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Steve is highly respected for his expertise and tireless commitment to finding treatments and cures for vision-robbing retinal diseases.
Archive for the ‘Guest Bloggers’ Category
I mentioned, in my first post, that I’ve attended a number of VISIONS conferences. And yesterday, like most of my experiences in years past, was a roller coaster of emotions. There was the usual anxiety of just maneuvering around and through crowds, the exasperation from not being able to see the faces of the people I was talking to, much laughter and even a few tears.
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Paul Karos, a renowned airline-industry analyst and financial executive, spoke very movingly about his life and career at today’s welcome luncheon at VISIONS 2012 in Minneapolis. Diagnosed with retinitis pigmentosa at the age of 8, he struggled, at first, with the realization that he’d eventually lose his vision. But then he came across two influential people, including Gordon Gund, FFB’s co-founder and chairman, who helped him realize that he could achieve great things.
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Video Included:
I work for FFB, as its director of gift planning, but I also actually have a retinal disease – something called retinitis pigmentosa, or RP. Although I was diagnosed at age 5, I didn’t discover I had RP till I was 18, partly because my parents didn’t want the disease to hold me back in any way.
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Video Included:
In preparation for the arrival of VISIONS 2012 attendees, we did what we usually do the day prior – provided hotel staff, everyone from housekeepers to food servers to managers, with blind-sensitivity training.
Every year, in late June, the Foundation Fighting Blindness hosts an annual conference we call – for, perhaps, obvious reasons – VISIONS. It’s a four-day event during which FFB members, staff, board members, trustees and retinal experts gather under one roof to focus on those things we do best.
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