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  • Study Participants Wanted
  • Posted: 2013-06-17 14:57:05 By Dana A
  • BLIND/VISUALLY IMPAIRED VOLUNTEERS NEEDED

    If you are blind or visually impaired, you are invited
    to be interviewed for a research study on race and ethnicity being conducted by Dr. Asia Friedman, Department of Sociology and Criminal Justice, University of Delaware.

    The interviews will explore how race is experienced non-visually. The interviews will take approximately 30 minutes to 1 hour and can be done over the phone.

    As an incentive to participate, all participants will be given a $10 American Express gift card.

    If you would like to participate in this research study or to find out more information, please contact Dr. Friedman at:
    302-831-7581 or asiaf@udel.edu
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  • my new blog about living with a retinal degenerative disease
  • Posted: 2013-06-03 21:17:34 By Heather G
  • I have started a blog where I will share stories, offer advice, and generally stay connected with people who are affected by Stargardts or other visual impairments.
    Please take a look! Thank you,
    Heather

    http://hgarbitt.blogspot.com/
  • View Full Thread
  • Vision Through Words
  • Posted: 2011-05-19 14:29:34 By Stella D
  • Vision Through Words is a new blog that posts poetry and short essays written by visually impaired people, but to be read by all. Please go to www.visionthroughwords.com to find out more.
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  • me
  • Posted: 2010-05-27 00:30:24 By scott l
  • I am a 33 year old who was has best disease . I always new as far as I remember to have some vision problems.Glasses never seemed to really help much so I pretty much ignored it.Two years ago during an eye exam they found thr problem and was sent to speacialists.I have the dry kind not wet was told nothing could be done .It has been hard for my wife to find any information its frustrating I no the disease is rare but theres like hardly anything. I no the disease is rare.Also everything says it is a gradual vision loss not in my case . Both eyes are now 20/200 and have yet to find my family link.I did have a greatgrandmother with very low vision but not sure the cause.But no one else.Anyone else have these issues with this disease.
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  • which is the best..
  • Posted: 2009-11-26 05:48:41 By vernon g
  • tell me which is the best disease??
    ==========================================
    vernon getzler
    [url=http://www.nova-vision.com]LASIK Halifax[/url]
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  • SEO
  • Posted: 2009-09-16 03:58:13 By Sahil S
  • Thanks for post. It’s really imformative stuff.
    I really like to read.Hope to learn a lot and have a nice experience here! my best regards guys!
    Sahil Sogarwal
    LASIK eye surgery Halifax--LASIK eye surgery Halifax
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  • LASIK Surgeon in Columbus, OH
  • Posted: 2009-09-11 03:28:31 By Girish L
  • Laser Vision Correction Services we offer include
    Dr. Beran has been performing services such as Lasik Surgery, Cataract Surgery, and other laser vision correction techniques in Columbus, Ohio for over 20 years, and has performed more than 20,000 procedures. So you can rest assured that if you are looking for a Laser Vision Correction Surgeon in Columbus, or anywhere in Ohio for that matter, Dr Beran stands ready, and more than able, to help you.

    Below is the list of Laser Vision Correction services we provide to our Ohio clients:

    Lasik Surgery
    Advanced Surface Treatments
    Cataract Treatments
    Implantable Lenses (Phakic IOL's)
    LASIK Surgeon in Columbus, OH--LASIK Surgeon in Columbus, OH

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  • Congratulations to Scott MacIntyre!
  • Posted: 2009-03-05 11:49:47 By Kristine A
  • It’s time for America to “Idolize” Scott MacIntyre

    Congratulations to Scott MacIntyre! His dynamic performance on Tuesday night secured him a place in the Top 12 in American Idol!

    Thank you to everyone who voted for Scott. Be sure to tune in again next Tuesday at 8:00 p.m. EST and cast your vote for Scott as he performs in the next round. With FFB’s support, Scott MacIntyre is destined to be the next American Idol!

    Millions dream of making it to the final rounds of American Idol but for Scott MacIntyre, the dream has become reality. Born with severe vision loss from Leber congenital amaurosis (LCA), Scott is an incredibly gifted musical performer who has made it to the Top 12 on American Idol. With his remarkable talent, Scott is bound to make it far in the competition, and we need you to support him as he shoots his way to the top!

