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Message Boards » Doynes Disease

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  • my new blog about living with a retinal degenerative disease
  • Posted: 2013-06-03 21:19:16 By Heather G
  • I have started a blog where I will share stories, offer advice, and generally stay connected with people who are affected by Stargardts or other visual impairments.
    Please take a look! Thank you,
    Heather

    http://hgarbitt.blogspot.com/
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  • WV
  • Posted: 2012-01-05 19:50:25 By david n
  • I also have this disease. i am currently looking for a place for my family to donate their eyes to. last march i donated my fathers eyes to the university of iowa but they have lied to us since the donation so i would prefer to find another research center. the only sets of eyes they said they have had were my great aunts and then 18-20 yrs later my fathers. i would think they would show more appriciation for these donations.
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  • Malattia Leventinese -Doynes disease
  • Posted: 2009-07-07 16:32:11 By Eugena H
  • interested in others with this as I do genealogy and may find others who are searching their ties.
    jane
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  • Race to Cure Blindness - Foundation Fighting Blindness
  • Posted: 2008-02-29 09:27:57 By Kristine A
  • Are you a marathon runner or competitive racer? You can use your racing effort to raise money for the Foundation Fighting Blindness through our Race to Cure Blindness program! To learn more visit www.RaceToCureBlindness.org.

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  • Malattia Leventinese dystrophy
  • Posted: 2007-08-08 12:34:08 By eugena h
  • I also have this .. it has not progressed tho in 15 years.
    I am in United States and know that anyone with this is family. we had the DNA done thru Dr Morgan and affiliates with University of Iowa.
    jane
  • View Full Thread

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