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Foundation News
New Animal Model Improves Understanding of XLRP Due to RP2 Mutations

The Foundation-funded advancement brings researchers closer to developing treatments for humans.

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Clinical Trial Update from Oxford BioMedica

Oxford BioMedica announced that it has voluntarily paused participant recruitment for its gene therapy clinical trials  for wet AMD, Stargardt disease and Usher 1b.

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The Foundation Welcomes New Board Members

Two national trustees with children affected by retinal disease join the board leadership ranks.

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Progress Reported in Gene Therapy Development for Best Disease

A study conducted by a Foundation-funded research team at the University of Pennsylvania serves as stepping stone to a clinical trial.

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    Rare disease research is challenging, because patient information about the conditions is inherently limited. Patient recruitment for clinical trials can be especially difficult, because so...
  • Our CEO’s Q&A with FasterCures
    Coming up with a treatment or cure for any disease is hard enough, clinically speaking. But when you factor in the bureaucratic and financial obstacles...
  • All-Star Vision
    When the Baltimore Orioles’ Adam Jones makes a great catch — a feat the Gold Glove centerfielder accomplishes on a regular basis — he isn’t...
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