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John Corneille

John Corneille is FFB's director of gift planning and an estate attorney who's been practicing for more than 25 years. He was diagnosed with RP at age 5 and has been legally blind his entire life.

The following articles were authored by John Corneille

Up in the Air – Almost Getting Stranded at the Airport

Airplane flying out of O'HareBecause of vision loss caused by retinitis pigmentosa, I’m almost completely blind. That does not, however, stop me from traveling alone. I do have one fear, however—being stranded at the airport. It was only recently that it became a real possibility.
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When Research Offers More Than Just Hope

John and Pam CorneilleI’ve lost a lot of my sight to retinitis pigmentosa, or RP, and as Dr. Edwin Stone is conducting exciting stem cell research focused on the disease, I began the process of scheduling an appointment with him last summer. Dr. Stone’s home base is the University of Iowa, which is just a two-and-a-half-hour drive from my house in Illinois. When an appointment date was finally offered, I found it a little odd that it was for New Year’s Eve, but I was eager to go, so I said yes.
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Driving: A Very Familiar Story …Sort Of

image of hand on steering wheelWith the Foundation’s Save Your Vision Month starting next week, I thought it might be a good time to share my thoughts about a tough decision many people affected by retinal diseases have to make – the decision to stop driving.
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Putting Myself to the Test

John Corneille at VISIONS 2012Yesterday, my last full day at VISIONS 2012, started off in what may seem an odd way, in that I prevented the hotel maid service from doing its job. I did so by hanging the “Do Not Disturb” tag outside my door, a trick I learned a couple years ago, not long after I began venturing out on trips like this on my own.
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Why “Bad Days” Are Normal

I mentioned, in my first post, that I’ve attended a number of VISIONS conferences. And yesterday, like most of my experiences in years past, was a roller coaster of emotions.  There was the usual anxiety of just maneuvering around and through crowds, the exasperation from not being able to see the faces of the people I was talking to, much laughter and even a few tears.
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Getting Personal at VISIONS 2012

Video Included:
John Corneille at VISIONS 2012
I work for FFB, as its director of gift planning, but I also actually have a retinal disease – something called retinitis pigmentosa, or RP. Although I was diagnosed at age 5, I didn’t discover I had RP till I was 18, partly because my parents didn’t want the disease to hold me back in any way.
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