Meet Dr. Steve Rose
Steve is highly respected for his expertise and tireless commitment to finding treatments and cures for vision-robbing retinal diseases.
Archive for September, 2012
With the Foundation’s Save Your Vision Month starting next week, I thought it might be a good time to share my thoughts about a tough decision many people affected by retinal diseases have to make – the decision to stop driving.
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As Requested: A List of Current Clinical Trials for Retinal Degenerations
Without a doubt, as chief research officer at FFB, I get more questions about clinical trials – also known as human studies – than any other topic. So, I thought it would be useful to provide a list of the major clinical trials underway right now for retinal disease treatments. Read more
Ryan Lochte, I didn’t get a chance to meet. I did, however, get a picture taken with Michael J. Fox, who was very cordial but focused most of his attention—and rightly so—on a little girl with muscular dystrophy. Now, actor Steve Buscemi is a character and a half. I was there with Leah Bartos, who’s Mrs. New York, and because I’m Mrs. World, and the two of us were wearing crowns and sashes, he took a look at us and, before a photo was snapped, said, “Wow, let me get in between these two ladies.”
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A couple weeks ago, I was in China, to visit with Dr. Ruifang Sui, a Foundation-funded clinician-researcher at the Peking Union Medical College Hospital in Beijing. During my time there, I felt like I had never left the United States. Don’t get me wrong — there’s no mistaking Beijing for Baltimore (the location of our national office) or Mandarin for English. But when it comes to retinal degenerations, we and the Chinese have a lot in common.
First Usher Syndrome Gene Therapy Patient in the News
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