Meet Dr. Steve Rose
Steve is highly respected for his expertise and tireless commitment to finding treatments and cures for vision-robbing retinal diseases.
Posts Tagged ‘leber congenital amaurosis’
Definitive diagnoses for inherited retinal diseases don’t always come easy, even for the patients of the most knowledgeable doctors. Comments posted to this blog over the past year are a testament to that fact. Many readers are understandably frustrated by a doctor’s inability to determine exactly what retinal condition is affecting them or loved ones.
Read more
Piggybacking on last week’s post by our CEO, Bill Schmidt, I wanted to tie two personal stories to exceptional advances made in retinal research in 2012. I’d be remiss if I didn’t mention that these advances were made possible by the generous support of FFB donors, and that future advances – which, eventually, will help 10 million Americans alone – depend on our donors’ continued support. I’ll revisit fundraising later in this post, but, first, you’ll find the first of the two stories – on how gene therapy restored some of a boy’s sight – below. The next story will be posted later this week.
Read more
Have I Got a Cure for You! Debunking an Alleged Treatment on the Internet
It seems there is no dearth of fantastic cures being touted on the Internet and in email inboxes these days. Sort of reminds me of those old Western movies where the itinerant peddler sells the magic elixir that will cure any and all ailments you have. Read more
Israel Update: Genetic Discovery Highlighted at Retinal Research Conference
Tel Aviv, Israel
Now that I’m back from my trip to Israel, I wanted to offer a couple more posts about my visit, the first covering a fascinating research conference in Tel Aviv.
Read more
Israel Update: Visits to the Western Wall and the Hadassah Medical Center
The Wailing Wall, Israel
So, my prayers were answered. As I mentioned in my last post, my luggage did not arrive with me in Israel, but, as the airlines promised, it did a day later, so I haven’t had to keep wearing the same clothes. Thank goodness.
Read more