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Posts tagged lca

Giving Thanks

The Foundation gives thanks to its supporters.How do you thank the tens of thousands of people who’ve contributed in so many ways this past year – volunteer work, donations, research advances, etc. – to help FFB eradicate retinal diseases? Aside from giving a general shout-out to those folks (you know who you are, including Eye on the Cure readers), we can offer highlights, a sampling, if you will, of the many achievements Foundation supporters have helped make happen this past year.
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Update from LCA Gene Therapy Clinical Trial in Pennsylvania and Florida

Stock image of lab technician working with test tubesOne of the first lessons I learned in my career was that research study results often raise as many questions as they answer. Such is the case with new results from the gene therapy clinical trial for children and young adults with Leber congenital amaurosis (LCA, RPE65 mutations) at the Universities of Pennsylvania and Florida.

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Curing Blindness, Part 1: Corey’s Story

Representation of LCA Gene therapy treatmentPiggybacking on last week’s post by our CEO, Bill Schmidt, I wanted to tie two personal stories to exceptional advances made in retinal research in 2012. I’d be remiss if I didn’t mention that these advances were made possible by the generous support of FFB donors, and that future advances – which, eventually, will help 10 million Americans alone – depend on our donors’ continued support. I’ll revisit fundraising later in this post, but, first, you’ll find the first of the two stories – on how gene therapy restored some of a boy’s sight – below. The next story will be posted later this week.
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A “Bigger Boat” – The Role of Nanoparticle Treatments

NanoparticlesAfter a rigorous review process, the Foundation is funding eight new research projects for a wide range of conditions, including Leber congenital amaurosis (LCA), age-related macular degeneration (AMD) and retinitis pigmentosa (RP). You can read about these exciting projects in an article recently posted on the Foundation’s homepage.

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Have I Got a Cure for You! Debunking an Alleged Treatment on the Internet

In the lab with beakerIt seems there is no dearth of fantastic cures being touted on the Internet and in email inboxes these days. Sort of reminds me of those old Western movies where the itinerant peddler sells the magic elixir that will cure any and all ailments you have. Continue Reading…

Rockin’ and Rollin’ for a Good Cause

Andy and Kim HilfigerWell, this is a first: the Foundation was mentioned, this week, in Rolling Stone magazine. Why? Because one of our fundraising dinner events, “Fashion Ball: Dining in the Dark,” brought together professionals from both the fashion and music industries at the The Plaza Hotel in New York City and raised more than $370,000.

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A Big Step Toward Overcoming Usher Syndrome

Girl (5-7) saying 'I love you' in sign language, portraitImagine being born completely deaf or with profound hearing loss. Certainly, there are many challenges, but you find ways to navigate the hearing world. You learn sign language or get a cochlear implant. Through cultural and advocacy programs and education, you learn how to succeed in school, enjoy sports and social activities and plan for the future.

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