Please login to post a response.

• Possible future treatment for retinoschisis
• Posted: 2011-11-15 07:06:37 By David G
• Hi,
  
  Just thought I would let you all know about this in case your doctors arent telling you. I am seen at Moorefield's hospital in the UK by Prof Moore. During my last visit, I pushed him on the effectiveness of the trusopt drops, which I tried. He said that they have been affective for some people, but only a very few. He did then tell me about a man called Dr Seiving. He works at the National Eye Institute in USA. He has carried out trials on mice of gene therapy that seems to have fixed some issues of the retinoschisis and possibly improved retinal function. He is soon starting human trails so might be worth getting in touch with him. I tried emailing but haven't received a response. http://www.nei.nih.gov/intramural/retinalandmaculardegeneration.asp
  
  Def worth a read and something to keep an eye on. (Pardon the pun).
  
  Also if you are in the UK, might be worth contacting RNIB if you havent already. They offer support for blind and partially sighted people, they even have a youth section where they run activities for children that are affected.
  
  Cheers
  Dave