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UCI Stem-Cell Pioneer Poised to Launch Clinical Trial for RP Patients

Dr. Henry Klassen, a Foundation-funded researcherHenry Klassen, M.D., Ph.D., is only about a year from launching a clinical trial for a stem cell treatment to rescue vision in people with retinitis pigmentosa (RP) and, potentially, other retinal diseases. At the Foundation’s recent Orange County Innovation Symposium, the University of California (UC), Irvine clinician-researcher reported that he and his colleagues are in the midst of final lab studies with patient-grade cells. Once finished, they’ll request authorization from the U.S. Food and Drug Administration to begin their human study.

But Dr. Klassen’s 35-year research journey to this pivotal moment was by no means conventional, nor was it embraced by many of his peers.

“During medical school at the University of Pittsburgh in the late ’80s, they thought I was crazy for getting a Ph.D. in addition to an M.D.,” he says. “That’s because, with a medical degree, there was nothing standing between me and an excellent income.”

He received similar criticism when he went from Yale, where he did his residency, to Moorfields Eye Hospital in England for a post-graduate fellowship. He passed on becoming a high-paying retinal surgeon because “the need for doing more research was reinforced when I saw the retinal degeneration patients,” he recalls. “The diagnosis was a grim message to have to deliver. I decided to concentrate on the research and come back to the clinic when I had something more to offer to patients.”

It was in the lab of Ray Lund, Ph.D. — a leading cell-therapy innovator who’s received Foundation funding — where Dr. Klassen first saw the potential for cell transplantation to restore vision. “When I got to Pittsburgh, I learned that Ray was doing retinal transplants and had showed that retinal grafts transplanted into the brain survived, and there was some integration,” he says. “That really thrilled me, so I joined his lab.”

Those early retinal graft experiments — before stem cells could be made into retinal cells — were technically difficult and tough to translate to humans. But they showed that transplanted retinal cells could connect to host neural tissue. Most important, they laid the groundwork for future retinal transplantation strategies, including those using stem cells.

In the 1990s, in collaborations with Dr. Lund and Michael Young, Ph.D., who was then at M.I.T., Dr. Klassen began making game-changing advancements in transplanting retinal cells into the eyes of rats with retinal degenerations. “As I’m looking through this microscope, I’m seeing something I never expected — a transplanted cell that could migrate through adult neural tissue and find its way to the right spot, park and start extending new connections into the host circuitry,” he remembers. “It was amazing. It was the breakthrough I’d been looking for.”

That was also about the time when he received a Career Development Award from the Foundation, to help advance his research. “I had seen a flier from the FFB when it was known as the RP Foundation. It was exciting to find an organization that was doing exactly what I wanted to do,” says Dr. Klassen.

Today, stem cell research for retinal diseases is blossoming, with several clinical trials planned or underway. Dr. Lund’s work led to the 2011 launch of Advanced Cell Technology’s human trial of a stem-cell-derived therapy for people with age-related macular degeneration and Stargardt disease. With support from the Foundation, Dr. Young is helping the company ReNeuron prepare for a stem cell clinical trial for people with RP scheduled to begin by early 2015. Both ReNeuron’s and ACT’s therapies involve injections of cells underneath the retina to replace those cells lost to disease.

Dr. Klassen’s forthcoming clinical study involves the injection of retinal progenitors — stem cells that have partially developed into retinal cells — into the patient’s vitreous, where they’ll release factors to preserve and rescue existing retinal tissue. He says that a benefit of his approach is that it doesn’t involve a more invasive subretinal procedure, which would be required if lost cells were being replaced. Also, his progenitor-based therapy has the potential to rescue a variety of retinal cells — including rods, cones, retinal pigment epithelium and ganglion cells — and, therefore, may save vision in people with a wide range of conditions.

After decades in the field, Dr. Klassen acknowledges that reaching this promising juncture wasn’t easy. “I have seen a lot of ups and downs with these technologies. It wasn’t like somebody invented one thing in their garage and everything was solved,” he says. “Finally, we are getting to the point where stem cells are poised to do something meaningful in the clinic.”

Pictured, above: Henry Klassen, M.D., Ph.D. 


255 Responses to 'UCI Stem-Cell Pioneer Poised to Launch Clinical Trial for RP Patients'

  1. Marisa says:

    Dear Sirs,
    We are interested in your study. What shall we do to enrol?
    Thank you very much.
    Marisa

    • Diana Durbin says:

      Please enroll Me Please God Bless You
      Diana Durbin

      • k kahui says:

        I am replying to your post regarding Dr. Henry Klassen’s upcoming clinical trial for the treatment of retinitis pigmentosa. We are compiling a list of names and some basic information from people like yourself who may wish to be considered for inclusion in our clinical trials.

        The trial will commence slowly, on a small scale in the Southern California area, however, our hope is to eventually grow theses studies to include additional locations and increased numbers of participants.

        If you remain interested in the study, please answer the questions below and send the reply kkahui@uci.edu.

        Many thanks,
        Karen Kahui
        Admin Assistant to Dr. Henry Klassen
        University of California, Irvine
        kkahui@uci.edu

    • Lance says:

      Have you gotten any info on how to enroll?

      • EyeOnTheCure says:

        If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen. Here is his contact information:
        Henry Klassen, MD.,PhD.
        Phone: (949) 824-0710
        Fax: (949) 824-9626
        Email: hklassen@uci.edu
        University of California, Irvine
        Sue and Bill Gross Hall – A CIRM Institute
        Stem Cell Research Center, 2nd floor, Room 2035
        845 Health Sciences Road
        Mail Code: 1705
        Irvine, CA 92697

    • Efrain J. Vazquez says:

      Hello,

      I am a 26 year-old R.P. patient and I’m extremely interested in being involved in the clinical study. Please send me information on how I can make that possible.

      Thank you,

      Efrain

      • EyeOnTheCure says:

        If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen directly. Here is his contact information:
        Henry Klassen, MD.,PhD.
        Phone: (949) 824-0710
        Fax: (949) 824-9626
        Email: hklassen@uci.edu mailto:hklassen@uci.edu mailto:hklassen@uci.edu mailto:hklassen@uci.edu
        University of California, Irvine
        Sue and Bill Gross Hall – A CIRM Institute
        Stem Cell Research Center, 2nd floor, Room 2035
        845 Health Sciences Road
        Mail Code: 1705
        Irvine, CA 92697

  2. Lizzette Hernandez says:

    Hello ,

    My husband and I are very interested in your study , pls let us know what can we do to be part of it …

    Thank you

  3. Nydia Mendez says:

    My granddaughter, Nydia Mendez, has had R.P. for twenty years and she is losing her right eye and the left eye is following. She lives in Camarillo, California and would probably be very interested in being a part of the stem cell clinical trial next year. Could you please send her information. Thanks.

    • EyeOnTheCure says:

      Nydia, We would recommend that you visit http://www.ClinicalTrials.gov. We fund many clinical trials but do not operate the studies ourselves and so reaching out them directly may be the best way for you to find out more about where they are happening and if participating is an option.

      On twww.ClinicalTrials.gov, which is maintained by the National Health Institute, you are able to search for clinical trials by searching based on your disease. Each clinical trial listing will tell you more about what the study is about and how you can contact them to see if they are recruiting and what the participant criteria may be.

      We hope this information is helpful and encourage you to contact us for additional help at info@fightblindness.org for further information if needed.

    • Author croom says:

      Hello my name is author
      I was diagnosed with RP when i was 16 i am now 46 my vision is declining pretty bad i would like to be a part of the human clinical trial if possible pleasw send me more information thank you so much

      • EyeOnTheCure says:

        If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen directly. Here is his contact information:
        Henry Klassen, MD.,PhD.
        Phone: (949) 824-0710
        Fax: (949) 824-9626
        Email: hklassen@uci.edu
        University of California, Irvine
        Sue and Bill Gross Hall – A CIRM Institute
        Stem Cell Research Center, 2nd floor, Room 2035
        845 Health Sciences Road
        Mail Code: 1705
        Irvine, CA 92697

  4. Kris says:

    As a person with rp I thank you for your hard work and studies on this terrible disease. Hope to see you in the future with the cure.

  5. umesh kumar agarwal says:

    wonderful hope for children and teenagers specially may god bless you and enlighten you more for the cause of humanity. thanx. umesh kumar agarwal, india, darjeeling

  6. Henry Bui says:

    Hi,

    I am a young university graduate who is entering into a pivotal part of my career and my life. My biggest set-back is having retinitis pigmentosa. It has greatly effected mine and my two brothers’ everyday quality of life (they also suffer from it). I would like to inquire more about these trials and hopefully be a part of it.

    Thank you so much for your time and contribution to the study.

    Henry Bui

    • EyeOnTheCure says:

      Henry, we would recommend that you visit http://www.ClinicalTrials.gov. We fund many clinical trials but do not operate the studies ourselves and so reaching out them directly may be the best way for you to find out more about where they are happening and if participating is an option.

      On twww.ClinicalTrials.gov, which is maintained by the National Health Institute, you are able to search for RP clinical trials by searching based on your disease. Each clinical trial listing will tell you more about what the study is about and how you can contact them to see if they are recruiting and what the participant criteria may be.

      We hope this information is helpful and encourage you to contact us for additional help at info@fightblindness.org for further information if needed.

  7. Scott says:

    We are interested in your study. What do we need to do to enroll?

    Thank you very much

    • EyeOnTheCure says:

      Scott, We would recommend that you visit http://www.ClinicalTrials.gov. We fund many clinical trials but do not operate the studies ourselves and so reaching out them directly may be the best way for you to find out more about where they are happening and if participating is an option.

