Alternative Blog Styles



Meet Dr. Steve Rose

Dr. Steve RoseSteve is highly respected for his expertise and tireless commitment to finding treatments and cures for vision-robbing retinal diseases.

Dr. Steve Rose 

Newsletter Sign Up

*  
*  
*  
*  


   Please leave this field empty

Posts Tagged ‘rare diseases’

Orphan Drugs Get Special Treatment

10Jan

Image of lab equipmentYou wouldn’t think that being called an “orphan” is a good thing. But for developers of treatments for rare diseases — including inherited retinal conditions — “orphan” status provides valuable benefits, such as tax incentives, access to special research grants and assistance with clinical trial design. The orphan designation also gives seven years of market exclusivity to the developer of a treatment.

Read more

Test tube bottles

Back in February, in a post noting Rare Disease Day, I mentioned how the Foundation’s research has applications that go beyond our purview, mainly because the retina is, in fact, neural tissue, or an extension of the brain. So some treatments we fund may someday help people with conditions unrelated to the eye.
Read more