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About

Eye on the Cure is the official blog of the Foundation Fighting Blindness, a private non-profit that raises funds for research targeting treatments and cures for vision-robbing retinal diseases. Authored by Dr. Stephen Rose, the Foundation’s chief research officer, and other contributors, the blog provides an insider view of the retinal research field, which, over the past decade, has exploded with scientific discoveries and advancements.

Steve, as he likes to be called, is a renowned expert on retinal research, which means Eye on the Cure provides readers with updates that no other blog can. Steve comments on the latest news, provides useful information in easy-to-understand language and connects readers with valuable resources, including those provided by the Foundation.

Founded in 1971, FFB has raised more than $500 million for research intended to eradicate retinal degenerations, such as retinitis pigmentosa and age-related macular degeneration, affecting more than 10 million Americans.

15 Responses to 'About'

  1. JENNA GRIFFITH says:

    MY NAME IS JENNA GRIFFITH AND I HAVE MACULAR DEGENERATION AND WOULD BE INTERESTED IN ANY INFORMATION THAT WOULD HELP ME, THANK YOU JENNA

  2. YOHANNES says:

    Hi I have RP my eyes gotton worse!!! How can I get treatment?
    Please help me give me some advice.
    Think you

  3. Lisa O Van says:

    I have FEVR and so does my six year old son. I’m always looking for more information on our disease. Or anything that can be done about it. I’d love to drive again…I’m hoping someday that is possible.

    • Eye on the Cure says:

      Hi Lisa,

      Unfortunately, we can only speak about research for retinal degenerative diseases that affect the retina in the eye. Your doctors and other eye specialists will be best suited to answer your questions about what treatments are available for your own condition.

      You may want to visit the website of the National Eye Institute (http://www.nei.nih.gov/) or reach out to someone at the institute – they may be able to point you in the correct direction on other resources or organizations who specialize in your condition.

      We wish you all the best as you try to find out more.

  4. Judee says:

    Hi,

    My family(from grandma(deceased) to 2 aunts, 3uncles(1deceased) and 2 cousins) has RP. We are from the Philippines, but, would be interested to know treatments on this.

    Thank you.

  5. Pollom says:

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  6. George Msovela Pangawe says:

    My name is George Msovela Pangawe a male of 51 years old and i have macular degeneration (severe problem) and I’m interested in any information that could help to cure my problem because as the days going on I’m loosing my sight vision. Thank you in advance.

    • EyeOnTheCure says:

      Thank you for your comment George. We often share the latest in AMD news on our website and here on the blog.

      There are a few places on our website that will provide some useful information on AMD, starting with our backgrounder section on this eye condition: http://goo.gl/nJ04y

      We often report on new research advancements and so we encourage you to check out our AMD news articles section as well: http://goo.gl/zlCw2

      We hope you find this information helpful. Please let us know if there is anything else we can help you with.

  7. i have a friend that is in need of answers or a doctor that can help him he has stargardts eye disease or was told that im tring to help him he can see alittle but it dont look great he needs my help and yours thanks so much and have a blessed day

  8. MICHELE BALLAN says:

    I HAVE BEEN DIAGONSED WITH RETINITIS PIGMENTOSIA.. I AM 72 YEARS OLSD IT STARTED 10 YEARS AGO AND IS BECOMING PROGEIVELY WORSE.. I HAVE 8 GRANDCHILDRE MY OLDEST GRANDDAUGHTER WHO ATTENDS BARNARD UNIVERSITY IS LOSING HER EYE SIGHT IF U CAN SEND ME INFORMATION ON ALL CURES OR HELP I WOULD BE VERY GRATEFUL.. IF YOU W CAN PLEASE SEND IT TO HER AS WELL. HER NAME IS NAOMI R. MARNE HER E MAIL IS NAOMI@MARNE.COM

    • EyeOnTheCure says:

      You and your granddaughter may want to consider trying to identify your disease gene as there are already several clinical trials for RP that require a molecular (genetic) diagnosis to participate. Currently over 50 genes have been shown to be involved in RP. For information on genetic testing, please see the following web link to download a PDF document: http://www.blindness.org/sites/default/files/genetic_testing_booklet_201311rev.pdf

      You may also want to consider participating in FFB’s “My Retina Tracker”, a free registry that can help you find out about clinical trials that are recruiting for your specific disease. For more information on “My Retina Tracker” please see the following web link:
      https://www.myretinatracker.org/

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