      On twww.ClinicalTrials.gov, which is maintained by the National Health Institute, you are able to search for clinical trials by searching based on your disease. Each clinical trial listing will tell you more about what the study is about and how you can contact them to see if they are recruiting and what the participant criteria may be.

      We hope this information is helpful and encourage you to contact us for additional help at info@fightblindness.org for further information if needed.

    • Brenda HUYNEN says:

      My son has Usher Syndrome. I would be so grateful to have him on the list for this trial

  8. sharon says:

    Question, are you working on a cure for rop My 14 teen year old daughter has it. You are all taking too long. I’m sorry but at this rate your at least 5 years away. I don’t understand why you can’t have more clinical trials on people who don’t have eyesight!!!!! There is nothing worst then not being able to see……… the children who live in the dark..

    • EyeOnTheCure says:

      Sharon,
      Unfortunately, ROP is not a disease that we specialize in funding research for. We would encourage you to check out the National Eye Institutes page on ROP. Towards the right of this page you will see a link for some information on organizations and institutes that focus on research and resources for ROP and those who suffer from it.

      http://www.nei.nih.gov/health/rop/index.asp

      Thank you.

    • Eric says:

      Telling them to “hurry up because they’re taking too long” is idiotic and completly greedy and rude. I myself have RP. And i would want nothing more then for there to be a cure so i can live my dream of being in the armed forces. But really? Based on your comment i can tell you have no level of Education about stem cell research. I work in a stemcell research lab for the University of PA and they work so hard everyday and all they think about is the millions they could be saving, it’s not as simply as “here lets just inject you with stem cells”

  9. Concetta Collemi says:

    This is such exciting news. My husband has RP and would love to be considered for this trial. Can you please forward me information once this is FDA approved. Thanks for all of your hard work!!!

  10. Jenny Dennis says:

    I have 5 degrees left in both eyes due to RP. I have 4 children, play the piano, and really misses driving. I get hurt a lot by running into things. Please include me in the study.

  11. JS says:

    The article is very interesting, promising, and I would like to be considered as well for the upcoming human trial. Please advise on how one can participate. The only restriction for me right now is my vision restrictions via RP. Thank you.

    • EyeOnTheCure says:

      JS,

      We would recommend that you visit http://www.ClinicalTrials.gov. We fund many clinical trials but do not operate the studies ourselves and so reaching out them directly may be the best way for you to find out more about where they are happening and if participating is an option.

      On twww.ClinicalTrials.gov, which is maintained by the National Health Institute, you are able to search for clinical trials by searching based on your disease. Each clinical trial listing will tell you more about what the study is about and how you can contact them to see if they are recruiting and what the participant criteria may be.

      We hope this information is helpful and encourage you to contact us for additional help at info@fightblindness.org for further information if needed.

  12. Dan Merchant says:

    very promising hope for the people with vision defects Hope that the life long mission of Dr klassen
    succsed and bring light in the darkness

  13. Lee says:

    Our son in law suffers from RP and it limits his daily activities and as a new father has also put a greater strain on our daughter because he cannot drive. Would like more info on this study and how he can participate please

    • EyeOnTheCure says:

      Lee,

      We would recommend that you visit http://www.ClinicalTrials.gov. We fund many clinical trials but do not operate the studies ourselves and so reaching out them directly may be the best way for you to find out more about where they are happening and if participating is an option.

      On twww.ClinicalTrials.gov, which is maintained by the National Health Institute, you are able to search for clinical trials by searching based on your disease. Each clinical trial listing will tell you more about what the study is about and how you can contact them to see if they are recruiting and what the participant criteria may be.

      We hope this information is helpful and encourage you to contact us for additional help at info@fightblindness.org for further information if needed.

  14. Shilpi Mukherjee says:

    DEAR SIR
    PLEASE SEND ME MORE INFORMATION ON THIS.MY SISTER HAS RP AND WOULD LIKE TO KNOW IF SHE CAN TAKE PART IN THE TRIAL ETC.
    SHILPI

    • EyeOnTheCure says:

      Shilpi,

      We would recommend that you visit http://www.ClinicalTrials.gov. We fund many clinical trials but do not operate the studies ourselves and so reaching out them directly may be the best way for you to find out more about where they are happening and if participating is an option.

      On twww.ClinicalTrials.gov, which is maintained by the National Health Institute, you are able to search for clinical trials by searching based on your disease. Each clinical trial listing will tell you more about what the study is about and how you can contact them to see if they are recruiting and what the participant criteria may be.

      We hope this information is helpful and encourage you to contact us for additional help at info@fightblindness.org for further information if needed.

  15. Nick says:

    I’m interested in your clinical trial as I am 38 and have RP.
    Could you please contact me when you have more information.
    Thank you kindly.

    Nick.

    • EyeOnTheCure says:

      Nick,

      We would recommend that you visit http://www.ClinicalTrials.gov. We fund many clinical trials but do not operate the studies ourselves and so reaching out them directly may be the best way for you to find out more about where they are happening and if participating is an option.

      On twww.ClinicalTrials.gov, which is maintained by the National Health Institute, you are able to search for clinical trials by searching based on your disease. Each clinical trial listing will tell you more about what the study is about and how you can contact them to see if they are recruiting and what the participant criteria may be.

      We hope this information is helpful and encourage you to contact us for additional help at info@fightblindness.org for further information if needed.

  16. brenda says:

    I have rp terrible to know your gonna loose your eye sight iam very but very interested in your study thanks for restoring my hope for me n my kids what do i need to enroll.

  17. Charles says:

    Hey My Name is Charles Michael Turner im Am 18 years old and i will be turning 19 in august i was Diagnosed with RP when i was like 4-6 years old and ive always been scared of completely loseing my eye sight i have even cryed about it many many time because i fear the unknown and i would like to help by any means to help produce a cure for this Disease i attended L.S.V.I (Louisiana School For The Visually Impaired) for years and learned brail but i dropped out because of my eyes sight is pretty poor and i will never be able to operate a vehicle and it is my biggest dream to be able to get a drivers license i strugle alot trying to watch movies and play games and sometimes i have black outs to where im completely blind for 3-10 seconds and i get really light headed and it hurts i justy want to be able to get to 20/20 vision or at least be able to see well enough to drive i would really like to perticipate in this if you would let me my number is 774-634-7557 if you can contact me i would really appreciate it learning more about my eye deficiency and how to improve my vision please help me i would really be grateful

    • EyeOnTheCure says:

      Charles,

      We would recommend that you visit http://www.ClinicalTrials.gov. We fund many clinical trials but do not operate the studies ourselves and so reaching out them directly may be the best way for you to find out more about where they are happening and if participating is an option.

      On twww.ClinicalTrials.gov, which is maintained by the National Health Institute, you are able to search for clinical trials by searching based on your disease. Each clinical trial listing will tell you more about what the study is about and how you can contact them to see if they are recruiting and what the participant criteria may be.

      We hope this information is helpful and encourage you to contact us for additional help at info@fightblindness.org for further information if needed.

  18. sky seace says:

    I am very interested in taking part in the upcoming clinical trial for RP (stem cell) I have RP and am considered to be legally blind from it now. My mother is almost completely blind from RP as well.

    please consider me for your trials I am willing to travel and stay for as long as it takes for the trial.

    Thank you,
    Sky S

    • EyeOnTheCure says:

      Sky,
      We would recommend that you visit http://www.ClinicalTrials.gov. We fund many clinical trials but do not operate the studies ourselves and so reaching out them directly may be the best way for you to find out more about where they are happening and if participating is an option.

      On twww.ClinicalTrials.gov, which is maintained by the National Health Institute, you are able to search for clinical trials by searching based on your disease. Each clinical trial listing will tell you more about what the study is about and how you can contact them to see if they are recruiting and what the participant criteria may be.

      We hope this information is helpful and encourage you to contact us for additional help at info@fightblindness.org for further information if needed.

  19. claude daucet says:

    i have autosomal dominant retinaitis pigmenosis for the last 30 years and it increasingly getting worse. it is hereditary and i would very much like to be involved in your research study. I am very independent as i am building a garage but i would love to be able to see it and to quit hitting my thumb so much. lol (this is his friend Linda – you will never hear him complain and i try to help him as he stumbles. He is extremely ingelligent and works hard so people do not realize his disability. he is a very caring person who puts GOD first and truly loves the outdoors. Please allow him the opportunity to be in your study)

  20. Farah Rais says:

    I wish you the best of luck. What can we do to be part of this study?

    Thank you

    • EyeOnTheCure says:

      Farah,

      We would recommend that you visit http://www.ClinicalTrials.gov. We fund many clinical trials but do not operate the studies ourselves and so reaching out them directly may be the best way for you to find out more about where they are happening and if participating is an option.

      On twww.ClinicalTrials.gov, which is maintained by the National Health Institute, you are able to search for clinical trials by searching based on your disease. Each clinical trial listing will tell you more about what the study is about and how you can contact them to see if they are recruiting and what the participant criteria may be.

      We hope this information is helpful and encourage you to contact us for additional help at info@fightblindness.org for further information if needed.

  21. EyeOnTheCure says:

    Carol,

    We would recommend that you visit http://www.ClinicalTrials.gov. We fund many clinical trials but do not operate the studies ourselves and so reaching out them directly may be the best way for you to find out more about where they are happening and if participating is an option.

    On twww.ClinicalTrials.gov, which is maintained by the National Health Institute, you are able to search for clinical trials by searching based on your disease. Each clinical trial listing will tell you more about what the study is about and how you can contact them to see if they are recruiting and what the participant criteria may be.

    We hope this information is helpful and encourage you to contact us for additional help at info@fightblindness.org for further information if needed.

