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You are currently browsing the Eye on the Cure blog archives for June, 2012.



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Dr. Steve RoseSteve is highly respected for his expertise and tireless commitment to finding treatments and cures for vision-robbing retinal diseases.

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Archive for June, 2012

Adventures in Mount-Climbing and ResearchBeing a blind person who climbs mountains – that’s like being a Jamaican bobsledder; the two just don’t seem to go together, Erik Weihenmayer acknowledges. But, in fact, the opposite is true.
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Why “Bad Days” Are Normal

30Jun

I mentioned, in my first post, that I’ve attended a number of VISIONS conferences. And yesterday, like most of my experiences in years past, was a roller coaster of emotions.  There was the usual anxiety of just maneuvering around and through crowds, the exasperation from not being able to see the faces of the people I was talking to, much laughter and even a few tears.
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McGinnisThe diameter of the human eye is only about an inch, but for people with retinal degenerations, it can seem like a million miles.
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Turning Suffering Into Hope

29Jun

Paul KarosPaul Karos, a renowned airline-industry analyst and financial executive, spoke very movingly about his life and career at today’s welcome luncheon at VISIONS 2012 in Minneapolis. Diagnosed with retinitis pigmentosa at the age of 8, he struggled, at first, with the realization that he’d eventually lose his vision. But then he came across two influential people, including Gordon Gund, FFB’s co-founder and chairman, who helped him realize that he could achieve great things.
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Dr. Eric Pierce, chairman of the SAB, and Amy Laster, FFB's grants and awards program managerWhen the VISIONS 2012 conference began yesterday, the Foundation’s Science Department’s intensive work had already begun. On Wednesday afternoon, we put 15 members of our Scientific Advisory Board (SAB) in a meeting room at the hotel under lock and key. For the next 24 hours, we gave them only bread and water, forbidding access to friends and loved ones, and, perhaps most Draconian, we cut off their wi-fi access.
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