Listen to this page using ReadSpeaker
Posts tagged rp

First AMD Patient Receives Argus II Bionic Retina

Ray Flynn wearing the Argus IIThere’s nothing more exciting than news about vision restoration for someone blind from a retinal disease. But a report coming from across the pond is especially compelling, because it’s about the first person with age-related macular degeneration (AMD) to receive the Argus II bionic retina.
Continue Reading…

One Thing That Scares You

Nicole Kear“Do one thing every day that scares you,” my 10-year-old son told me a few months ago. “That’s what Eleanor Roosevelt said.”

He recently studied the Roosevelts, and, it turns out, the Roosevelts had a lot to say about fear, most famously Franklin in his inaugural address: “The only thing we have to fear is fear itself.”
Continue Reading…

Sun and Funds: FFB’s Annual Summer Campaign

Summer Challenge web pageWe all know that Memorial Day is not, technically, the first day of summer. But seeing as we like to stretch summer out as much as possible, it only makes sense to kick it off… well… a few weeks early. The same premise is behind FFB’s Summer Challenge to End Blindness campaign, which began Memorial Day weekend and continues through the upcoming season.
Continue Reading…

ARVO 2015 Highlight: New Research Boosts Prospects for Saving Vision with RdCVF

Dr. SahelAn eye doctor could preserve meaningful vision in people with advanced retinitis pigmentosa (RP) by saving just five percent of their cones, the cells concentrated in the central retina enabling us to read, recognize colors and see in lighted conditions.
Continue Reading…

ARVO 2015 Highlight: A Cut-and-Paste Approach to Fixing Retinal-Disease Genes

gene editingI just returned from the annual meeting of the Association for Research in Vision and Ophthalmology (ARVO), the world’s largest eye-research conference, held this year in Denver. It attracted more than 11,000 scientists and physicians, including many of the 187 retinal researchers funded by the Foundation. The FFB science team and I worked feverishly to learn as much as possible about the latest news from the retinal-research front. It was truly exhilarating—albeit, at times, overwhelming.
Continue Reading…

Up in the Air – Almost Getting Stranded at the Airport

Airplane flying out of O'HareBecause of vision loss caused by retinitis pigmentosa, I’m almost completely blind. That does not, however, stop me from traveling alone. I do have one fear, however—being stranded at the airport. It was only recently that it became a real possibility.
Continue Reading…

A Renaissance Man with Vision

Louis PosenLouis Posen is one of the coolest guys on the planet. He’s president and CEO of Hopeless Records, a company he founded at the age of 21—despite the fact that he was losing eyesight to retinitis pigmentosa (RP). The 43-year-old is also a National Trustee of the Foundation Fighting Blindness. And he got into the music business by accident.

In high school, he was a punk-rock aficionado, buying records and going to every local concert he could. In film school, he came to appreciate the positive influence art, including music videos, had on people’s lives. But this was a time when many punk groups couldn’t afford to produce the high-quality videos to which many viewers were accustomed.
Continue Reading…

“You Don’t Look Blind”

EyeCure - don't look blind 2 bPerhaps the biggest misconception about people affected by retinal diseases is that they see nothing at all. While some have, indeed, gone completely blind, most are in the process of losing their vision. And depending on the person, and the disease, this takes years or decades. In some cases, central vision goes first, in others, peripheral vision.
Continue Reading…

What Everyone with a Retinal Disease Should Know about Vitamin A

blue eyeIf you think of your retinas as the engines that power your vision, then vitamin A is their fuel. Without vitamin A in our diets, we wouldn’t see.
Continue Reading…

CME – What It Is, and Why People with Retinal Diseases Should Know About It

Dr. FishmanIn this Q&A, Gerald Fishman, M.D., a world-renowned clinical researcher and longstanding member of FFB’s Scientific Advisory Board, discusses cystoid macular edema (CME), a potentially damaging accumulation of fluid in the retina affecting up to 32 percent of people with retinitis pigmentosa (RP) and related conditions. It’s a complication that can make matters worse for retinas already fragile from degenerative disease. While diagnosis isn’t always straightforward, CME can be treated to minimize vision loss.
Continue Reading…