 2011-05-19 14:30:54 By Stella D
• Vision Through Words is a new blog that posts poetry and short essays written by visually impaired people, but to be read by all. Please go to www.visionthroughwords.com to find out more.
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• Macular Degeneration
• Posted: 2011-02-21 13:32:39 By James C
• Hello,
  I am new to the boards. I am a 71YO male and was told that I have MD about a year ago; this was from a VA doctor. I have little to no respect or trust in the VA system; but it is all I can afford! I am still able to drive albeit I do not drive very much at all. Just to do my grocery shopping and very few other errands. What I am very concerned about is getting help with this task and other help if this gets worse. I live in Maine and have no family nor friends. I live in a mobile home park where the neighbors keep to themselves. I have queried the internet for help and found very few sites here that offer any. The VA offers none at all. I am really concerned about this especially if the MD worsens. I don't even know if it the wet or dry type! The wonderful VA doctors offer no damn help at all. I assume it is the dry type since I was given eye drops for the dry eye condition. But who knows. My next appoinment is not until the end of April. I am debeating whether or not to go into more debt (credit card) and go to a civilian specialist. Any suggestions?
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• macular degeneration in an early age
• Posted: 2011-02-13 12:57:30 By Jyoti K
• my brother is suffering from macular degeneration. he is just 21 years old and has lost his vision to a great extent. could you tell me the updates on latest research in stem cell?
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• Restaurants reviews for the visually impaired, join us on Facebook!!!
• Posted: 2011-01-30 14:49:13 By Alvaro G
• 
  Hello everyone:
  I am Alvaro and I have RP and cataracts and I have posted here several times in the past.
  Today I want to tell you that I created a Project called Low Vision Bureau and has a Facebook Page where anyone with low vision from the United States, Canada, the UK and anywhere in the world can come and review a restaurant based in the lighting, service, crowd, etc…
  My idea is being supported by many low vision people who have helped me set up the Facebook Pages.
  I want to help everyone around the world choose a good place to go eat where they can feel comfortable and well served. We, the low vision community deserve the best like anyone else does so lets make this happen and have the restaurant guide for the blind.
  You can add me as a friend on Facebook by entering my email: luckyguy135@hotmail.com
  And please become a member of our Facebook Page and review any place anywhere, remember that there are reviews by region and city so choose the area where you live or visited to review it in an ordered fashion.
  Facebook Page:
  www.facebook.com/lowvisionbureau
  
  Thank you so much for reading this and come on in and join us in this amazing project!!!
  Alvaro.
  
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• Flashing light
• Posted: 2010-07-07 18:34:13 By Beau G
• Hello to all. I am 31 years old and have been diagnosed with wet amd in my left eye for over a year now. I have had five Avastin injections and one PDT. In a few days I will have my second PDT treatment. My question is, where I have a blind spot, there is almost always a flashing light affect. This occurs if my eye is open or closed. I was wondering if this is normal. My doctor has explained that it is probably were my brain is trying to fill in the blanks.
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• MD and Hormone Replacement Therapy (GH and testosterone)
• Posted: 2010-05-20 13:54:48 By marcos m
• I'm 41 and was diagnosed with macular degeneration 6 years ago. My vision is getting worse slowly.
  My testosterone and growth hormones tested low and my doctor is considering hormone replacement therapy.
  Does anyone know if there is any known issue about taking those hormones for people suffering from MD?
  Any suggestion about a reliable source of information?
  
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• Neurotech ECT
• Posted: 2010-05-14 19:52:29 By
• Hi folks,
  does anyone have an update on Neurotechs trial program for Encapsulated Cell Technology. Since completion of the stage 2 trial for Macular degeneration last year it has all gone quiet on their website. Any word on a stage 3 trial out there?
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• cataract surgery
• Posted: 2010-05-06 09:06:01 By richard f
• is macular degeneration a retinal degenerative disease?
  
  should I be wary or concerned about scheduling cataract surgery if I have AMD?
  
  I am 66 years old and have been scheduled for cataract surgery on 5/24/2010.
  
