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Archive for the FFB on the Road Category

VISIONS 2014 — Clinical Trials Need Pioneers

Drs. Shannon Boye and Jacque DuncanWith about 20 clinical trials underway for retinal degenerative diseases, and many more ready to launch soon, the buzz about signing up for them has never been louder. When it comes to human studies for potential treatments and cures, everybody wants in.
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VISIONS 2014 – The Multi-Talented Dr. Shannon Boye

Shannon BoyeShannon Boye, Ph.D., is something of a rock star here at the VISIONS 2014 conference. Serving as a panelist in sessions on gene therapy and clinical trials, the University of Florida assistant professor has won compliments for her skill in explaining complicated research in plain English. And her compassion for those affected by retinal diseases is plain to see.
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Colorado, VISIONS 2014 — See You There!

Colorado skylineIf you were someone affected by a retinal disease, and looking for the perfect event, one which combines the latest research updates with networking opportunities and support sessions, it would look exactly like the one FFB is hosting in Colorado June 19-22  — VISIONS 2014. Roughly 500 Foundation members, associates and researchers will gather at the annual conference, which will also be covered via this blog and social media, for those who can and can’t make it.
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ARVO 2014: LCA Gene Therapy Recipient Featured During Keynote

Yannick Duwe and his father, Tony, at ARVOGene-therapy pioneer Jean Bennett, M.D., Ph.D., may have been the keynote speaker for the closing session at the annual meeting of the Association for Research in Vision and Ophthalmology (ARVO), but Yannick Duwe, a 15-year-old patient with Leber congenital amaurosis (LCA) who was treated in her clinical trial six years ago, stole the show. He and his father, Tony, were part of a panel which also included members of Dr. Bennett’s research team.
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ARVO 2014: Three Promising CEP290 Gene Therapy Alternatives

Renee Ryalls explains the dual-AAV gene therapy she's developing.While gene therapies for retinal degenerative diseases are making groundbreaking strides in both human and laboratory studies, the most widely and successfully used human-engineered virus for delivering replacement genes to retinal cells — the adeno-associated virus, or AAV — has one significant limitation. It can’t deliver relatively large genes, namely those larger than about 4.5 or 5 kilobases (kb). (Bases are the building blocks of a gene, and its size is expressed in kilobases.)
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ARVO 2014: The Latest Retinal Research News from the Magic Kingdom

The Foundation’s science team is in Orlando over the next week for the annual meeting of the Association for Research in Vision in Ophthalmology, which convenes more than 10,000 of the world’s top eye researchers to report on their latest achievements.
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Flight4Sight: A Man with Usher Syndrome Travels Around the Globe

Mike Walsh paragliding in New ZealandThere’s nothing like a sense of urgency to turn what seems like a crazy idea into reality. That’s what happened to Mike Walsh in January, when he decided to make exceptional use of a pass a friend who’s a Delta flight attendant had provided him before it ran out. She was compelled to do so because Mike, who’s the son of David Walsh, a member of FFB’s board of directors, has Usher syndrome, which affects both his hearing and his vision.
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Sharing Stories and Taking Action

Eric FultonTestimonials—we love ’em. They give people a chance to say why they’re involved with the Foundation Fighting Blindness, what FFB means to them, and how they’re helping us raise awareness of retinal diseases and funds for research. So it only made sense to set up a video booth at VISIONS 2013, this year’s annual conference, and let people … well … tell their stories.
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Several New Stem Cell Clinical Trials Poised to Begin in Two to Three Years

Microscopic Stem CellsOne of the more exciting aspects of FFB’s recent annual conference, VISIONS 2013, was the news on the clinical development of several emerging stem cell therapies. The field has picked up a lot of steam, with many new human studies of stem-cell treatments anticipated to begin in 2014 and 2015.
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Update on Six Gene Therapy Clinical Trials Presented at VISIONS 2013

Dr Shannon BoyeWhether you’re a researcher or affected by a retinal disease, hearing the latest news from the clinical-trial front lines is a great perk of FFB’s annual conference. On the last day of VISIONS 2013, I had the privilege of moderating a compelling update on six gene-therapy clinical trials provided by Shannon Boye, Ph.D., a gene therapy developer at the University of Florida, and Michel Michaelides, M.D., a clinician-researcher at Moorfields Eye Hospital in the United Kingdom. All of these emerging treatments, given in recaps below, were made possible by Foundation funding.
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