Posts Tagged ‘rare diseases’
You wouldn’t think that being called an “orphan” is a good thing. But for developers of treatments for rare diseases — including inherited retinal conditions — “orphan” status provides valuable benefits, such as tax incentives, access to special research grants and assistance with clinical trial design. The orphan designation also gives seven years of market exclusivity to the developer of a treatment.







Drawing Parallels Between Retinal and Non-Retinal Diseases
Back in February, in a post noting Rare Disease Day, I mentioned how the Foundation’s research has applications that go beyond our purview, mainly because the retina is, in fact, neural tissue, or an extension of the brain. So some treatments we fund may someday help people with conditions unrelated to the eye.
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