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Search Message Boards » Retinoschisis, X-linked

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  • Updates?
  • Posted: 2012-04-12 10:34:53 By Billy D
  • Anybody hear if the trials ever started? Just curious if there has been an progress.
  • gene replacement therapy clinical trial
  • Posted: 2012-05-15 15:43:36 By Sarah E
  • Applied Genetic Technologies Corporation (AGTC)is the company that is working on gene replacement therapy for retinoschisis. I emailed AGTC, asking for status of the pre-clinical trial and when they expect the human clinical trial to start. This was their response:

    AGTC received a grant from the Foundation Fighting Blindness (FFB) to conduct preclinical studies in animals that need to be completed before we can consider doing a human clinical trial. Our current estimate is that the first clinical trial will start within the next 5 years.
  • Posted: 2012-06-01 01:03:50 By Svitlana R

  • AGTC received a grant from the Foundation Fighting Blindness (FFB) to conduct preclinical studies in animals that need to be completed before we can consider doing a human clinical trial. Our current estimate is that the first clinical trial will start within the next 5 years.

    Isn't it cruel!!!!!!!!!!!
    I am sure if They would've have kids with these kind of an eye conditions they've would try doing those trial more enthusiastically.
    But they are,who are slowing this process of a treatment just don't care
    Simly don't care....
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