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Archive for the FFB on the Road Category

VISIONS 2015, Faces of VISIONS – Phillip Mason

Phillip MasonOne of the speakers at VISIONS 2015 is Phillip Mason, a development officer at Blind Industries and Services of Maryland whose topic of discussion is “Physical Fitness and Sports for the Visually Impaired.”
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VISIONS 2015, Faces of VISIONS – Amy and Nathan Hayes

Amy and Nathan HayesOne of the wonderful things about the Foundation’s annual conference—taking place this year in FFB’s founding city of Baltimore—is it draws all kinds of people from around the world. And while they’ve come to gather research information and hear motivational speakers and meet others like themselves, each has his or her own story to tell.
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VISIONS 2015, FFB’s National Conference — In Our Founding City!

skyline of BaltimoreIt was 44 years ago that a handful of Baltimore-area families—intent on wiping out the vision-robbing retinal diseases affecting their members—established the Foundation Fighting Blindness. They soon discovered how daunting that task would be, but also offered each other support and solace during a very dark time.
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ARVO 2015 Highlight: The National Eye Institute Invests $4 Million in Audacious-Goals Research

future of retinal researchThe National Eye Institute’s (NEI) establishment of its Audacious Goals in 2013 was a watershed moment in the drive to cure blinding retinal diseases. The mission of the program—to regenerate the neurons and neural connections in the eye and visual system—is synonymous with the Foundation’s mission to eradicate retinal diseases. Most important, it means that the NEI is making significant investments in research that will benefit people with retinal conditions, such as retinitis pigmentosa, Usher syndrome, Stargardt disease, and age-related macular degeneration.
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ARVO 2015 Highlight: AMD Gene Therapy Performs Encouragingly in Human Study

an AMD eyeWhile treatments such as Lucentis®, Avastin®, and Eylea® have been saving and restoring vision for people with wet age-related macular degeneration (AMD) over the last several years, they have a significant drawback: The therapies require regular injections into the eye—in some cases, monthly—for the life of the patient.
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ARVO 2015 Highlight: New Research Boosts Prospects for Saving Vision with RdCVF

Dr. SahelAn eye doctor could preserve meaningful vision in people with advanced retinitis pigmentosa (RP) by saving just five percent of their cones, the cells concentrated in the central retina enabling us to read, recognize colors and see in lighted conditions.
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ARVO 2015 Highlight: A Cut-and-Paste Approach to Fixing Retinal-Disease Genes

gene editingI just returned from the annual meeting of the Association for Research in Vision and Ophthalmology (ARVO), the world’s largest eye-research conference, held this year in Denver. It attracted more than 11,000 scientists and physicians, including many of the 187 retinal researchers funded by the Foundation. The FFB science team and I worked feverishly to learn as much as possible about the latest news from the retinal-research front. It was truly exhilarating—albeit, at times, overwhelming.
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VISIONS 2014 — Clinical Trials Need Pioneers

Drs. Shannon Boye and Jacque DuncanWith about 20 clinical trials underway for retinal degenerative diseases, and many more ready to launch soon, the buzz about signing up for them has never been louder. When it comes to human studies for potential treatments and cures, everybody wants in.
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VISIONS 2014 – The Multi-Talented Dr. Shannon Boye

Shannon BoyeShannon Boye, Ph.D., is something of a rock star here at the VISIONS 2014 conference. Serving as a panelist in sessions on gene therapy and clinical trials, the University of Florida assistant professor has won compliments for her skill in explaining complicated research in plain English. And her compassion for those affected by retinal diseases is plain to see.
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Colorado, VISIONS 2014 — See You There!

Colorado skylineIf you were someone affected by a retinal disease, and looking for the perfect event, one which combines the latest research updates with networking opportunities and support sessions, it would look exactly like the one FFB is hosting in Colorado June 19-22  — VISIONS 2014. Roughly 500 Foundation members, associates and researchers will gather at the annual conference, which will also be covered via this blog and social media, for those who can and can’t make it.
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