Listen to this page using ReadSpeaker
Posts tagged patient registry

Watch VISIONS 2018 LIVE on June 22 & 23

Get the inside scoop on this year’s top research advances and what’s next in retinal disease science by watching VISIONS 2018 LIVE!

We will be streaming several of our annual VISIONS conference sessions live on Friday, June 22 and Saturday, June 23. The sessions will be live streamed here on our blog, and our national Facebook as well.

Here’s the full schedule of live sessions:

Friday, June 22, 2018

  • 9:00 a.m. PDT – 10:15 a.m. PDT– Opening Session: Mission Possible! The Year’s Top Advances and What’s Next in Retinal Disease Science
  • 12:30 p.m. PDT – 2:00 p.m. PDT – Keynote Luncheon: Think Outside our Perceived Limitations
  • 3:10 p.m. PDT – 4:15 p.m. PDT – What You Need to Know About Genetics, Genetic Testing, and Patient Registries
  • 4:20 p.m. PDT – 5:25 p.m. PDT – Clinical Trials Update and Is a Clinical Trial Right for You?

Saturday, June 23, 2018

  • 9:00 a.m. PDT – 10:25 a.m. PDT – Retinitis Pigmentosa (RP) Research and Clinical Updates
  • 10:30 a.m. PDT – 11:40 a.m. PDT– Stress Management and Self-Care for People with Degenerative Diseases
  • 1:00 p.m. PDT – 2:35 p.m. PDT – Adapting and Thriving: Find Your Product – Tips and Tools for Peak Personal Performance
  • 3:05 p.m. PDT – 4:30 p.m. PDT – Closing Session: Featuring Biotech Executive Emmett Cunningham and Chapter Awards

The full list of the many sessions that will be live on the blog, with additional details, is also on our website here.

We hope you’ll tune in, share it with your friends, and learn more about the promising new advances in retinal research.

 

Retinal Researchers May Be Looking for You

A patient registers with My Retina Tracker.One of the biggest challenges in overcoming rare retinal diseases is, well, that they’re rare. There’s limited information about the conditions in humans, making it difficult for researchers to understand why they cause blindness and develop vision-saving treatments.
Continue Reading…

VISIONS 2014 — My Retina Tracker: Track Your Vision and Drive the Research

Rusty BromleyOne of the big challenges with rare retinal diseases is, well, they’re rare. That makes it hard for researchers to find disease-causing genetic mutations and understand why the defects result in vision loss. It also makes it tough to figure out why a disease can progress at such different rates, even for people within the same family. Perhaps what’s most difficult is identifying enough participants for clinical trials for potential therapies.
Continue Reading…