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Posts tagged retinitis pigmentosa

Rockin’ and Rollin’ for a Good Cause

Andy and Kim HilfigerWell, this is a first: the Foundation was mentioned, this week, in Rolling Stone magazine. Why? Because one of our fundraising dinner events, “Fashion Ball: Dining in the Dark,” brought together professionals from both the fashion and music industries at the The Plaza Hotel in New York City and raised more than $370,000.

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Newsflash: Blindness is Expensive

Image of colorful eyeThere’s a recent research paper from the Archives of Ophthalmology on the health care costs of retinitis pigmentosa (RP) that’s spurred lots of discussion around the FFB office. Led by Dr. Kevin Frick, of the Johns Hopkins Bloomberg School of Public Health in Baltimore, the study compared the annual health care costs of nearly 3,000 people with RP to 3,000 people without. The bottom line: People with RP had $7,317 more in annual health care expenditures.

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Israel Update: Genetic Discovery Highlighted at Retinal Research Conference

Tel Aviv, Israel

Tel Aviv, Israel

Now that I’m back from my trip to Israel, I wanted to offer a couple more posts about my visit, the first covering a fascinating research conference in Tel Aviv.
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The Importance of Stem Cells (a guest post from Dr. David Gamm)

Dr. David Gamm

Photograph by Andy Manis.

When I joined the University of Wisconsin (UW) in 2003, I saw stem cell research as having great potential to benefit patients with retinal degenerations. I also saw stem cells as a way to answer basic science questions about the retina and the conditions that affect it. As a scientist and a pediatric ophthalmologist, these goals were really important to me.
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Israel Update: Visits to the Western Wall and the Hadassah Medical Center

The Wailing Wall

The Wailing Wall, Israel

So, my prayers were answered. As I mentioned in my last post, my luggage did not arrive with me in Israel, but, as the airlines promised, it did a day later, so I haven’t had to keep wearing the same clothes. Thank goodness.
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A Big Step Toward Overcoming Usher Syndrome

Girl (5-7) saying 'I love you' in sign language, portraitImagine being born completely deaf or with profound hearing loss. Certainly, there are many challenges, but you find ways to navigate the hearing world. You learn sign language or get a cochlear implant. Through cultural and advocacy programs and education, you learn how to succeed in school, enjoy sports and social activities and plan for the future.

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The Retina Goes Bionic

Video Included
Bionic Eye GraphicRemember the 1970s TV show The Six Million Dollar Man, featuring Lee Majors as Col. Steve Austin? Also known as the “Bionic Man,” he had a number of bionic – electronic and/or mechanical – body parts, including one eye, which gave him super-human powers to fight evildoers and save pets, small children and damsels in distress from imminent peril.

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