Archive for the ‘Usher syndrome’ Category
Rachel Weeks, who has Usher syndrome – a disease affecting both vision and hearing – is a dedicated triathlete. With guidance from her sister, Rebecca, she runs, swims and bikes her way through triathlons with only a 10-degree field of vision and 30 percent of her hearing. But once, as she prepared to plunge into the water with hundreds of competitors, a woman insisted on congratulating her for her efforts. At that particular moment, it served as a disorienting reminder of the challenges she faces.
Three weeks ago, in recounting my participation in Charity Day at Cantor Fitzgerald, I mentioned that FFB had established October as Save Your Vision Month (SYVM). Well, now it’s here, so I wanted to reiterate what SYVM is all about and how the Foundation has been preparing for it the past couple of weeks.
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Argus II “Bionic Retina” Receives Recommendation for FDA Approval
Video Included:
You wouldn’t think that the ability to sort black, white and grey socks would be a big deal for a successful attorney, but when that lawyer is completely blind from retinitis pigmentosa (RP), and used a “bionic retina” to accomplish the simple task, well, that is a big deal.
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As Requested: A List of Current Clinical Trials for Retinal Degenerations
Without a doubt, as chief research officer at FFB, I get more questions about clinical trials – also known as human studies – than any other topic. So, I thought it would be useful to provide a list of the major clinical trials underway right now for retinal disease treatments. Read more







Nobel Prize Winners Have Big Impact on Emerging Retinal Treatments
Video Included:
For science geeks like me, the announcement of Nobel Prize for Medicine winners is always exciting news. But this year’s two recipients are especially near and dear to my heart, because their groundbreaking work is having an enormous impact on sight-saving retinal research.
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