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• my new blog about living with a retinal degenerative disease
• Posted: 2013-06-03 21:18:08 By Heather G
• I have started a blog where I will share stories, offer advice, and generally stay connected with people who are affected by Stargardts or other visual impairments.
  Please take a look! Thank you,
  Heather
  
  http://hgarbitt.blogspot.com/
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• Congratulations to Scott MacIntyre!
• Posted: 2009-03-05 11:50:14 By Kristine A
• Congratulations to Scott MacIntyre! His dynamic performance on Tuesday night secured him a place in the Top 12 in American Idol!
  
  Thank you to everyone who voted for Scott. Be sure to tune in again next Tuesday at 8:00 p.m. EST and cast your vote for Scott as he performs in the next round. With FFB’s support, Scott MacIntyre is destined to be the next American Idol!
  
  Millions dream of making it to the final rounds of American Idol but for Scott MacIntyre, the dream has become reality. Born with severe vision loss from Leber congenital amaurosis (LCA), Scott is an incredibly gifted musical performer who has made it to the Top 12 on American Idol. With his remarkable talent, Scott is bound to make it far in the competition, and we need you to support him as he shoots his way to the top!
  
  An Arizona State University graduate, a Marshall scholar, and a Fulbright scholar, Scott learned to play the piano at the age of three. His piano professor, Walter Cosand, said, "He's always been able to do what everyone else could do and many things no one else could do. A lot of things he does are very remarkable, even for someone without a disability."
  
  Scott also has a sister, Katelyn, who has lost her vision to LCA. With their brother Todd, the three siblings have made a splash performing as the MacIntyre Family Singers. Scott even shared his talents with the FFB family when he performed at the opening luncheon of the 1998 VISIONS Conference in Chicago.
  
  Simon, Paula, Randy and Kara have brought him this far; now it’s up to us to make Scott MacIntyre the next American Idol! Scott will be performing live on Tuesday, March 10, as one of the Top 12 contestants to continue to compete. Voting is free, so be sure to vote for Scott!
  
  Stay tuned to the Foundation Fighting Blindness Web site for more information about Scott’s progress and how your votes can help him reach the top and raise awareness of retinal degenerative diseases across the country.
  
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• text
• Posted: 2009-01-25 18:40:39 By racer x
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• Race to Cure Blindness - Foundation Fighting Blindness
• Posted: 2008-02-29 09:27:37 By Kristine A
• Are you a marathon runner or competitive racer? You can use your racing effort to raise money for the Foundation Fighting Blindness through our Race to Cure Blindness program! To learn more visit www.RaceToCureBlindness.org.
  
  
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• Young Diagnosis
• Posted: 2008-01-20 01:02:36 By Christie L
• Last Wednseday I got the news that my 6 year old son has Choroideremia. Growing up I watched my father deal with this, he is the strongest man I know, him being diagnosed at the age of 13 by the age of 21 he lost he drivers licence 22 lost his job, thats when things got bad for him. At 42 years of age he had 4% vision left and he got his first seeing eye dog.(which he said gave him back his freedom and indapendence) In 2000 age 45 his sight was gone completly. On the other hand my uncle Doug was 45 when he lost his Licence. He now in his mid 50,s is experencing night blindness. So with me knowing some backround of this disease you would think I would have been ready for the diagnosis but to be honest NOTHING can prepare you for the words "Your son is going to be blind." I would like to hear others story's and how they are dealing with it..
  
  Christie
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