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• xlrs retinoschisis
• Posted: 2009-08-11 07:49:40 By steve l
• my 3 year son was diagnosed with xlrs a year ago and has had multiple surgeries due to the disease. he has had retinal detachements, angiograms, and a silicone oil implant. as of last week, he has started azopt. we are seeing a pediatric retinal specialist in los angeles. xlrs is his specialty. feel free to email me. i hope we can help each other.

• xlrs retinoschisis
• Posted: 2009-08-11 08:00:51 By steve l
• forgot to mention that our 3 year son wears sport goggles made by recspecs. one side is a clear lense to protect his good eye and the other side is a rx lens. he has been wearing these glasses for about 8 months. at first he hated them, but now he wears them without any fuss. everyone loves his glasses. they come in a variety of colors.

• xlrs retinoschisis
• Posted: 2009-08-12 20:55:41 By steve l
• as part of our son's therapy, we cover this good eye with a patch for 2-3 hours a day. the doctor indicated this would make his weak eye get stronger. he has been doing this for over a year.

• Posted: 2009-10-20 19:05:31 By Waleska S
• I am available for support as well. We need to stick together to answer questions that will come up. My older boy sousin that has it drove till he was 30 and he loves his eye drops so thier is hope.
  
  Johanna