  22. Ann Menegis says:

    My son is 21 years old and was diagnosed at age 4 with x linked retinal schizma.He lives a normal life but his poor vision does impact on day to day living. I believe there is no treatment available for him,but after reading your article on stem cell therapy wondered if there is any hope that it would help him in future?I think your research is just tremendous and has such a potential for really changing lives.

  23. Steven D. says:

    Thank you so very much for your spirited efforts. I lost the final shred of my eyesight to recessive RP some years ago, and have been reduced to a bit of mere light perception in both eyes; I was once an avid Astronomer & Yachtsman. From time to time I find myself touching my telescope or longing for the Sea, and nearly bursting into tears as I’m beginning to forget the wonders I once witnessed so many years ago. I keep moving forward, and am now preparing to enter Law School so that I may continue to do something meaningful with my life. If participating in your trial could return me to the world I once knew, I would appreciate the opportunity to do so.

    Ever travelling upon the level…

  24. Greg Pearce says:

    Dr.Klassen.Hello my name Is Greg Pearce and my son Nathan has rp due to bardet biedl syndrome we live in fresno ca and I would love to get more info of your up coming study.Nathan is 14 and my daughter is 15 months and also has bbs.there defect is on the bbs1 gene.I don’t know if kids are allowed in your study or not but it would be a true blessing if they are.Im just a dad doing whatever I can to help my kids I tell my son to never give up that god will come through.i see god working through you and fellow researchers like you,may god bless all of your hardwork and thanks for all you do.

  25. Elisangela Vinagre says:

    Hi,
    I have a nephew that since he was born he had vision problems, and now he is 34 years old with just almost with no vision at all. As i was reading about your study i would like to know more about it if anyone can get back to me. Thank you
    Elisangela Vinagre

    • EyeOnTheCure says:

      Thanks for your comment Elisangela. Are you interested in being a volunteer for a clinical trial study?

      If so, we would recommend that you visit http://www.ClinicalTrials.gov. We fund many clinical trials but do not operate the studies ourselves and so reaching out them directly may be the best way for you to find out more about where they are happening and if participating is an option.

      On twww.ClinicalTrials.gov, which is maintained by the National Health Institute, you are able to search for clinical trials by searching based on your disease. Each clinical trial listing will tell you more about what the study is about and how you can contact them to see if they are recruiting and what the participant criteria may be.

      We hope this information is helpful and encourage you to contact us for additional help at info@fightblindness.org for further information if needed.

  26. Lauren says:

    My sister and I both have RP and would be interested and participating in the study. Please let us know when it is approved and what we need to do to enroll. Thank you.
    Lauren

  27. Vinay G says:

    I just came across this article. I have been regularly keeping up with FFB, but somehow missed this article. I have RP for quite some time now and am interested in participating in your clinical trials, if I qualify. Please include me and let me know. Thank you and God Bless!

    – Vinay

  28. Talita Allison says:

    My sister(48 yrs old) and my brother (53 yrs old)both have RP. They are both interested in participating in Dr. Klassen’s RP clinical trail. Please contact me at the above email address. Thank You, Talita

  29. soma patnaik says:

    thanks for ur research work.let me know if can transplant my retina.i have rp.

  30. Grace says:

    Im so truly grateful for this research! Im 37 diagnosed with RP over 10 years ago.
    Loosing my eyesight gradually.
    Would like more information.
    Thank you for working so hard to find a cure to our eyes!

  31. Aleida Neira says:

    Hello Dr Klassen
    My three daughters 26, 22, 22 have RA, and very high myopia and astigmatism, we are very interest in the study.

  32. vicky says:

    hello, my name is Vicky, first of all, i want to thank Dr. Klassen and all of the other researchers that has dedicated there life to find a cure for blindness. I truly believe that god is working through you all. I am 51 years old and I have RP. unfortunately, RP has effected many of my family members, at least 18 or so family members. my son mother, brother, nieces, grandparents, two aunts, an uncle, and many, many cousins have struggled with the effects of R.P. I have ALWAYS BELIEVED that researchers would find a cure for R.P. I want to know more about this clinical trial for R.P. . I would love to be a part of the research that would possibly help so many of my family members to have a better life . Pease contact me concerning this trial study. THANK YOU SO MUCH FOR THIS HOPE!!

    • Paul H. says:

      Hi
      First thank you for all your work.

      My Daughter has RP and is down to circa 10 degrees in both her eyes. She tries not to let it effect what she does .

      We live in the UK and attend Morefields yearly. My wife / her mother is a GP.

      Please advise if it is possible to become involved with the trial.

      Many thanks and best of luck!

      Paul

  33. Ripen says:

    Hi Doctor.

    If you could succeed, you will be a god to many unfortunates like us. Just few days back my daughter was diagnosed with USHF1, which may lead to RP. She is noraml now and we donot know, how progressive it would be in future. Will be waiting for your announcement.

    All the best.

  34. Vijay Sethi says:

    Dear Dr. Klassen ,You are doing wonderful work for millions of people suffering from RP. I am from India, near New Delhi. My wife and her three siblings are suffering from RP and I am not sure about my children eyes condition who are ten and six years old. My wife is 39 years old and she is suffering from RP from last ten years. Her vision is getting deteriorated very rapidly in last two years. Can she be part of your clinical trial that I do not know, but surely if it is possible, we would like to part of it.

  35. Heather says:

    I am very interested in your trial, I suffer from severe RP and would be very interested in participating.

  36. Lynn Lyons says:

    Please send me information on how I can get involved in a clinical trial. I am quickly losing my eyesight to retinitis pigmintosa and would do anything to stop its progression. I am fifty four years old and have so much more I want to see. God bless you for your work in this area. I have had to watch my Dad lose his sight to this horrible disease and I recently found out that my son has it as well. My heart is broken for both. Please consider me as a canidate for any clinical trial you may have going on now or in the future. Thank you Dr. Klassen for your dedication to this disease.

    • EyeOnTheCure says:

      Lynn, we would recommend that you visit http://www.ClinicalTrials.gov. We fund many clinical trials but do not operate the studies ourselves and so reaching out them directly may be the best way for you to find out more about where they are happening and if participating is an option.

      On twww.ClinicalTrials.gov, which is maintained by the National Health Institute, you are able to search for clinical trials by searching based on your disease. Each clinical trial listing will tell you more about what the study is about and how you can contact them to see if they are recruiting and what the participant criteria may be.

      We hope this information is helpful and encourage you to contact us for additional help at info@fightblindness.org for further information if needed.

  37. Jemond Smith says:

    Hi, my son was diagnosed with RP at 5 years old and is now 7. His uncle (his mothers brother) was also diagnosed with this condition at birth and is now 24 years old. It wasn’t until my son was diagnosed that we found out this is a condition that is genetically inherited, however we now have two sons. The youngest is 3 years old and we have not had him checked to see if he has RP. Our oldest son is currently getting checked annually by a specialist who’s a part of Baylor Medical Center and is on a board primarily focused on this condition.

    Please advise if there’s something we can do to have our son participate in your clinical study.

    Thanks for your dedication to find a cure for this condition!

    • EyeOnTheCure says:

      Jemond, we would recommend that you visit http://www.ClinicalTrials.gov. We fund many clinical trials but do not operate the studies ourselves and so reaching out them directly may be the best way for you to find out more about where they are happening and if participating is an option.

      On twww.ClinicalTrials.gov, which is maintained by the National Health Institute, you are able to search for clinical trials by searching based on your disease. Each clinical trial listing will tell you more about what the study is about and how you can contact them to see if they are recruiting and what the participant criteria may be.

      We hope this information is helpful and encourage you to contact us for additional help at info@fightblindness.org for further information if needed.

  38. Rubi says:

    My 36 year old husband and
    father-in-law both suffer from RP . My husband was diagnosed at a very young age and would want to be part this clinical trial. Please inform us with what to do..
    Thank you for your extensive dedication to finding a cure for RP.

  39. mahtab says:

    Hi
    i am 26 years old. i have retinitis pigmentosa. my peripheral vision has been destroyed. i have a central vision. Im suffering from this disease. i sent my medical reports for you.
    Thank you for your extensive dedication to finding a cure for RP.

  40. K.Prakash Rao says:

    Hi,the outcome is quite thrilling.Hats up to u.My son is having low vision due to retinal defect with high myopia.The news has kindled a ray of hope.Let the almighty help u in achieving the goal so that crores of people can see the wold.
    Ready to participate in ur noble work

  41. Michael says:

    Fantastic to see such progress in the world of RP.

    I’d love to find out more and also learn what I can be doing today to best position myself in the future for an appropriate trial.

    I have RP, currently being tested for Ushers Syndrome, and am based in New York but can get to London easily. Whilst regaining pheriphal vision would be amazing, just restoring my night vision would be life changing in itself.

    Would also love to learn more on how I can help.

    Thanks for your time and keep up the great work!
    Michael. M

    • EyeOnTheCure says:

      Hi Michael,

      Thank you for your kind comments. You should first try to obtain a molecular diagnosis to identify which of the 13 Usher Syndrome genes are mutated. For information on genetic testing please see link to an excellent information booklet on genetic testing: http://www.blindness.org/foundation-publications-inheritance-and-genetic-testing
      To increase your chances of getting into a clinical trial, you should consider enrolling in “My Retina Tracker”. My Retina Tracker is a free on-line registry provided by the Foundation Fighting Blindness as part of its mission to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome and the entire spectrum of inherited retinal degenerative diseases.

      My Retina Tracker is designed with state-of-the-art database technology to protect your privacy. Data in the Registry is only accessible to the participants, the Foundation Registry staff and appropriately qualified researchers who have applied to the Foundation, through a rigorous scientific review process, for access to the data for research or to help accelerate clinical trial enrollments. For more information, see the link: https://www.myretinatracker.org/

  42. Santiago Rivoir says:

    My father was diagnosed with RP almost 50 years ago, rate now his vision is very limited, what do i need to do to enroll on this clinical trial.
    Thanks for all you are doing!!!

