Genetic Risk Communication: Case Study of Gene Therapies for Retinal Dystrophies

OPEN FOR RECRUITMENT

Do you have choroideremia?
Genetic Risk Communication: Case Study of Gene Therapies for Retinal Dystrophies

The Study: We are conducting a study about communicating genetic risks for hereditary eye conditions in with the Departments of Public Health Science and Ophthalmology at the University of Alberta, Canada.

Participants: We are recruiting patients who are affected by choroideremia (affected males). All participants must be over the age of 18. You will be interviewed for about 45 minutes to an hour about where you get information about your eye condition, how you balance living with your eye condition, and about how you feel about gene therapies.

Confidentiality: Your responses will be de-identified or described in the aggregate and therefore remain confidential.

Consent: Your participation in this research project is voluntary. You may decide if you would like to participate with no consequence to your clinical care. Additionally, participation in this research project will not promote preferred access to therapeutic interventions.

Please Contact:
Shelly Benjaminy
sbenjami@ualberta.ca
(1-780) 492-3013