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Posts tagged Rebecca Alexander

VISIONS 2015, FFB’s National Conference — In Our Founding City!

skyline of BaltimoreIt was 44 years ago that a handful of Baltimore-area families—intent on wiping out the vision-robbing retinal diseases affecting their members—established the Foundation Fighting Blindness. They soon discovered how daunting that task would be, but also offered each other support and solace during a very dark time.
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Ready for the Spotlight: Rebecca Alexander Shares Her Story of Living with Usher Syndrome

Rebecca AlexanderFive years ago, when Rebecca Alexander appeared on The Today Show with her brother Peter, she already had quite a tale to share. Nearing 30, she was single, living in New York City and working as a full-time psychotherapist and part-time spinning instructor. She also had Usher syndrome, a disorder that causes both hearing and vision loss—and which she’d mostly kept under wraps.

After the show, “a literary agent asked about writing a book,” recalls Rebecca, whose parents, Terry and David, are national trustees of the Foundation Fighting Blindness (FFB). “And I thought, ‘I don’t know what to write about, or that anyone would care.’”
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