    • EyeOnTheCure says:

      You should have your father contact Dr. Klassen at:

      Henry Klassen, MD, PhD
      phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  43. God bless and god speed to you and your research team.

    • k kahui says:

      Hi Lori :-) It’s Karen. Dr. Klassen asked me to reply to these messages (we’re a little slow). I don’t need to send you any contact info for me since you already have it, but wanted you to know we had seen this. Take care, Karen

  44. yasir saleem says:

    hy there> I read your article and am interested to be a part of your study research on RP. I am also having RP and would highly apriciate you to consider me in the clinical treatment.
    thanks alot

  45. Felix Cruz says:

    Dear Dr. Klassen, Sept. 11, 2014

    I just read your article about your coming clinical experiment on patients with RP. My wife, Lourdes, is legally blind due to RP. We are very excited and hopeful and we thank God for what you and your colleagues are doing. Please contact us on this email as soon as your clinical experiment is FDA approved. We would also like some more information and how to be part of your clinical research.

    Thank you and God bless. Felix

    • EyeOnTheCure says:

      Hi Felix,

      If your wife is interested in participating in Dr. Klassen’s stem cell trial, she should contact Dr. Klassen. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

    • EyeOnTheCure says:

      Dear Felix,

      If your wife is interested in participating in Dr. Klassen’s clinical trial, she should contact him at:
      Henry Klassen, MD, PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  46. Bo Nguyen says:

    Hi,

    My first cousin suffer from this RP disease for a long time. She would like to know more information and how to be part of your clinical research. Please contact us as soon as FDA approved. Thanks

    Bo

  47. john Beavers says:

    My wife and I pray that you will find this cure that you are looking for.
    We have three children with RP., so we are very interested. we are being treated at Iowa city by Dr. Stone , who is very good to us but seems to be behind your thinking. I”m sure yu will have no shortage of volunteers but we are available if you need volunteers from different parts.of the USA

    • EyeOnTheCure says:

      Dear John, Glad to hear your children are being evaluated by Dr. Stone. He is one of the best RD retinal specialists in the world. If you can identify the gene mutation, there may be chance they could benefit from one of the gene therapy trials that is currently taking place. Our thoughts and prayers are with you!

  48. Jeremy Bing says:

    Thank You for your hard work on trying to defeat RP!! You give us RP patients something to look forward to I am losing vision in my right eye now my left is mostly gone I hope to see you soon Dr!!

    • k kahui says:

      Hi Jeremy – we know you’re already on the list of candidates for Dr. Klassen’s consideration, just wanted to let you know we had seen your post.

      Please take care,
      Karen

  49. Jay says:

    I’ve had rp for over 30 yrs. I’m 43 now and have a twin that has it too. My central is 20/25 and my visual field is 5%. I just went to my opthamologist and he told me ucsf with Jackie duncan is recruiting for the clinical trial drug that stops the rod/cones from dying. I would like to be in your clinical trial. I didn’t qualify for the one with duncan because my retina pictures showed slight swellen in the retina which disqualified me from her study.

  50. Maile says:

    Where do I sign? This is debilitating and needs a cure. The gene my RP comes from also caused a neurological disease that took my son’s life (Leigh’s Disease). I’ve been through enough. I want my life back

  51. Lyndol W. Hollingsworth says:

    I have been dealing with RP for more than 30 years. Although I have been able to slow it down by eating a healthy diet and taking supplements, I would love to get back some of my lost vision. I would be honored to be a patient in your upcoming clinical trial.

  52. Kelly Hogan says:

    My name is Kelly and I am 50yrs old with RP and less than 10 degrees visual field. My mother has RP as well and is completely blind. I am very interested in your clinical trial. I am not looking for a miracle to restore all my lost sight but I am hoping to save the sight I have.
    Thank you for all work.
    Kelly Hogan

  53. Jamie Voss says:

    I have RP and it is getting worse – I was diagnosed last year. I am 48 and have never been able to see in the dark. Finally our hometown eye Dr saw this in my exam. I have been examined at U of M in Michigan, and they all say “sorry, there is nothing that can be done.” My husband has Huntington’s Disease and is going to need me and I’m worried I won’t be able to help him. Please if there is room in your study, could you contact me? Thank you!!

    • EyeOnTheCure says:

      Dear Jamie,

      There are three main types of RP: recessive, dominant and X-linked. If you are not sure, you should ask your ophthalmologist which inheritance form of RP you have. Please see the following web link to download a PDF document containing information on inheritance:

      http://www.blindness.org/sites/default/files/inheritance_of_retinal_degeneration_-_july_2012.compressed.pdf

      You may also want to try and identify your disease gene as there are already several clinical trials for RP that require a molecular (genetic) diagnosis to participate. Currently over 50 genes have been shown to be involved in RP. For information on genetic testing, please see the following web link to download a PDF document:

      http://www.blindness.org/sites/default/files/genetic_testing_booklet_201311rev.pdf

      Finally you should also consider participating in FFB’s “My Retina Tracker”, a free registry that can help you find out about clinical trials that are recruiting for your specific disease. For more information on “My Retina Tracker” please see the following web link:
      https://www.myretinatracker.org/

      I hope you found this information useful. If you have additional questions or concerns, please feel free to contact me.

      Sincerely,

      Tim Schoen, Ph.D.
      Director, Constituent Communications
      Foundation Fighting Blindness

  54. Himashu Khetani says:

    Very interested to hear about this trial and also to thank you for all the commitment you’ve given to this cause. As an RP sufferer for many years, I’d be very interested in enrolling and would be pleased to get more info. Wishing you lots of success! Himashu

  55. Amjad Farouki says:

    Hello, I and my brother have RP when we were around 13 years old, Now I am 43 years and my brother is 44 years old. we are very interested in your study, please let us know how to participate int the study. wish you the best results. Thank you

    • EyeOnTheCure says:

      If you and your brother are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  56. mariadelCarmen Gutierrez says:

    Please, send me more information about the trial clinic my brother has RP for years and need help before he get completely blind..thanks!

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  57. Carrie-Ann Musselman says:

    Hello I am 42 retired nurse. I have advance RP
    With CME causing severe damage to my macula.
    I am very interested in your trials.

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  58. Brittany Washburn says:

    My husband is 39 & suffers from RP. He’s lost most of his vision, so much so that he’s not been able to drive among many other things for the past 6 years. We would love more information , and also to see if he might be a candidate for this trial. Thank you for your commitment to research!

    • EyeOnTheCure says:

      If your husband is interested in participating in Dr. Klassen’s stem cell trial, he should contact Dr. Klassen. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  59. Nathalie Lund says:

    We are a family with all 4 siblings having RP ;type USH2A , so Usher and my son was born deaf , no RP signs . We are under care of Prof.Bart Leroy-Gent Belgium and Dr. Byron Lam -Bascom Miami,FL and after genetic testing they have found our defective family gene
    That’s where we’re at for the moment. Of course was very interested in reading your article & learning more about your research and clinical trial
    My last name is also Lund ,it must be a good sign !

  60. Jane says:

    How do we enrol. We from South Africa

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  61. Carla Beck says:

    My mom, sisters and nieces all have RP, we would be very interested in being in your clinical trial

    • EyeOnTheCure says:

      If your family members are interested in participating in Dr. Klassen’s stem cell trial, they should contact Dr. Klassen. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  62. Hanifa says:

    Please please consider my family on you trail I have 3 sons suffering with this deadly R.P it’s been a very rough road I wish and pray all you wonderful sciencetes fine a break tru very very soon ! I pray dear god let it be soon !! Thank you and good luck to all you lovely people. I want to know what can I do to help with this program. Kind regards, Hanifa.

    • EyeOnTheCure says:

      If you are interested in having your sons participate in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  63. Guynella Key says:

    My soon to be husband was diagnosed when he was 15. He is now 34 and has already lost most of his perifial sight. Upon his last doctor visit they said his symptoms are progressing at a faster rate than normal snd that he may expect to have total loss by sge 45. Please let me know how he might join your study.

  64. Jim says:

    Dear Sir/Mdm,
    My elder daughter and Son have been diagnosed with RP. We will greatly appreciate it if you could let me know how to participate the trial.

    Thanks a lot.

    Regards

    • EyeOnTheCure says:

      The Foundation Fighting Blindness funds many clinical trials but does not manage the studies and so reaching out to them directly may be the best way for you to find out more about where they are happening and if participating is an option. The website: http://WWW.CLINICALTRIALS.GOV is maintained by the National Institutes of Health and contains a searchable list of clinical trials for most known diseases. Each clinical trial listing will provide you with information on what the study is about, the requirements for participating and contact information.

  65. Sam Patel says:

    My 19 year old Twin Son has RP and we would very much like to get more information regarding your clinical trials. Thank you,

    Sam

    • EyeOnTheCure says:

      If you are interested in having your sons participate in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

    • daniel morrissey says:

      Hi, my name is daniel morrissey and my mother has rp, she has lost most of her vision. i am one of her 4 children and ive been waiting for some kind of stem cell trial that i can get her into. We live in pittsburgh pa, id do anything f
      or my mother and for her to be happy. If theres any spots for your trial please let me know id do anything to get her there. This means the world to me thank you very much for your devotion to your work.

