Julie Anderson admits she’s stubborn. “It’s the German in me,” she says. “I don’t ever give in.” So when she was diagnosed with retinitis pigmentosa, or RP, a hereditary disease that progressively diminishes eyesight, the mother of three didn’t crawl into a hole. She joined FFB and, for more than a dozen years, has been its Minneapolis chapter’s president. And when she heard, in the mid 2000s, that the company Neurotech would be conducting a Foundation-funded clinical, or human, trial for a treatment of RP at the University of Minnesota, she was literally the first in line to be screened for approval. Continue Reading…
I was very excited to learn that another clinical trial using stem cells for the potential treatment of a retinal disease — in this case, dry age-related macular degeneration (AMD) — is now underway. StemCells, Inc. (got to love the company’s name) announced last week that its first patient was treated at the Retina Foundation of the Southwest in Dallas.
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Without a doubt, as chief research officer at FFB, I get more questions about clinical trials – also known as human studies – than any other topic. So, I thought it would be useful to provide a list of the major clinical trials underway right now for retinal disease treatments. Continue Reading…
If you’re going on a cross-country road trip, the highlight of your journey is not the safety check. Putting air in the tires, topping off the brake and power-steering fluids, making sure the front and back lights are working properly and adjusting the mirrors are not cause for raucous celebration.
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When the VISIONS 2012 conference began yesterday, the Foundation’s Science Department’s intensive work had already begun. On Wednesday afternoon, we put 15 members of our Scientific Advisory Board (SAB) in a meeting room at the hotel under lock and key. For the next 24 hours, we gave them only bread and water, forbidding access to friends and loved ones, and, perhaps most Draconian, we cut off their wi-fi access.
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If you’ve been reading my blog, you’ve heard a lot about clinical trials. They’re the last series of steps in the testing process that potential treatments – whether drug, gene therapy or stem-cell – must go through before they can be approved by the U.S. Food and Drug Administration, or FDA. Clinical trials are experiments, and you can’t conduct a sound experiment without the right subjects – in this case, human beings. Continue Reading…










Steve is highly respected for his expertise and tireless commitment to finding treatments and cures for vision-robbing retinal diseases.
As the Foundation's senior science writer, Ben writes science and research articles for the Foundation’s website, newsletters and Eye on the Cure blog.
As the Foundation's senior writer, Rich writes and edits content for all of the Foundation’s print and online publications, including its blog, Eye on the Cure. 