    An Arizona State University graduate, a Marshall scholar, and a Fulbright scholar, Scott learned to play the piano at the age of three. His piano professor, Walter Cosand, said, "He's always been able to do what everyone else could do and many things no one else could do. A lot of things he does are very remarkable, even for someone without a disability."

    Scott also has a sister, Katelyn, who has lost her vision to LCA. With their brother Todd, the three siblings have made a splash performing as the MacIntyre Family Singers. Scott even shared his talents with the FFB family when he performed at the opening luncheon of the 1998 VISIONS Conference in Chicago.

    Simon, Paula, Randy and Kara have brought him this far; now it’s up to us to make Scott MacIntyre the next American Idol! Scott will be performing live on Tuesday, March 10, as one of the Top 12 contestants to continue to compete. Voting is free, so be sure to vote for Scott!

    Stay tuned to the Foundation Fighting Blindness Web site for more information about Scott’s progress and how your votes can help him reach the top and raise awareness of retinal degenerative diseases across the country.

    Posted by: Foundation Fighting Blindness
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  • Posted: 2009-03-03 04:05:09 By Carmela A
  • Posted: 2008-02-29 09:26:44 By Kristine A
    Are you a marathon runner or competitive racer? You can use your racing effort to raise money for the Foundation Fighting Blindness through our Race to Cure Blindness program! To learn more visit www.RaceToCureBlindness.org.


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  • Best's Disease
  • Posted: 2009-02-10 21:00:32 By Carmela A

  • Hi,


    I am new to this forum. I have a mild Best's disease (diagnosed last year Aug) in both eyes.

    I am 46 y.o and my visual acuity is 20/30. I am wearing bifocal glasses. I have some symptoms.. I cannot see good in dim light. I am having trouble driving at night in unfamilar area or dark areas - dont know if it is related to depth perception or colour contrast problems. I will see Orthoptist and Occupational Therapist from Vision Rehab Centre next month. It has been very hard for me to deal with this as I am profoundly deaf and worried what it will happen to my eyes. None of my family have Best Disease. her eye The ERG shown normal but the EOG showed abnormal. My right eye is more affected then left eye. My retinal specialist couldn't give me accurate answer how much will it affect my eyes in the future.

    I have been trying to get as much as information about Best Disease on internet but I would like to get in touch with people who have Best Disease via chatrooms.

    Thanks

    calpen

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  • Hello
  • Posted: 2008-03-31 16:26:39 By Amy G
  • Hello to all of my Bests Chat buddy's

    I was just wanting to checking and say hi.
    It seems like I keep missing everyone on the chat.

    Are we still Chatting?

    Thanks
    Goofy
  • View Full Thread
  • Race to Cure Blindness - Foundation Fighting Blindness
  • Posted: 2008-02-29 09:26:44 By Kristine A
  • Are you a marathon runner or competitive racer? You can use your racing effort to raise money for the Foundation Fighting Blindness through our Race to Cure Blindness program! To learn more visit www.RaceToCureBlindness.org.

  • View Full Thread
  • A concerned mother
  • Posted: 2007-08-20 17:53:37 By Bernadette F
  • Hello, My 16 year old daughter was diagnosed with Best's Disease at the age of 12 and last week at the age of 16 lost the central vision in her right eye. I would love to think that she has some time up her sleeve before the other eye is affected. Are there many of you out there who have one eye worse than the other? We would love to think the gene treatment will be available in time to save the left eye. Bernadette from Melbourne Australia
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  • Help!
  • Posted: 2007-08-20 02:01:23 By Abigail B
  • Hey guys,
    this is abby,
    and i am new to this, so help me out a little.
    i decided to write a book, the point of view being from a blind boy. the story, about his struggle.
    but, i honestly have no idea what i am righting about when i write how he went blind.
    so, if you guys could help me out to find the right "case" for how it happened. that would be amazing.
    thanks for the help,
    abby
  • View Full Thread
  • Help!
  • Posted: 2007-08-20 02:01:19 By Abigail B
  • Hey guys,
    this is abby,
    and i am new to this, so help me out a little.
    i decided to write a book, the point of view being from a blind boy. the story, about his struggle.
    but, i honestly have no idea what i am righting about when i write how he went blind.
    so, if you guys could help me out to find the right "case" for how it happened. that would be amazing.
    thanks for the help,
    abby
  • View Full Thread

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