  66. Pranshu says:

    Please send me the information regarding your trials. My mom is having RP and I want to treat her asap

  67. Barbara J. Varnum M.S., L.P.C. says:

    Dear Dr. Klassen, Oct. 19, 2014

    My son Stephen is almost 16 yrs. old and he was diagnosed with x-linked RP when he was 6 yrs. old by Dr. Eliot Berson at Massachusetts General. Dr. Berson has also identified the gene defect in Stephen. Stephen has been examined by Dr. Stephen Tsang at Columbia University in NYC. My husband and I would deeply appreciate the opportunity to have Stephen involved in your stem cell clinical trial. Stephen is a great kid with a big heart and your research will change his life. We thank God for the goodness in your heart to dedicate your life to helping those who are afflicted with this disease. Thank you dearly, Barbara and Steve Varnum 860-228-8790.

    • EyeOnTheCure says:

      You will be happy to know that AGTC, a biotechnology company is developing a gene therapy treatment for XLRP. FYI, here is the link to AGTC’s website:
      http://www.agtc.com/

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  68. Carlene says:

    Greatly appreciate all your work and research in the
    study for RP! I was diagnosed with RP several years ago and my peripheral vision is diminishing quite
    rapidly limiting me to minimal driving with no nighttime driving as well as many lifestyle changes. Would be honored to be considered for your clinical
    study. Thank You!!

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  69. Dear Dr. Klassen,

    Please allow me to be a participate in the upcoming clinical trails for stem cell in RP. I have lost much of my vision to
    RP, my field of vision is narrow and foggy.
    I am depending on your success in hope of my vision being restored.

    Thanking you in advance,
    Tommy

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  70. Christine Hoenig says:

    This article gives me so much hope. My son & my brother both have RP. Unfortunately as of right now my son will never be able to drive. Had been taking my son to Dr Stone in Iowa City for 10+ years until this year when insurance denied authorization. Now my son sees an optometrist, who unfortunately, doesn’t know much about RP & we have lost our school liaison. I would love for my brother to one day be able to see again & for my son to be able to one day drive. Please consider both of them for this trial.

    Thank you for your hard work in your research!

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  71. Anne says:

    45 year old with 3 garls full of life, happy deaf American man in the banking industry really needs your help.

  72. Esther says:

    My husband is 58 with RP.. He discovered that he has RP when he was a teenager around 19 years old. Over the years, his vision has deteriorated. Hope you will consider him for your clinical trial. Thank you

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  73. alex rosario says:

    I’ve been suffering from Rp for 28 years I’m really grateful that you guys are in the midst of coming out with a clinical trial study and that my brother my two uncles And i are happy to participate in we are all willing to travel and stay for as long as you Need us thank you

  74. Deanna Pavlacka says:

    I work with many people who experience age-related eye conditions such as ARMD and RP, as well as having a daughter who lost vision to an idiopathic retinal disorder. I am interested in the outcome of your research and possible clinical trials specifically for a current RP client who is interested in participating in such a trial.

  75. Debra Thompson says:

    My husband Ricky has been diagnosed with R P he has lost side vision and night vision he is lea galley blind we have a limited income since he can no longer work we can not afford a specialist Please consider him for your clinical trials so we can get our life back been so depressed and don’t know which way to turn Thanks And bless u all for your hard work !!!

  76. Mary Anne Langbart says:

    Hi Dr Klassen,

    My husband is 49 years old. He was diagnosed with RP in 2001 & also has Glaucoma. In 2013 he was declared legally blind because his lack of peripheral vision. We have two children ages 11 & 14. And I try to be strong & hopeful that a cure would be found! Today my daughter said “all I want for Christmas is for Daddy’s eyes to get better!” I pray everyday that a cure will be found! Recent testing revealed that my husband has a syndrome know as NARP. We would love to be considered for your clinical tria! Please contact us & thank you for all of your efforts!

    Mary Anne

  77. Petra Lobo says:

    My husband is legally blind from RP – he has no vision in his left eye with 15% vision left in his right eye. We would be very interested in meeting with you’ll to see how we can help his condition.

    Thank you for all the research you’ll are doing

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

    • EyeOnTheCure says:

      Please see the response above with Dr. Klassen’s contact information.

  78. EyeOnTheCure says:

    Please see the response above with Dr. Klassen’s contact information.

  79. EyeOnTheCure says:

    If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen. Here is his contact information:
    Henry Klassen, MD.,PhD.
    Phone: (949) 824-0710
    Fax: (949) 824-9626
    Email: hklassen@uci.edu
    University of California, Irvine
    Sue and Bill Gross Hall – A CIRM Institute
    Stem Cell Research Center, 2nd floor, Room 2035
    845 Health Sciences Road
    Mail Code: 1705
    Irvine, CA 92697

  80. Swathi says:

    I really appreciate your dedication in this research. My mom is suffering from RP for last 40 years she is sixty years now. We are interested in participating in the clinical trial. Please let us know how to contact you and take part in it.

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  81. Karen Moe says:

    Dr Klassen,
    My husband is 55 years old and was diagnosed with RP at the age of 22. He has lost most of his vision and would like to partake in your upcoming study.
    Thank you for your consideration.

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  82. Andrew Estrada says:

    I have Retinitis Pigmentosa and have 5 degrees of vision in both eyes. But it’s weird that I can see both of my hands in the very corner of my eyes but have blind areas in the mid section on both eyes. I would be a good patient in your study. Having had Lazik surgery and having this issue.

  83. Diana says:

    my husband is suffering retinitis pigmentosa. He cannot see when it is dark. the doctors said there was no cure for him, but we never lose hope. we need you and I am grateful for your new discovery. please do help us.

    from philippines

  84. Daniel Ramirez says:

    My name is Daniel and would like more information about your recent research on RP. Please let me know about the trials. Thanks for doing this.

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  85. rachelle stevens says:

    Hi, I have a daughter that the doctors are saying that she has rp she is ten years old she very athletic she plays softball and basketball. My daughter says that it is geting harder to see at night and ay school its hard for her to see the print. I just hope that something comes out to help kids like my daughter, she had looked at me oneday and said mom I don’t want to go blind! I said I know babe it broke my Hart!:( so please keep doing what you are doing give these kids hope. P.s if kids able to do the treatment would love my daughter to do it! Thanks rachelle!

  86. Fiona says:

    Dr. Klassen. Thank you so much. We need you. Please? To see will give me life and hope.

  87. Jacqueline Tomlin says:

    I would be very interested in the process for becoming a part of the clinical trial. I have a friend that was an optometrist for 32 years, before he had to retire because of RP. He currently has very little vision. To have any part of his vision restored would be a blessing. Would he be a viable candidate for the trial.

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  88. Greg Bartzen says:

    I am a 54 y.o. swm in good health w/ no other physical issues afflicted with precipitously manifested RP, just entering macula affected regions & in progress about 6 years & am seeking any legitimate experimental & clinical trial treatment. My inheritance is a maternal one, with grandfather manifesting at age 40 & mother at age 60+. If you need a quality study participant, please contact me, as I am single, unattached, READY & willing to come on a moment’s notice…….

  89. Julie Moody says:

    Please reach out to me when this trial begins. My father has dry macular degeneration and has been told there is nothing that can be done. It sounds as though this is something that may work towards helping his condition. I know he would be interested in the trial.
    Thank you for your time.

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  90. Mukul Pathak says:

    Hi, thanks for your study. I am suffering from RP and would like to be a part of your study. once it is approved let me know if I can be a part of it.

    thanks
    Mukul

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  91. Ram says:

    Hi Please please let us know how can we be part of your trail, as my brother is suffering with this terrible disease, it’s very devastating to see him go through the suffering. Please I would beg you to take him for this trial. Please mail us more details of how long it might take and when will it be approved. Eagerly waiting for your response. Thank you for your effort, it will bring back life to so many of us.

  92. Brute Wolf MD says:

    I’m an ophthalmologist with a patient asking me to find out more about your study. I’m scrolling through months of comments, but I don’t see any from you. Nor have I yet found where I can get more information for enrolling my patients. Are you out there?

    Brute Wolf MD
    Tulsa, Oklahoma

    • EyeOnTheCure says:

      If your patients are interested in participating in Dr. Klassen’s stem cell trial, they should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu mailto:hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  93. Prakash Jha says:

    This clinical trial is a big hope for my auntie and her younger brother, they both are victims of RP. We have tried everything possible with no luck yet.

    Kindly consider our case for this clinical trial.

  94. Heather says:

    I get so hopeful when reading about these studies. As with a lot of the other people who posted- I am interested in learning about how to enroll in a clinical trial-

    Thank you for your work- It is life changing for so many people.
    Heather

  95. Esther C says:

    My husband is writing on my behalf as I can no longer see well enough to do so. I have had RP for many years and lost nearly all of my vision. I am a retired nurse, live nearby and would like very much to be considered for this clinical trial.

    Thank you.

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  96. JACKIE BANKS says:

    Dr. Klansmen,

    I pray daily for a cure for this disease. I am 50 years old and am very thankful and blessed for the vision I have, but it’s getting really hard. Please contact me when you start your trial. Thank you in advance.

    JB (Houston, TX)

  97. Stefan Kamieniecki says:

    My Mother is 90 and has already lost the vision in one eye and her vision is almost gone in the other. Could she be part of this study?

    • EyeOnTheCure says:

      If your mother is interested in participating in Dr. Klassen’s stem cell trial, she should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

    • k kahui says:

      Hi Stefan – we know we already have your mom on the list of candidates for Dr. Klassen’s consideration, just wanted to let you know we had seen your post.

      Please take care,
      Karen

  98. Patricia Myers says:

    My brother suffers from choroideremeia. I am a carrier, thanks you for all your hard word and research, Would be interested in signing up for the trials.

