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• 6 week old with retinoschisis
• Posted: 2007-09-25 19:55:10 By Leanna P
• Hi all...
  I am a new mom to a 6 week old baby boy. He had a pediatric eye exam done yesterday due to having to be on oxygen at birth. The doctor found some things to be troubling and sent us on to a retinal specialist. I have an extensive family history od retinoschisis and i did know that I was a carrier of the disease, I guess I was in denial about it possibly affecting my child. The specialist said he had never seen a case of juvenile retinoschisis, but did diagnose my son with having what he said looked to be a severe case. I do not feel comfortable continuing this relationship with this doctor due to his inexperience with retinoschisis. Does anyone know of a good specialist that is experienced in treating small children with retinoschisis. I live in Houston and am willing to travel anywhere. Thanks in advance!
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• dorzolomide (trusopt)
• Posted: 2007-08-20 10:58:08 By ste m
• hi, i live in the uk and this country is about 10 years behind usa so it seems, because i keep gettin told the same thing that there is no treatment for retinoschisis, do you recommend i just buy my own dorzolomide and take twice a day like most people on here are doing? thanks
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• Trusopt drops results
• Posted: 2007-08-15 17:54:59 By eileen m
• My 2 sons started on the Trusopt drops in June. Their Dr. only wanted them to use the drops in one eye to start with. Today we had a six week follow up and the news was encouraging.
  
  Six weeks ago, my 14 year old could not read all the letters on the 20/100 line with his left eye, but today he got all of them plus one letter in the 20/80 line.
  
  In June, my 12 year old son could see the 20/60 line with his left eye plus 1 letter on the 20/50 line. Today he read the 20/40 line plus 3 letters on the 20/30 line.
  
  The Dr. thought that maybe my younger son had better results than his brother because his eyes are less damaged by the retinoschisis. We have a follow up in another 6 weeks and at that point, will most start using drops in both eyes.
  
  ~eileen
  
  
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• Dr Trese's CXLRS 4 Types
• Posted: 2007-08-04 11:20:04 By Mike P
• Hi to All,
  
  Please let me know if this posting helps to explain Dr Trese/s CXLRS Types? Thanks.
  
  I am attempting to describe/simplify the article “Congenital X-Linked Retinoschisis Classification System” written by Michael T. Trese, MD et. all. That was provided to me by Nara. The article describes criteria for classifying CXLRS in clinical terms using your eye doctor’s examination (clinical observation) and OCT (optical coherence tomography). In the article, the doctors develop 4 types of CXLRS based on the location of the schisis cysts in the eye as observed either clinically or by OCT observation.
  
  The article defines three areas of the retina, the foveal, foveal-lamellar, and peripheral. The foveal part of the retina is the center area that the doctor would see looking straight into your eye. The foveal layer is the part of the eye that you use when focusing straight at an object. The inner layers of the retina (there are seven layers) that can not be observed clinically by your doctor are referred to as lamellar. The outer edges of the retinal are referred to as the peripheral. Just a side note, your center foveal vision is where you see most of the colors and the peripherals are where you see black and white or light and dark.
  
  Basically the types define where the schisis cysts are located in the retina and how the cysts are observed.
  
  Type 1 is when schisis cysts are visible clinically in the foveal only. The OCT does not reveal schisis in the lamellar or peripheral areas.
  
  Type 2 is when schisis cysts are visible clinically in the foveal and in the foveal-lamellar area on OCT. There is no schisis in the peripheral of the retina.
  
  Type 3, there is schisis clinically and on OCT examination there is schisis lamellarly and peripherally.
  
  Type 4 is when schisis cysts are visible clinically and peripherally on OCT examination. This means that the OCT does not find schisis in the foveal-lamellar area.
  
  I do hope that I have accomplished the task of simplifying CXLRS types. I am not sure that there is general or widespread use or agreement among Retina Specialists on the classification terminology.
  
  A special thanks to Nara for getting Dr Trese's article to me. Also, type 3 is most common and may be considered the worst of the 4.
  
  Mike
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