Listen to this page using ReadSpeaker

The Gift of Sight – Matched!

Your donation doubledIt’s holiday time, the giving season, when people not only buy gifts for family, friends and co-workers, but also donate to worthy causes—of which there are many. But, if you’ll permit me, I’d like to make a pitch for the Foundation Fighting Blindness (FFB), which happens to be offering a Holiday Board Match, meaning every donation is doubled.

This is an extraordinary time for FFB. After 44 years of being in the business of putting an end to vision-robbing retinal diseases, our work is coming to fruition.

You’ve heard of the “bionic retina”? By providing its developer with seed money, the Foundation helped ensure that the device—approved by the U.S. Food and Drug Administration (FDA)—would provide light for those whose lives had gone completely dark.

And in October, the company developing a gene therapy for LCA, one of the diseases we target, announced positive results in the final phase of a human study. If all goes well, that treatment could be approved by the FDA in 2016, thanks in large part to Foundation-funded pre-clinical and clinical studies.

And, right now, more than 20 clinical trials for treatments of other retinal diseases, affecting millions of people worldwide, are either up and running or soon will be—many of them, once again, thanks to research FFB has funded for decades.

This retinal-research momentum is unprecedented. Your gift will help ensure there’s no slow-down in the development of treatments for tens of millions of people affected by retinal diseases.

That’s why members of our Board of Directors have generously created the Holiday Board Match. All donations, no matter what the size, will be matched. If you give $10, it becomes $20; if you give $50, it becomes $100; and so on. And all of it feeds into the research pipeline—which, when you think of it, makes your gift to the Foundation a gift of sight for someone in the future.

I thank you for your time and consideration this busy holiday season. And on behalf of the Foundation, Happy Holidays!


3 Responses to 'The Gift of Sight – Matched!'

  1. Rudy Martinez says:

    I have a really great friend I can consider my Brother, we meet back in High School 20 yrs ago. He suffers from Rentinitis Pigmentosa, he has been so depressed these last couple of years because it has been getting worst where he cant see at times. He tells me there is no cure but I cant take no for an answer. I’m trying to reach out for anyone who can help us out, direct us in the right direction, please I ask for your help, I cant see my brother going thru this by himself. thank you so much for your time hope to hear from you, God BLess

  2. Junaid Akhtar says:

    My Daughter Faiza Junaid having this disease having problems in reading & writing.Please let me know if there is any treatment for my daughter,she is 18 years old.

    • Dr. Tim Schoen says:

      Dear Junaid, You should consider genetic testing to try and identify the mutant gene responsible for causing your daughter’s RP. If the gene is identified, you may be able to qualify for one of the gene therapy trials currently taking place. For information on genetic testing, please see the following web link to download a PDF document:
      http://www.blindness.org/sites/default/files/pages/pdfs/Genetic-Testing-Booklet-V5.2-20151023.pdf
      You should also consider enrolling your daughter in FFB’s “My Retina Tracker”, a free registry that can help with the identification of clinical trials that are recruiting. For more information on “My Retina Tracker” please see the following web link: https://www.myretinatracker.org/
      Finally, you may find it helpful to periodically check the website: http://WWW.CLINICALTRIALS.GOV which is maintained by the National Institutes of Health and contains a searchable list of clinical trials. Each listing provides information on what the study is about, the requirements for participating and contact information. Thank you for your support that is helping to accelerate the development of new safe and effective treatments for inherited retinal disease.

Leave a Reply

Your email address will not be published. Required fields are marked *

*