    Choroideremia is a rare inherited disorder that causes progressive loss of vision due to degeneration of the choroid and retina. For more information on choroideremia, please see the following link:
    http://www.blindness.org/eye-conditions/choroideremia

    Nightstar, a biotech company in the U.K is currently conducting a gene therapy trial for choroideremia. To read more about the trial, please see the following web link:
    http://www.blindness.org/foundation-news/uk-company-receives-16-million-advance-choroideremia-gene-therapy

    Choroideremia gene therapy trials are also being developed at the University of Alberta in Canada and University of Pennsylvania. To participate in any gene therapy trial, you must first positively identify the gene mutation. For more information on genetic testing, please see the following link:
    http://www.blindness.org/sites/default/files/pages/pdfs/Genetic%20Testing%20Booklet-Final-20141008_0.pdf

    You and your brother should also consider participating in FFB’s “My Retina Tracker”, a free registry that can help you find out about clinical trials that are recruiting for your specific disease. For more information on “My Retina Tracker” please see the following web link: https://www.myretinatracker.org/

  99. marta says:

    My 7year old son has Usher syndrome. We would live to find out more about the trial and how he can participate. Thank you for your amazing work!

    Marta and Roy

    Usher syndrome is the most common condition that affects both hearing and vision. For detailed information on Usher syndrome, please see the following web link: http://www.blindness.org/eye-conditions/usher-syndrome
    The Foundation Fighting Blindness is currently supporting a gene therapy trial for Usher 1B. For more information on this clinical trial, please see the following link: http://www.blindness.org/foundation-news/usher-syndrome-gene-therapy-study-begins-oregon
    To participate in any gene therapy trials, you must first positively identify the gene mutation. For more information on genetic testing, please see the following link:
    http://www.blindness.org/sites/default/files/pages/pdfs/Genetic%20Testing%20Booklet-Final-20141008_0.pdf

  100. Kathy says:

    Any clinical trials for the future for wet macular degeneration?

    Wet AMD accounts for about 10 percent of all cases of macular degeneration. Wet AMD is also called choroidal neovascularization (CNV), subretinal neovascularization, or exudative or disciform degeneration. In wet AMD, abnormal blood vessels grow beneath the macula. These vessels leak blood and fluid into the macula that damage photoreceptor cells. To read about FDA-authorized treatments for wet AMD, please see the following link: http://www.blindness.org/eye-conditions/macular-degeneration/what-is-macular-degeneration#available-treatments

    The government website: http://WWW.CLINICALTRIALS.GOV lists all of the “legitimate” clinical trials taking place. If you query in “wet AMD”, you will see approximately 67 trials that are recruiting patients for clinical trials. Here is the web link: https://clinicaltrials.gov/ct2/results?term=wet+amd&recr=Open&no_unk=Y

    You will need to look at each trial to see whether or not you fit the inclusion and exclusion criteria. Some trials pay for travel and some do not. Each trial should list a phone number where you can call for more information. I hope this helps.

  101. aboturki says:

    Dear Sir
    Im. Saudi Arabia , i have 2 children , a daughter at the age of 6 years and A son 4 years old , they are suffering from severe weakness in vision and semi-blindness in retina , the result of genetic analysis shows abnormality in GUCY2D LCA
    Dear Sir
    Is there a treatment, we are responsible about all the treatment expenses hopefully to receive your reply soon very thankful to you .
    wseem55@hotmail.com

  102. Gary Agard says:

    My mom has RP I would like more info on your research.Thanks

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  103. Joelene Andrew says:

    I cant thank you enough for fighting to find a cure for RP

    I am a 34 year old female who is a carrier and is also affected. Our RP is belived to be X-Linked recessive – and we have roughly 11 suffers within 4 generations with various stages of vision loss. The youngest being my 4 year old son who has a confirmed diagnoses of Rp and Kerotoconus
    We all live in New Zealand and would dearly love to volunteer for clinical trials in the hope to aid in the fight for a cure. Unfortunately our country is not involved in the research of this disease. In fact, our overall care is quite dissapointing with genetic testing only just now takjing place
    If you would consider volunteers from abroad – please do not hesitate to make contact

  104. Johnnie Roberson says:

    Hi i’m Johnnie looking for clinical trail i lost sight in both my eyes i have rp trying to get on a list for trail study

  105. Kelly Newell says:

    My son, age 27 has been diagnosed with retinitis pigmentosa. His vision has been deteriorating for the past few years rather quickly. This past week he completely lost his central vision. Drs. are not giving him any hope. Hoping maybe you can. He’s so young to be going through this. Any help would be appreciated.
    Thanks.

  106. hanafi tan says:

    my niece has been blind for 4 years because of DM
    We are interested in participating in the clinical trial. Please let us know how to contact you and take part in it. –
    We live in Jakarta ,Indonesia

  107. Kalpana Abhyankar says:

    Dr Klassen, I have had RP for 20 yrs, three of my brothers do as well. I have lost 90% of my vision and can no longer participate in many career and family activities. I have been keeping abreast of the advancements over the years and would be interested in learning more about your study and research. Thank you, Kalpana

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  108. Nicholas Fields says:

    I have RP(retinitis pigmentosa) and slowly losing my vision. I have a hard time seeing at night because my rods are dying or gone therefore I do not drive a car because I cannot see at night. I have a hard time navigating when there is low light or it becomes dark. I am interested in your clinical trial for RP, can you send me your contact information.

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  109. Hello, my son has been diagnosed with RP since he was 4. He is now 17. He has some lose of night vision but is still able to drive as long as there are headlights. I was recently told that my 10 year daughter has the same diagnosis also. I can’t seem to get through a day without this crushing my heart and crying. I am so relieved to a point that this cure is on its way! It needs to come as soon as possible so all these people affected by such a cruel disease can be cured!
    I would love for my children to be able to be a part of this clinical trial. Is it for people who haven’t completely lost sight?
    Please let me know for this is so heavy on my heart. Thank you so much!

    • EyeOnTheCure says:

      If your son is interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  110. Brijendra says:

    sir,
    my son is 9 year old and suffering from retina detachment and glaucoma , his optic nerves are damameged of left eye and complete vision loss of left eye……doctors said it is coats deasese in mumbai india…will your reaseach will help out my son..kindly infrom

  111. Cathy Rumiche says:

    Hello, My son is 15 and was diagnosed with RP when he was 13. I’m very excited to read about the clinical trail and would love to have my son considered for it. Please contact me with more information. Thank you God bless you.

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  112. Jeanine says:

    Interested in the clinical trial, I have RP and am a very healthy 55 year old woman…can travel to wherever I need to be..let me know of any trials I may be able to partake in.

    • EyeOnTheCure says:

      You may be interested to know that there are three main types of RP: recessive, dominant and X-linked. If you are not sure, you should ask your doctor which inheritance form of RP you have. For information on inheritance types, please see the following web link to download a PDF document on inheritance:
      http://www.blindness.org/sites/default/files/inheritance_of_retinal_degeneration_-_july_2012.compressed.pdf
      You may also want to try and identify your disease gene as it is the most accurate diagnosis possible. Also, there are currently several clinical trials for RP that require a molecular (genetic) diagnosis to participate. For information on genetic testing, please see the following web link to download a PDF document:
      http://www.blindness.org/sites/default/files/genetic_testing_booklet_201311rev.pdf
      You should also consider participating in FFB’s “My Retina Tracker”, a free registry that can help you find out about clinical trials that are recruiting for your specific disease. For more information on “My Retina Tracker” please see the following web link:
      https://www.myretinatracker.org/
      Periodically, you should check the website: http://WWW.CLINICALTRIALS.GOV which is maintained by the National Institutes of Health and contains a searchable list of clinical trials for most known diseases. Each clinical trial listing will provide you with information on what the study is about, the requirements for participating and contact information.

  113. Sandy Thomas says:

    Hello; My husbands brother has RP and has lost total site in one of his eyes and now his site in his other eye is almost gone. He would love to partake in your upcoming trial and or trials to come. Please let me know if this could be possible.
    Thank you so much for what you are doing to help with this terrible disease.

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  114. Anne Kusch MacKenzie says:

    Please let me be a part of your clinical trial. I am 58 years old. Have RP and am desperate to get a trial. Have been going to specialists since childhood. Please contact me. Thank you. Anne

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  115. Dennis schmucker says:

    I have RP and I’m 40 years old I would love to be part of this clinical trial

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  116. Christie says:

    My mother and one of her sisters have RP and would love to participate in your study.

    • Christie says:

      I believe your father Dr Klassen in Columbus Ohio did moms initial surgery. She absolutely adored him.

    • EyeOnTheCure says:

      If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  117. Judy Crates says:

    It looks like you have a long list of interested people. My daughter, 40 years old, could also be a candidate.

    Judy Crates

  118. Casey George says:

    Thank you Doctors, so much.
    I am 17 and have grown up with a mother that was diagnosed with RP when she was 7. Her stage of RP was more advanced than it should have been for her age, she slowly lost her vision and by the time she met my father and had my younger brother and I she could not see. She now has cataracts as well. She can not differentiate colors from each other any more and can rarely tell if the lights are on or off. The fact that someone who is able to see and have what ever he wants would choose to try and help other people achieve that ability to see is outstanding and brings me to tears almost. Thank You very much. and good luck with your research and your findings! I would love to sign my mother up for a trial but she does not know about being part of that research. It makes her feel like we think less of her. Which is more common in most RP patients. I know coming from a 17 year old you think i don’t know what im talking about but i cant stress this enough, if you have a young child, or teenager who has RP talk to them so it doesn’t affect them, mentally or emotionally as they get older. Help them become independent. If you need any advice my mother is great at that.

    This goes for anyone who has RP or knows someone who does… Most people who have RP are self-conscious about it, in the past few years i have tried to raise money and reinforce that they are not alone and i have tried countless times to bring awareness to people around us. People who do not have RP think that just because you are loosing your vision you should be treated differently. NO. that is not the case. Yes, help them if you see then straying off the side walk, or about to bump in to an object. but do not treat them like animals.

