Posts Tagged ‘retinitis pigmentosa’
Definitive diagnoses for inherited retinal diseases don’t always come easy, even for the patients of the most knowledgeable doctors. Comments posted to this blog over the past year are a testament to that fact. Many readers are understandably frustrated by a doctor’s inability to determine exactly what retinal condition is affecting them or loved ones.
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Ryan Lochte, I didn’t get a chance to meet. I did, however, get a picture taken with Michael J. Fox, who was very cordial but focused most of his attention—and rightly so—on a little girl with muscular dystrophy. Now, actor Steve Buscemi is a character and a half. I was there with Leah Bartos, who’s Mrs. New York, and because I’m Mrs. World, and the two of us were wearing crowns and sashes, he took a look at us and, before a photo was snapped, said, “Wow, let me get in between these two ladies.”
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Retina International Congress Features Reports on Latest Research Advances
This past weekend, I had the pleasure and the privilege of participating in the 17th International Congress of Retina International in Hamburg, Germany. Retina International is a volunteer association of 33 national groups for people with retinal degenerations. The Congress is the European equivalent of the Foundation’s VISIONS conference. With research presentations translated into several languages, I felt like I was at the United Nations. I myself presented (in English) an update and review of many of the clinical trials underway for retinal degenerative diseases.
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VISIONS 2012, the Foundation’s annual conference, taking place in Minneapolis, is only two weeks away. I am very much looking forward to all the science presentations, especially the closing session on Sunday, July 1 — not only because I will moderate, but because it will cover three promising clinical trials, as well the exciting prospect of someday combining therapies.
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