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Two New Videos Highlight FFB’s Vital Role in Retinal Research

Dr. Boye in her lab, conducting a tourAs everyone knows, there is never just one side to a story. That’s certainly true in the case of Dr. Shannon Boye, whose FFB-funded research is the subject of not just one but two new Foundation videos.

In “Harnessing Nature to Save Vision,” Dr. Boye, an assistant professor in the University of Florida’s ophthalmology department, does a bang-up job of describing one project in particular. Noting that her lab’s research team is focused on developing vision-saving gene therapies, she compares a new delivery system it’s working on to “newer, stronger taxi cabs” delivering cargo designed to simplify treatments and combat multiple diseases.

And this work, she makes clear, has been facilitated by funding and support from the Foundation Fighting Blindness.

Driving Research, Saving Vision” takes her story a step further, by intertwining it with the challenges faced by Brendon Cavainolo, a Florida teenager who’s lost a good deal of his eyesight to a disease known as X-linked retinoschisis. In the video, Brendan and his mother, Lisa, visit Dr. Boye’s lab, where they learn about the promising work she’s doing—and how, one day, it may very well benefit Brendon directly.

In tandem, these videos demonstrate FFB’s commitment to two groups of people—those affected by vision-robbing retinal diseases, of which there are tens of millions worldwide, and the hundreds of investigators it has funded for 45 years to help bring an end to blindness caused by these diseases.

Dr. Boye, in particular, is a recent recipient of FFB’s Board of Directors Award. She’s also a member of a new generation of retinal researchers whose work coincides with a pivotal moment, when a wave of clinical trials are underway, some of which are rendering sight-saving results.

But the researchers’ work is far from over, which is why FFB will be using these new videos to promote and raise funds for its work over the next year. As Brendon’s mom, Lisa, makes clear, “There’s so much research out there that’s actually meaningful.”

We couldn’t agree more.

Pictured, top: Dr. Shannon Boye, far right, shares her lab’s work with visitors Brendon Cavainolo and his mother, Lisa. 


6 Responses to 'Two New Videos Highlight FFB’s Vital Role in Retinal Research'

  1. Qkailash says:

    Iam from india and suffering from rp pl adv about treatt.

  2. JAN ABLE says:

    HAVING TRIESCENSE AND AVASTIN INJECTIONS IN ONE EYE FOR BRANCH RETINAL VENOUS OCCLUSION. DIAGNOSED OVER A YEAR AGO BUT ARE SURE HAVE HAD TWO YRS OR MORE. MACULAR SWELLING CONTINUES AND SEVERAL OF THE INJECTIONS HAVE NOT GOTTEN IT DOWN AT ALL. VISION REMAINS 20/30 UNCORRECTED. SHOTS TERRIBLY PAINFUL. DOCTOR BRUISED MY EYE TERRIBLY LAST TIME. WHOLE EYE FULL OF HEMORRHAGE/BRUISE CURRENTLY. DON’T KNOW WHERE TO TURN. HE IS A RETINAL SPECIALIST WITH GOOD CREDENTIALS, BUT CAN’T COMMUNICATE WITH HIM. HE IS SECOND ONE I’VE TRIED. BOTH THE SAME – CAN’T COMMUNICATE AND THEY DON’T WANT QUESTIONS AND JUST PUSH INJECTIONS CONSTANTLY. NO MONEY TO COVER THESE EITHER. NOT OLD ENOUGH FOR MEDICARE. INSURANCE WITH HIGH DEDUCTIBLE. ANY OTHER IDEAS?? SO UPSETTING. ALSO FOUND A PIGMENT EPITHELIAL DETACHMENT IN OTHER EYE AND SOME DRUSEN. DR. DIDN’T REALLY WANT TO DISCUSS. NOW WORRIED ABOUT MACULAR DEGENERATION TOO BUT VISION 20/20 IN THAT EYE CURRENTLY. PLEASE HELP

  3. Leisa Corbin says:

    I have a sister that has MD and a friend that is blind from it, and my doctor told me I may have the beginning go it. What can I do to help get the funds for this . Is there any group or pharmacy that I can contact to help research?

  4. Guerda Louis says:

    I and two of my siblings have suffered with RP for more than 24 years. I was very young when diagnosed and feel hopeless every time I go see my doctor. Can you imagine three children in one family with no hope to recover? We would be thankful to be able to function like we should. Please voice out to help this drive to fund the research so people like myself, my older brother and my baby sister can benefit from it as well as Brendon.

  5. Raghavendra says:

    I am raghavendra from India suffering from retinitis pigmentosa (autosomal resisive due to conjunctiviti) if you need any clinical trials or researches the researchers can trial on me .

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