  119. Andrea shoemaker says:

    Thank you for your dedication to this disease. I have Retinitis Pigmentosa along with my father, uncle and two sisters. We will be following your progress and praying for a treatment in the near future.

    Andrea Shoemaker

  120. Sheldon says:

    Thank you very much on your research and I would like to know more about the trails i have a dad who had RP all his life and there be times i wish i can make his eye sight better but unfortunately it doesn’t work like that and i would like to know more on your research and my heart and blessings go out to all of the RP patients and everyone who commeted on this page GOD BLESS YOU ALL and thank you

    • EyeOnTheCure says:

      If your dad is interested in participating in Dr. Klassen’s stem cell trial, he should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  121. Isabel Smith says:

    My father has RP I and would like more information relative to the clinical trial

  122. Shelley Martn says:

    I was diagnosed at 16. Now 29 and my eyes sight has becomeich less than what it was 15 years ago with RP. It poses as a daily frustration, many awkward moments and sometimes makes question my safety as far as driving is concerned. I’ve live with RP for so long now, that I have gotten used to checking and double checking while driving, keeping things out the floor/off the edge of counters etc… Shaking hands with people is the most frustrating thing. I have to stand back a few extra inches to be able to take more in of the action going on in front of me. Most of my family on my mother’s side has RP. I was the younger than anyone else in my family when they found mine. I’m am extremely interested and willing to be a part of this research. Please reply.

    Shelley L Martin

    • EyeOnTheCure says:

      You may also want to try and identify your disease gene as there are currently several gene therapy trials for RP that require a molecular (genetic) diagnosis to participate. For information on genetic testing, please see the following web link to download a PDF document: http://www.blindness.org/sites/default/files/genetic_testing_booklet_201311rev.pdf
      You should also consider participating in FFB’s “My Retina Tracker”, a free registry that can help you find out about clinical trials that are recruiting for your specific disease. For more information on “My Retina Tracker” please see the following web link: https://www.myretinatracker.org/
      If you are interested in participating in Dr. Klassen’s trial, please contact him directly.
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu

  123. Lorena Mass says:

    Hello, My brother ( Edwin Mass) was diagnosed with RP when he was 15 years old. Now he is 31 and my family have tried everything to help him. We have taken him to Cuba, Canada and UW hospital in Madison, WI. He lives in Peru, he graduated from school got a bachelor and a master degree. He gives motivational conferences to blind people as well. I kindly ask you to include him in your trial and if that is not possible keep us on the loop with the updates on your research and treatment please!
    God bless you

    Lorena D Mass
    lomassch@gmail.com

    • EyeOnTheCure says:

      If your brother is interested in participating in Dr. Klassen’s stem cell trial, he should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  124. Shelley velez says:

    Hi. My son was Diagnosed at age 17 with RP. Unfortunately it is progressing at a rapid pace. He is color being, has no peripheral vision and cannot see in the dark. He seems to be in denial and has purchased a car though I’m not sure if he will be able to drive it ever. We are very interested in participating in the trial you are conducting if there is any room left. Any advice, information, and suggestions are also welcome. Thank you and God Bless.

    • EyeOnTheCure says:

      If your son is interested in participating in Dr. Klassen’s stem cell trial, he should contact Dr. Klassen directly. Here is his contact information:
      Henry Klassen, MD.,PhD.
      Phone: (949) 824-0710
      Fax: (949) 824-9626
      Email: hklassen@uci.edu mailto:hklassen@uci.edu
      University of California, Irvine
      Sue and Bill Gross Hall – A CIRM Institute
      Stem Cell Research Center, 2nd floor, Room 2035
      845 Health Sciences Road
      Mail Code: 1705
      Irvine, CA 92697

  125. morgan penn says:

    I served 4 years in the U.S. Marine Corps and was discharged after being diagnosed with RP. This was my chosen career, its what I loved doing and the only thing I have ever been good at. If this trial has the potential to help me get back to doing what im good at then please sign me up. I dont have anything else left to lose. (besides my sight)

    • k kahui says:

      I am replying to your post regarding Dr. Henry Klassen’s upcoming clinical trial for the treatment of retinitis pigmentosa. We are compiling a list of names and some basic information from people like yourself who may wish to be considered for inclusion in our clinical trials.

      The trial will commence slowly, on a small scale in the Southern California area, however, our hope is to eventually grow theses studies to include additional locations and increased numbers of participants.

      If you remain interested in the study, please answer the questions below and send the reply kkahui@uci.edu.

      Many thanks,
      Karen Kahui
      Admin Assistant to Dr. Henry Klassen
      University of California, Irvine
      kkahui@uci.edu

      PATIENT CONTACT INFORMATION

      Patient’s name:
      Patient’s email:
      Patient’s telephone:
      Location (city/state/country):
      Name of alternate contact person:
      Contact’s email:
      Contact’s phone:
      Contact’s location (city/state/country):

      BASIC MEDICAL INFORMATION

      What is your date of birth:
      What is your diagnosis (e.g., RP, Usher, AMD, etc.):
      What is your current visual acuity? (Pls estimate if not known):
      What is your current visual field? (Pls estimate if not known):
      Have you ever had or do you currently have Macular Edema?
      Are you legally blind?
      If legally blind, in what year were you declared so?
      Do you have any other eye problems or surgeries?
      Is there a family history of RP or eye problems?
      How is your hearing?
      How is your overall health?
      Have you been diagnosed with any other diseases?

  126. Joe says:

    Thanks doctor and you team for your hardwork in finding RP cure.
    My wife is diagnosed with RP and we are so looking forward to waiting for any update and enroll in the clinical trial.

    • Karen kennedy says:

      Hello Dr Klassen I am so grateful to you for being so dedicated to helping people like myself with RP.I have never given up hope.I was told when I was diagnosed that there probably wouldn’t be a cure in my life time, but I had a feeling that wasn’t going to be the case,Bless you. I am 54 years old, have had to surrender my drivers license two years ago.My employer of 28 years is using my not being able to drive anymore against me, my case is in arbitration I’ve gone to human rights,Lost income,living almost in poverty, I’m a single parent my 14 year old ADHD ODD son is refusing to go to school because he is afraid something might happen to me because of my eye sight.If you would allow my to participate in you trials you would succeed in turning mine and my two children’s life around.I could go back to work, my son would not have to worry about my eye sight and would go back to school,I would be able to help my daughter pay for collage. I would earn a good living again and be able to afford a better life for my kids and I. I would also be your biggest spokes person. So it would be a win,win for all of us.Just interjecting some humor in a life that has been turned upside down by RP. Please consider me for your trails I would be so very grateful to you. I work for an Airline in Canada travel isn’t a problem for me. I have 5% central vision left with spotty peripheral vision. I look forward to hearing from you. Sincerely Karen

      • EyeOnTheCure says:

        If you are interested in participating in Dr. Klassen’s stem cell trial, you should contact Dr. Klassen directly. Here is his contact information:
        Henry Klassen, MD.,PhD.
        Phone: (949) 824-0710
        Fax: (949) 824-9626
        Email: hklassen@uci.edu mailto:hklassen@uci.edu mailto:hklassen@uci.edu
        University of California, Irvine
        Sue and Bill Gross Hall – A CIRM Institute
        Stem Cell Research Center, 2nd floor, Room 2035
        845 Health Sciences Road
        Mail Code: 1705
        Irvine, CA 92697

  127. Margarita valdez says:

    Thank you and GOD BLESS you for your research. I have been blind for 3 years. I am looking forward to seeing my childen grow up. I would love to be part of your research and would love to volunteer knowing it would help people like myself to be normal. My eye doctor said stem cell is a fantasy and it could never be done, thank you for proving him wrong. I will keep my faith and keep praying for all our research, God bless you always.

  128. Judith Anderson says:

    My daughter was diagnosed with RP during her last year of high-school, she is now 35 and still functioning well but I have noticed she is tripping over things from time to time. We would absolutely like to know more about this clinical trial.
    I refuse to give up hope for finding a cure.
    Gratefully, Judith Anderson

  129. Patricia Masters says:

    Volunteering for the study! Diagnosed with RP at 35, now 54, have developed CME in right eye in the last year or so. Orange County, California resident.

    • EyeOnTheCure says:

      Dr. Klassen’s assistant, Karen Kahui is compiling a list of names with basic information from people who are interested in participating in the clinical trial.

      The trial will commence slowly, on a small scale in the Southern California area, however, they hope to expand the studies to include additional locations and increased numbers of participants.

      If you are interested in the study, please contact Karen by email at: kkahui@uci.edu mailto:kkahui@uci.edu mailto:kkahui@uci.edu.

  130. Yuki Takai says:

    Please let me know how my daughter can be a candidate for the clinical trial. She has been suffering from RP since she started walking. My prayers are with her and everyone who suffer from this condition.

    • EyeOnTheCure says:

      Dr. Klassen’s assistant, Karen Kahui is compiling a list of names with basic information from people who are interested in participating in the clinical trial.

      The trial will commence slowly, on a small scale in the Southern California area, however, they hope to expand the studies to include additional locations and increased numbers of participants.

      If you are interested in the study, please contact Karen by email at: kkahui@uci.edu mailto:kkahui@uci.edu.

