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Dr. Steve RoseSteve is highly respected for his expertise and tireless commitment to finding treatments and cures for vision-robbing retinal diseases.

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Archive for the ‘Usher syndrome’ Category

Rachel (the shorter of the two) and her  sister, Rebecca, have teamed up for  several athletic events since the end of 2011.Rachel Weeks, who has Usher syndrome – a disease affecting both vision and hearing – is a dedicated triathlete. With guidance from her sister, Rebecca, she runs, swims and bikes her way through triathlons with only a 10-degree field of vision and 30 percent of her hearing. But once, as she prepared to plunge into the water with hundreds of competitors, a woman insisted on congratulating her for her efforts. At that particular moment, it served as a disorienting reminder of the challenges she faces.

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Shinya Yamanaka, co-winner of the 2012 Nobel Prize for Medicine.For science geeks like me, the announcement of Nobel Prize for Medicine winners is always exciting news. But this year’s two recipients are especially near and dear to my heart, because their groundbreaking work is having an enormous impact on sight-saving retinal research.

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Save Your Vision Month is Underway

05Oct

April at a Walmart vision centerThree weeks ago, in recounting my participation in Charity Day at Cantor Fitzgerald, I mentioned that FFB had established October as Save Your Vision Month (SYVM). Well, now it’s here, so I wanted to reiterate what SYVM is all about and how the Foundation has been preparing for it the past couple of weeks.
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Graphic of the Argus II Prosthesis device
You wouldn’t think that the ability to sort black, white and grey socks would be a big deal for a successful attorney, but when that lawyer is completely blind from retinitis pigmentosa (RP), and used a “bionic retina” to accomplish the simple task, well, that is a big deal.
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Image of test tubes filled with different colored liquidsWithout a doubt, as chief research officer at FFB, I get more questions about clinical trials – also known as human studies – than any other topic. So, I thought it would be useful to provide a list of the major clinical trials underway right now for retinal disease treatments. Read more