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Posts tagged rp

Up in the Air – Almost Getting Stranded at the Airport

Airplane flying out of O'HareBecause of vision loss caused by retinitis pigmentosa, I’m almost completely blind. That does not, however, stop me from traveling alone. I do have one fear, however—being stranded at the airport. It was only recently that it became a real possibility.
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A Renaissance Man with Vision

Louis PosenLouis Posen is one of the coolest guys on the planet. He’s president and CEO of Hopeless Records, a company he founded at the age of 21—despite the fact that he was losing eyesight to retinitis pigmentosa (RP). The 43-year-old is also a National Trustee of the Foundation Fighting Blindness. And he got into the music business by accident.

In high school, he was a punk-rock aficionado, buying records and going to every local concert he could. In film school, he came to appreciate the positive influence art, including music videos, had on people’s lives. But this was a time when many punk groups couldn’t afford to produce the high-quality videos to which many viewers were accustomed.
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“You Don’t Look Blind”

EyeCure - don't look blind 2 bPerhaps the biggest misconception about people affected by retinal diseases is that they see nothing at all. While some have, indeed, gone completely blind, most are in the process of losing their vision. And depending on the person, and the disease, this takes years or decades. In some cases, central vision goes first, in others, peripheral vision.
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What Everyone with a Retinal Disease Should Know about Vitamin A

blue eyeIf you think of your retinas as the engines that power your vision, then vitamin A is their fuel. Without vitamin A in our diets, we wouldn’t see.
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CME – What It Is, and Why People with Retinal Diseases Should Know About It

Dr. FishmanIn this Q&A, Gerald Fishman, M.D., a world-renowned clinical researcher and longstanding member of FFB’s Scientific Advisory Board, discusses cystoid macular edema (CME), a potentially damaging accumulation of fluid in the retina affecting up to 32 percent of people with retinitis pigmentosa (RP) and related conditions. It’s a complication that can make matters worse for retinas already fragile from degenerative disease. While diagnosis isn’t always straightforward, CME can be treated to minimize vision loss.
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A True Survivor — Q&A with Fred Scheer, a World War II Vet with RP

Fred Scheer, US ArmyWhen I first met Fred Scheer, I was impressed by his quiet, friendly demeanor. I had no clue, at the time, that he was a U.S. Army veteran who’d been deployed during the D-Day invasion, captured by the Germans and then sent to a labor camp, from which he managed to escape. What is also interesting is that Fred is Jewish and has retinitis pigmentosa (RP).
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Low-Hanging Fruit: Repurposing Drugs to Treat Retinal Diseases

Low-hanging fruitMany years ago, while picking apples with my uncle, he advised me to “pick the low-hanging fruit.” That way, he told me, you can fill your basket faster and not be as tired at the end of the day. I think the same can be said of drug repurposing—the process of evaluating a drug prescribed for one disease to see if it can safely and effectively treat another disease.
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Giving Thanks

The Foundation gives thanks to its supporters.How do you thank the tens of thousands of people who’ve contributed in so many ways this past year – volunteer work, donations, research advances, etc. – to help FFB eradicate retinal diseases? Aside from giving a general shout-out to those folks (you know who you are, including Eye on the Cure readers), we can offer highlights, a sampling, if you will, of the many achievements Foundation supporters have helped make happen this past year.
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All-Star Vision

When the Baltimore Orioles’ Adam Jones makes a great catch — a feat the Gold Glove centerfielder accomplishes on a regular basis — he isn’t thinking about his retinas. But in the five seconds it takes a baseball to leave an opponent’s bat and reach Jones’ glove, his retinas are processing an enormous amount of real-time visual information — continual changes in the contrast, velocity and trajectory of the ball as it rockets out of the infield, reaches high into the stadium lights (or the sun) and descends into the outfield.
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RP Gene Therapy Clinical Trial Update from ARVO

Drs. Nicola Ghazi (left) and Doug Vollrath. I am always pleased to hear reports on human studies for retinal diseases. And such is the case with a research poster I just reviewed at the Association for Research in Vision and Ophthalmology (ARVO) annual meeting. It described a new clinical trial underway for a potentially life-changing gene therapy for people with autosomal recessive retinitis pigmentosa (MERTK mutations) taking place at King Khaled Eye Specialist Hospital in Saudi Arabia.
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