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Foundation News

  • Foundation Fighting Blindness will provide up to $7.5 million in funding to develop ProQR’s candidate QR-421a for Usher syndrome type 2A
    February 12, 2018
    Foundation Fighting Blindness and ProQR enter into a partnership to develop QR-421a for Usher syndrome type 2A, targeting mutations in exon 13 of the causative USH2A gene.
  • Foundation Fighting Blindness Achieves Continuing Accreditation from BBB Wise Giving Alliance
    February 01, 2018
    By meeting key standards in the areas of board oversight, finances, results reporting and fundraising appeals, the Foundation Fighting Blindness has achieved continuing accreditation by the Better Business Bureau’s Wise Giving Alliance.
  • 5th Annual Retinal Cell and Gene Therapy Innovation Summit
    January 22, 2018
    The Foundation Fighting Blindness (FFB), a national nonprofit focused on funding cutting-edge retinal disease research, and the Casey Eye Institute at Oregon Health & Science University will co-host the fifth annual Retinal Cell and Gene Therapy Innovation Summit in Honolulu, Hawaii, on Friday, April 27, 2018. The summit takes place just prior to the 2018 annual meeting of the Association for Research in Vision and Ophthalmology (ARVO).
  • A Retinal Research Nonprofit Paves the Way for Commercializing Gene Therapies
    December 12, 2017
    In an article published this month in Human Gene Therapy, Ben Shaberman, Director of Science Communications at Foundation Fighting Blindness, writes about the Foundation's role in commercializing inherited retinal disease (IRD) gene therapies.
  • 4D Molecular Therapeutics and Foundation Fighting Blindness Partner to Develop Gene Therapies for Retinal Diseases
    July 24, 2017
    4D Molecular Therapeutics (4DMT), a leader in adeno-associated virus (AAV) gene therapy vector discovery and product development, and the Foundation Fighting Blindness (FFB), the world’s largest non-governmental source of research funding for inherited retinal degenerations (IRD) and dry age-related macular degeneration (AMD), today announced a partnership to develop intravitreal gene therapeutics for patients with these blinding conditions using 4DMT-proprietary AAV vectors.
  • The Foundation Fighting Blindness (FFB): Special Events & Programs Build a Community for People With Inherited Retinal Diseases
    May 09, 2017
    Over the years, the Foundation Fighting Blindness has built a tight-knit community dedicated to developing treatments and, ultimately, finding a cure for inherited retinal diseases. Joining the FFB’s ranks is a great way to contribute to a good cause while meeting people with inspirational stories about overcoming vision impairment.
  • Researcher Update: An Interview with Dr. David Gamm
    April 25, 2017
    Please read the highlights from an interview conducted by the Foundation Fighting Blindness with David Gamm, MD, PhD about his vital research, supported by the Foundation.
  • Shire Shares Update on SHP-630 Program
    April 18, 2017
    Shire has shared with the Foundation Fighting Blindness that it is terminating its SHP-630 program
  • Foundation Fighting Blindness Supporting Clinical Development of NACA, Promising New Drug for Many Forms of RP
    January 18, 2017
    The Foundation Fighting Blindness Clinical Research Institute (FFB-CRI) has announced an investment of up to $7.5 million to advance a promising, emerging drug treatment for retinitis pigmentosa (RP) into and through a Phase II clinical trial
  • Dining in the Dark Dinner Opens Guests’ Eyes to Challenges of the Visually Impaired, Benefits Sight-Saving Research
    January 11, 2017
    Foundation Fighting Blindness to Honor Lowenbaum Law Founder & Co-Managing Partner R. Michael Lowenbaum and St. Louis Cardinals First Baseman Matt Carpenter at January 20 Event
  • Multi-Organization Workshop Helps Advance Clinical Trial Endpoints for Retinal Disease Therapies
    December 21, 2016
    Improved clinical endpoint measures will help deliver effective treatments to patients sooner
  • Chicago Visions Ball Raises $1 Million + for Blindness Research
    October 28, 2016
    Richard Price, Chairman and CEO of Mesirow Financial, honored with Visionary Award
  • Data Presented at the American Academy of Ophthalmology 2016 Annual Meeting Reinforce Efficacy and Durability of Voretigene Neparvovec in RPE65-Mediated Inherited Retinal Disease
    October 14, 2016
    Statistically Significant Results for Visual Field Highlighted for the First Time
  • Spark Therapeutics launches Initiative to Improve Access to Genetic Testing for Inherited Retinal Diseases
    October 13, 2016
    Free Genetic Test Helps Eligible Patients in U.S. Affected by Certain Progressive Retinal Diseases Get Support and Information
  • Spark Therapeutics launches Initiative to Improve Access to Genetic Testing for Inherited Retinal Diseases
    October 13, 2016
    Free Genetic Test Helps Eligible Patients in U.S. Affected by Certain Progressive Retinal Diseases Get Support and Information
  • Foundation Fighting Blindness Announces Completion of Phase One of the #HowEyeSeeIt Campaign
    October 06, 2016
  • Call for Scholars: Gund-Harrington National Initiative for Fighting Blindness
    September 13, 2016
    $900,000 in Funding and Mentoring with Internationally Renowned Drug Development Leaders
  • Foundation Fighting Blindness Gathers to Celebrate Success of $110M + Campaign
    September 09, 2016
    Event Featured Performance by Singer Songwriter Judy Collins
  • Foundation Fighting Blindness Launches #HowEyeSeeIt Campaign to Raise Awareness, Funds for Retinal Degenerative Disease Research
    August 23, 2016
    Celebrities Take the Blindfold Challenge to Fight for a Cure
  • FDA-Approved Drug for Boosting Sexual Desire in Women May Preserve Vision for People with Retinal Conditions
    July 27, 2016
  • Israeli Company Advancing Clinical Trial for Stem-Cell Derived-Treatment for Dry AMD
    July 08, 2016
    Hadassah’s Eyal Banin, M.D., Ph.D., one of the developers of the technology and a leading investigator of the clinical trial, hopes that OpRegen will replace and support the patient’s dysfunctional RPE cells, thus helping to maintain the photoreceptors. Regardless, he believes the treatment may have additional effects.
  • University College London Researcher Dr. Shomi Bhattacharya Recognized for his Research on Why Vision Loss Can Vary for Family Members with Same Retinal Disease
    July 05, 2016
    While genetic experts have had theories about why this variation is relatively common, Dr. Bhattacharya, identified the reason in people with RP caused by mutations in the gene PRPF31 —a finding that is also likely to explain at least some of the vision loss variation for other forms of RP and perhaps other retinal diseases.
  • Oregon Health & Science University’s Dr. Richard Weleber Receives Foundation Fighting Blindness’ Highest Research Honor
    July 05, 2016
    The Llura Liggett Gund Award recognizes retinal scientists who have consistently made the greatest contributions to retinal degenerative disease research.
  • Promising New Advances in Retinal Research and Potential Treatments for Vision Loss to be Discussed at Upcoming VISIONS 2016 Conference
    June 16, 2016
    Emerging treatments seek to replace or edit non-functioning vision cells
  • Foundation Fighting Blindness Renames its Builder of Sight Award to Honor Co-Founders Beverly and Bernard Berman
    May 25, 2016
    The FFB Builder of Sight Award is given annually to honor those who have made exceptional commitments to the Foundation’s mission and provided leadership for its continued work.

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