    • Brandan LaBerg says:

      Hi yes my name is Brandan. I invented this business called military optical sunglasses also as known eye straight sunglasses for military recrutants and for health patients that have issues with their eyes or.have phsicallh lost control over their own eyes as i did in my past, but to this day they are straight and i have had people ask me about them in california and a buddy of mine in spokane washington needed a pair to keep.his.eyes from being hit as the military recrutants would over seas. I am from America and i know my business has its name out there in the world but i based it off the huminoligy of life and human physics along with how the brain works also known as i would call neurobiology and and I have tested them on myself as well and they have worked, my business is protected and is very stable. It has taken almost 6 to 7 years to complete and it is still undergoing understanding by others from what i know. I look at it as near and post furture non batery operatated sunglasses and eyeglasses that help keep your senses keen straight without the technical support of batteries or electical plug ins and without any electical suplies. I dont know how to put it except one way Artificial Iteligence know as a virtual telegraphing and a new virtual world outside the un understood world. I thought outside of the box while others thought inside the box or as some would put it we think around or outside the brain while i think inside the brain where all the action is with all my knowlege and smarts. It like looking inside the box and not understanding the corners that surround you. If you have anything to mention please let me know.

      Brandan LaBerg

  131. Roger Meredith says:

    I am 45 years old & have hereditary RP. I am also worried that my 21 year old daughter may also be showing signs of this condition. We would be very happy to take part in anything that may save our sight. Would also be interested in receiving any information available on this condition. Thank you for your time & may God bless you & grant you speed in finding a cure. Please feel free to contact us: 706-663-8979.

    • EyeOnTheCure says:

      You should know that there are three inherited types of RP: recessive, dominant and X-linked. If you are not sure which type you have, you should ask your ophthalmologist. For information on inheritance types, please see the following web link to download a PDF document on inheritance:
      http://www.blindness.org/sites/default/files/inheritance_of_retinal_degeneration_-_july_2012.compressed.pdf

      You may also want to try to identify the disease gene/mutation. A molecular diagnosis is the most accurate diagnosis possible. With the genetic information you can check the medical databases to see what, if any research is being done. You also may be able to qualify for gene therapy trials that are taking place. For information on genetic testing, please see the following web link to download a PDF document:
      http://www.blindness.org/sites/default/files/genetic_testing_booklet_201311rev.pdf

      Whether you identify your disease gene or not, you should consider participating in FFB’s “My Retina Tracker”, a free registry that can help you find out about clinical trials that are recruiting for your specific disease. For more information on “My Retina Tracker” please see the following web link:
      https://www.myretinatracker.org/

      It may also be helpful to periodically check the website: http://WWW.CLINICALTRIALS.GOV which is maintained by the National Institutes of Health and contains a searchable list of clinical trials for most known diseases. Each clinical trial listing will provide you with information on what the study is about, the requirements for participating and contact information.

      I hope you find this information helpful. Please let me know if there is anything else I can help you with.

  132. James Barton Fiebelkorn says:

    As article was posted in March 2014 with the lead in, “Dr. Klassen is about a year from launching clinical trial for stem cell treatment…” Kindly publish an update to this exiting new research.
    Thank you,
    J.B.Fiebelkorn
    Santiago, Chile

    • EyeOnTheCure says:

      Dr. Klassen’s assistant, Karen Kahui is compiling a list of names with basic information from people who are interested in participating in the clinical trial.

      The trial will commence slowly, on a small scale in the Southern California area, however, they hope to expand the studies to include additional locations and increased numbers of participants.

      If you are interested in the study, please contact Karen by email at: kkahui@uci.edu mailto:kkahui@uci.edu

  133. Mr Andrew Mather says:

    I am a 46 year old gent living and working in Southport, England, UK and I was diagnosed with RP six years ago. I am very keen to participate and any of your clinical trials in the UK.

    • EyeOnTheCure says:

      Dr. Klassen’s assistant, Karen Kahui is compiling a list of names with basic information from people who are interested in participating in the clinical trial.

      The trial will commence slowly, on a small scale in the Southern California area, however, they hope to expand the studies to include additional locations and increased numbers of participants.

      If you are interested in the study, please contact Karen by email at: kkahui@uci.edu mailto:kkahui@uci.edu mailto:kkahui@uci.edu mailto:kkahui@uci.edu

  134. ron says:

    Please send e mails on the research my wife has rp we have been waiting for years for this or any breakthrough on rp.we are living in phoenix az.Thank you

  135. Brijesh Jain says:

    Please let me know the progress of your study… Whether you able to start the study on humans … what are the results?

    My sister is suffering from RP … I am looking for some treatment for her…

  136. John R. Coleman says:

    My husband and I are so thrilled to learn of this advancement in retinitis pigmentosa. He would certainly like to participate in the study as his RP is getting much worse gradually shutting out the world for him. He had to retire from teaching as he lost his ability to read with the help of magnifing glasses.

    We look forward from hearing from someone in your office and will continue to pray for success.
    Thanks,
    Gwen Coleman
    615/662-7681
    gwen13coleman@gmail.com

  137. Anthony Glass says:

    Hi, my 23 year old daughter was diagnosed with RP about 3 years ago. Her eyes are degenerating rapidly. Unfortunately RP specialists are non existent in South Africa. Anyway she can become part of your trial? Please advise, we have USA visas and could travel with in 7 days. Thanks in advance. Anthony Glass, Johannesburg, South Africa

    • EyeOnTheCure says:

      There are three inherited forms of RP: recessive, dominant and X-linked. If you are not sure which type your daughter has, you should ask your ophthalmologist. For information on inheritance types, please see the following web link to download a PDF document on inheritance:
      http://www.blindness.org/sites/default/files/inheritance_of_retinal_degeneration_-_july_2012.compressed.pdf
      Your daughter may want to try and identify her disease gene/mutation. A molecular diagnosis is the most accurate diagnosis possible. With the genetic information you can check the medical databases to see what, if any research is being done. Your daughter may also be able to qualify for gene therapy trials that are taking place. For information on genetic testing, please see the following web link to download a PDF document:
      http://www.blindness.org/sites/default/files/genetic_testing_booklet_201311rev.pdf
      Whether your daughter identifies her disease gene or not, she should consider participating in FFB’s “My Retina Tracker”, a free registry that can help you find out about clinical trials that are recruiting for your specific disease. For more information on “My Retina Tracker” please see the following web link:
      https://www.myretinatracker.org/

      It may also be helpful to periodically check the website: http://WWW.CLINICALTRIALS.GOV which is maintained by the National Institutes of Health and contains a searchable list of clinical trials for most known diseases. Each clinical trial listing will provide you with information on what the study is about, the requirements for participating and contact information.

  138. Darla eaton says:

    I am interested in this study for my mother. How can I obtain more information

    • EyeOnTheCure says:

      Dr. Klassen’s assistant, Karen Kahui is compiling a list of names with basic information from people who are interested in participating in the clinical trial.

      The trial will commence slowly, on a small scale in the Southern California area, however, they hope to expand the studies to include additional locations and increased numbers of participants.

      If you are interested in the study, please contact Karen by email at: kkahui@uci.edu mailto:kkahui@uci.edu mailto:kkahui@uci.edu

  139. Helper says:

    Another UK ReNeuron company also put request for Trial test of Stem therapy … please pray that all these get successful and your love one can see this beautiful world.Ameen

    ReNeuron got the approval
    http://www.rpfightingblindness.org.uk/newsevent.php?tln=newsevents&newseventid=432

  140. ahmad says:

    I and My brother have severe RP we would like to enroll in the trial I am 45 years old and I am welling to travel . I live in florida

    • EyeOnTheCure says:

      Dr. Klassen’s assistant, Karen Kahui is compiling a list of names with basic information from people who are interested in participating in the clinical trial.

      The trial will commence slowly, on a small scale in the Southern California area, however, they hope to expand the studies to include additional locations and increased numbers of participants.

      If you are interested in the study, please contact Karen by email at: kkahui@uci.edu mailto:kkahui@uci.edu mailto:kkahui@uci.edu mailto:kkahui@uci.edu

  141. Chris Millner says:

    Hello,

    Your study sounds very promising, and I would like to be part of the study. I am a 55 year old male, who was diagnosed with RP back in High School at Northwestern University in Illinois. I inherited the disease from my mother’s side of the family. My grandfather was blind, my aunt has severe issues, and several of my cousins also have vision issues. I am the sole provider for my family, and within the six months, I have stopped all driving and the vision in my right eye is impaired enog=ugh that I cannot see to read out of it. I hope my story will encourage you and your team to have me be part of your study. Sincerely, Chris

    • EyeOnTheCure says:

      Dr. Klassen’s assistant, Karen Kahui is compiling a list of names with basic information from people who are interested in participating in the clinical trial.
      The trial will commence slowly, on a small scale in the Southern California area, however, they hope to expand the studies to include additional locations and increased numbers of participants.
      If you are interested in the study, please contact Karen by email at: kkahui@uci.edu

  142. Sairam says:

    Hi Dr.Klassen,
    What is the latest update on the human trial after May 7th 2015? Bit excited to hear some updates?

    Sairam

    • EyeOnTheCure says:

      Dr. Klassen’s assistant, Karen Kahui is compiling a list of names with basic information from people who are interested in participating in the clinical trial.
      The trial will commence slowly, on a small scale in the Southern California area, however, they hope to expand the studies to include additional locations and increased numbers of participants.
      If you are interested in the study, please contact Karen by email at: kkahui@uci.edu

  143. Sonya Gregory says:

    Thank you for all your hard work. I have rp I would love to be able to see clearly. Please let me know if you can help me. Thank you

    • EyeOnTheCure says:

      Dr. Klassen’s assistant, Karen Kahui is compiling a list of names with basic information from people who are interested in participating in the clinical trial.
      The trial will commence slowly, on a small scale in the Southern California area, however, they hope to expand the studies to include additional locations and increased numbers of participants.
      If you are interested in the study, please contact Karen by email at: kkahui@uci.edu mailto:kkahui@uci.edu

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