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Archive for the Other diseases Category

The Philanthropy 50: The Gunds Make the List of Top Donors in 2014

Gordon and Llura GundIt’s quite a list. On it, among others, are the Gateses, a Rockefeller, Google’s co-founders, a former New York City mayor and the founding president of Facebook. A list of America’s richest people, you ask? Well, not exactly. Compiled by The Chronicle of Philanthropy, “The Philanthropy 50” is a ranking of the country’s top donors in 2014, who gave almost $10 billion, collectively, to a plethora of non-profits. Coming in at #37 is a couple near and dear to FFB’s heart—Gordon and Llura Gund.
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CME – What It Is, and Why People with Retinal Diseases Should Know About It

Dr. FishmanIn this Q&A, Gerald Fishman, M.D., a world-renowned clinical researcher and longstanding member of FFB’s Scientific Advisory Board, discusses cystoid macular edema (CME), a potentially damaging accumulation of fluid in the retina affecting up to 32 percent of people with retinitis pigmentosa (RP) and related conditions. It’s a complication that can make matters worse for retinas already fragile from degenerative disease. While diagnosis isn’t always straightforward, CME can be treated to minimize vision loss.
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The Top Research Advancements of 2014: How Fast Can We Go?

lab photoAs we approach 2015, it’s inspiring to look back on 2014 and recount the numerous advancements we’ve made in developing vision-saving treatments and cures. When I joined the Foundation nearly a decade ago, virtually nothing was in a human study. We were curing lots of blind mice, and clinical trials seemed elusive. But, today, more than a dozen promising therapies are being evaluated in people, and at least a dozen more clinical trials are expected to begin in the next few years.
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Genetics 101: How Some Retinal Diseases are Inherited

Egg and spermLong before the advent of genetic testing, or even knowledge of DNA and RNA, astute observers noticed that many traits were passed from one generation to another. But it still can be difficult to understand why some people inherit a genetic disease and others do not. Also, it’s often not clear which family members are at risk of inheriting a condition.
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Erik Weihenmayer’s Next Big Challenge

Erik WeihenmayerA longtime friend of the Foundation Fighting Blindness, Erik Weihenmayer is best-known as the blind guy who reached the top of Mount Everest. The first and only. But that was back in 2001. Since then, the 45-year-old, who lost his vision to retinoschisis in his teens, has embarked on a series of adventures—among them, scaling the Seven Summits, mountain-bike racing and starring in the reality show Expedition Impossible. He’s also written books and traveled the world as a motivational speaker. In fact, he spoke at FFB’s annual VISIONS conference in Minneapolis in 2012.
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Total Blindness and Non-24 Sleep Disorder

The circadian clockRecently, you may have been hearing and seeing commercials for a blindness-related sleep disorder called Non-24. In the radio ads I’ve heard, the narrator says he’s totally blind and suffers from the condition. The media spots are sponsored by Vanda Pharmaceuticals, which recently received approval from the U.S. Food and Drug Administration for a drug called Hetlioz to treat Non-24.
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Choroideremia Gene Therapy Improves Vision in Human Study

Dr. Robert MacLaren, lead investigator in the gene therapy trial.The development of retinal-disease gene therapies took a monumental step forward on January 16 with a report in The Lancet that researchers were able to improve vision in five of six people with choroideremia participating in a clinical trial.
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When a Condition is More than a Retinal Disease

Image of photoreceptors courtesy of Nicolas Cuenca, Ph.D., Universidad de Alicante.The Foundation Fighting Blindness is, of course, all about finding treatments and cures for retinal degenerative diseases. However, we are well aware that many of our constituents and their families are dealing with more than just vision loss. That’s because genetic defects causing retinal conditions can sometimes affect other parts of the body. The result is conditions often referred to as syndromes.
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The Foundation’s Center Grants Foster Essential Retinal Research Collaborations

Question: How many researchers does it take to develop a retinal-disease treatment? (No, this isn’t a politically incorrect joke.) The answer is near the end of this article, but no looking ahead!
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RetNet: A Web-Based Guide to Every Retinal Disease Gene Known to Man

Dr. Stephen DaigerIt isn’t as addictive as posting your status to Facebook. Nor is it as entertaining as cat blooper videos on YouTube. And it won’t let you send 140-character rants about your political views through cyberspace. But if you are in any way connected to the world of retinal research, you’ll want to check out RetNet, the online catalogue of every known retinal degenerative disease gene. After you do, Steve Daiger, Ph.D., RetNet’s creator, will no doubt become your BFF.
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