  I had just learned of my AMD during the same office visit concerning the possibility of cataract problems.
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• RP Social
• Posted: 2010-05-05 21:44:10 By Maria P
• Hello everyone,
  
  Here is the info for the 2010 RP Social open to all with retinal degeneration or other blindness as well as Usher. For info go to: www.rpsocial2010.com It is a great way to meet others who are dealing with Retinal disorders or Usher. I am looking forward to going to my first social.
  Hope to see you tehre!
  Marisa
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• Inherited Macular Degeneration
• Posted: 2009-11-04 00:58:47 By Seth S
• Hi,
  
  My father has a form of Inherited Macular Degeneration known as Fundus Flavimaculatus with macular dystrophy (FFM). Fundus Flavimaculatus is similar to the more common form of Macular Degeneration known as Stargardt’s. I was wondering if anyone else has this disorder. I would like to learn more about the latest research and clinical trials, and also share his story. I know he is looking for people in a similar situation that he can connect with.
  
  Seth
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• New Website - Blinding Ambition
• Posted: 2009-09-25 15:07:39 By Eldie T
• So I've had this idea to create a comprehensive site for the visually impaired community. A place to aggregate useful information on the subject, post related articles, and talk to others in similar situations.
  
  My first step is to build a blog to post useful articles and information. Please check it out and if you have any suggestions let me know.
  
  BlindingAmbition.net
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• Free Yoga Class in Silver Lake
• Posted: 2009-08-21 16:37:49 By Pamela J
• Hello potential yogis,
  
  Greetings. I'm affiliated with an Ashtanga Yoga Studio in Silver Lake run by authorized teacher, James Butkevich (http://www.ashtangayogala.org/). We are planning on offering a free class to those that are interested. It is one way for us to reach out to the local community.
  
  First, a little about the style of yoga that we practice.
  
  Ashtanga is a system of yoga that differs from other styles in that postures are tightly linked with the breath. So, every posture or movement has an inhale or exhale associated with it. The goal is to focus more on the breathing and less the posture. Ultimately with practice, this system of yoga becomes more of a moving meditation. Ashtanga is made up of a set series of postures that build upon eachother. When taught traditionally, a student begins with a few postures and receives additional postures only once proficiency is achieved on the last posture. In a traditional class, students practice at their own pace and level of ability, but in the company of other students and with the encouragement and adjustments from a teacher as needed. This style of practice can also be done at home and can have long-lasting benefits, such as helping with stress, anxiety, mobility and improving quality of life. For these reasons, Ashtanga may be well-suited for students who have individualized needs and for different age groups.
  
  We will probably structure the class and the schedule based on the needs and schedules of those who express interest. If you have any questions, please feel free to email me at drishtipath108@gmail.com for more info.
  cheers,
  Pam
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• Posted: 2009-04-22 07:11:16 By Itzko C
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• Alternative Treatment
• Posted: 2009-03-11 21:06:39 By Itzko C
• Hello,
  
  I have wet form of macular degeneration from 2 years.Until now I have been made five treatment with Avastin.
  My questions is :
  - Did somebody use alternative method of treatment for wet macular degeneration?
  - Did somebody use treatment with Microcurrent Stimulation - http://www.webrn-maculardegeneration.com/microcurrent-stimulation.html
  - Have you got information for treatment with stem cells (Embryonic tissues).
  - Did somebody try diets (without ate anything)or other types of diets,with improvement for macular degeneration.
  
  THANKS ,good luck
  
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• Congratulations to Scott MacIntyre!
• Posted: 2009-03-05 11:50:46 By Kristine A
• Congratulations to Scott MacIntyre! His dynamic performance on Tuesday night secured him a place in the Top 12 in American Idol!
  
  Thank you to everyone who voted for Scott. Be sure to tune in again next Tuesday at 8:00 p.m. EST and cast your vote for Scott as he performs in the next round. With FFB’s support, Scott MacIntyre is destined to be the next American Idol!
  
  Millions dream of making it to the final rounds of American Idol but for Scott MacIntyre, the dream has become reality. Born with severe vision loss from Leber congenital amaurosis (LCA), Scott is an incredibly gifted musical performer who has made it to the Top 12 on American Idol. With his remarkable talent, Scott is bound to make it far in the competition, and we need you to support him as he shoots his way to the top!
  
  An Arizona State University graduate, a Marshall scholar, and a Fulbright scholar, Scott learned to play the piano at the age of three. His piano professor, Walter Cosand, said, "He's always been able to do what everyone else could do and many things no one else could do. A lot of things he does are very remarkable, even for someone without a disability."
  
