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VISIONS 2014 – The Multi-Talented Dr. Shannon Boye

Shannon BoyeShannon Boye, Ph.D., is something of a rock star here at the VISIONS 2014 conference. Serving as a panelist in sessions on gene therapy and clinical trials, the University of Florida assistant professor has won compliments for her skill in explaining complicated research in plain English. And her compassion for those affected by retinal diseases is plain to see.

But Dr. Boye, who’s an FFB-funded researcher, is also no slouch when it comes to developing treatments for those diseases. Not long before she arrived in Colorado, she and her research team received a $900,000 grant for a gene therapy project targeting Leber congenital amaurosis, or LCA. So we asked her, in the video below, to fill us in on the grant and her involvement with the Foundation.


5 Responses to 'VISIONS 2014 – The Multi-Talented Dr. Shannon Boye'

  1. Stephanie Campbell says:

    My grand daughter Synai Campbell is now 9 years old and she has Retinitis Pigmentosis. She is losing her vision and I would love to get her in any trials that may be available.

  2. Joan Marginean says:

    My son is now 32 years old. We have been waiting years very anxiously for news on treatment, more so a cure for Usher’s type 2. In regards to the specific gene or mutation, has any “one trial” for any, or all types of progressive blindness been tried on other genetic types of blindness. I am asking specifically about the amazing results you have had with LCA, is it possible to treat Usher’s 2 with the same gene therapy? Just because the mutations and genetics aren’t the same, would it be unrealistic to treat other types of blindness with the LCA treatment in hopes they may have a chance at sight once again?

  3. Charles M. Spock, Sr says:

    Dr. Boye,
    Thank you for this precious and uplifting news. We have supported the FFB, off and on, since its beginning. Our three sons were under the care and guidance of Dr. Melvin Ruben at U. F. (since the early ’60s) and more recently Dr. Christine Kay (our eldest son only because of his daughter).
    I wonder if their case histories might be an interesting time-line sequence for your research.
    Their mother and I would be eager to hear any comment you might be able to afford us.
    We live in hope. We also understand that freedom is not free.
    May God bless and keep you and your family in His hand. And your research—
    Charles M. Spock, Sr

  4. Maria Covadonga Rojo says:

    My son is 26 and also has Usher 2. Is there any trial ongoing where he could enter and hope for some improvement. I´ve Heard of amazing things in other retinal diseases. Any good news for Usher type 2? Thank you very much

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