  Scott also has a sister, Katelyn, who has lost her vision to LCA. With their brother Todd, the three siblings have made a splash performing as the MacIntyre Family Singers. Scott even shared his talents with the FFB family when he performed at the opening luncheon of the 1998 VISIONS Conference in Chicago.
  
  Simon, Paula, Randy and Kara have brought him this far; now it’s up to us to make Scott MacIntyre the next American Idol! Scott will be performing live on Tuesday, March 10, as one of the Top 12 contestants to continue to compete. Voting is free, so be sure to vote for Scott!
  
  Stay tuned to the Foundation Fighting Blindness Web site for more information about Scott’s progress and how your votes can help him reach the top and raise awareness of retinal degenerative diseases across the country.
  
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• fuzziness get's worse during the day
• Posted: 2009-02-13 12:42:18 By Anita W
• My husband has wet Mac in both eye's. He will start off the day seeing pretty well then during the day his eye's get fuzzy, the dr seems to have no idea as to what we can do for this....anyone else have this problem?
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• ect
• Posted: 2009-01-29 21:18:20 By Becky B
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• Posted: 2008-12-18 23:57:16 By Mary S
• testing
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• Stem cell research for AMD
• Posted: 2008-12-18 10:53:02 By Yasmyn R
• Prof Coffey from the London Project to Cure Blindness gave a public lecture at University College London on 4th Dec 08. The project is developing a cellular therapy using stem cells to regenerate and restore vision in wet and dry AMD patients. Clinical trials are planned for 2010-2011.
  
  The lecture can be viewed online at http://www.ucl.ac.uk/lhl/streamed/lhlpub2/16_041208
  
  Once this link breaks it can be downloaded from UCLs iTunes U store http://www.ucl.ac.uk/lhl/streamed/autumn2008
  
  
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• Macular Degeneration & depression
• Posted: 2008-11-29 00:31:50 By C K
• I'm in my 40's and was diagnosed with AMD 2 years ago after I developed a scotoma in my left eye. Now I have some grey spots in my right eye. I'm afraid to begin anything new in my life and I'm depressed.
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• Discounts on Makeup Services Help Visually Impaired Women Look Their Best
• Posted: 2008-10-08 15:17:38 By Kristine A
• Patti Pruitt, friend of FFB, made it a mission to identify a beauty spa and paramedic aesthetician in every major city throughout the U.S. to offer discounts on make-up services for their visually impaired clients.
  
  If you are interested in permanent make-up and would like to take advantage of the discounts for visually impaired women, visit www.blindnessga.org/servspons.htm. People who want to recommend spas and aestheticians in their community that may be amenable to discounts for visually impaired clients can send an e-mail to Patti at: patti.pruitt@comcast.net.
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• I'M NEW TO THIS BOARD
• Posted: 2008-09-27 14:01:03 By Marilyn P
• Hi all, I've was diagnosed with glaucoma 2 1/2 years ago. I've had surgery on the affected eye because the medicated eye drops were not working and I've lost 50% vision due to damaged optic nerve. Now, my eye is acting stange. With or without my glasses my eye seems to have a sensation of wetness plus like something holding back my vision, such as it is. The eye doctor gave me a special test for the MACULA. Said he'd call me if anything bad. Have not heard from him, however, after looking on these various websites I found the Amsler Grid test and the affected eye does have the wavy lines as described. Any thoughts ?
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• free presentation on nutrition and AMD
• Posted: 2008-09-12 16:08:58 By Dan R
• Dear Friends,
  
  The September 11 session of the International MD Support Group featured ophthalmologist/author Lylas Mogk, M.D., with an excellent presentation on nutrition and AMD. Her talk, titled "What You See is What You Eat," is now online and free to the public in MD Support's Audio/Visual Library at:
  
  http://www.mdsupport.org/tutorials.html
  
  This is a very comprehensive overview of the entire field of diet and nutrition that brings together all of the current thinking about improved retinal health through the food we eat and the supplements we take. I highly recommend that everyone and their caregivers view Dr. Mogk's presentation. And be prepared to take notes, because it is full of a great deal of important information you will want to remember.
  
  Best regards,
  
  Dan Roberts, Director
  MD Support
  www.mdsupport.org
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