Archive for May, 2012
There’s a recent research paper from the Archives of Ophthalmology on the health care costs of retinitis pigmentosa (RP) that’s spurred lots of discussion around the FFB office. Led by Dr. Kevin Frick, of the Johns Hopkins Bloomberg School of Public Health in Baltimore, the study compared the annual health care costs of nearly 3,000 people with RP to 3,000 people without. The bottom line: People with RP had $7,317 more in annual health care expenditures.
The Foundation Fighting Blindness isn’t exactly like American Idol, but we are always in search of good research talent. That’s because we need to attract young physicians to retinal research to conduct the growing number of clinical trials for promising treatments and cures.
ARVO Update: Powerful Protein Positioned Well for Human Study
If you or someone you’re close to has a retinal degenerative disease, you should know about the vision-saving promise of a protein called Rod-derived Cone Viability Factor (RdCVF). It was discovered by Foundation-funded clinician-researchers Drs. José Sahel and Thierry Léveillard, of Institut de la Vision in Paris. In fact, they won the Foundation’s Board of Director’s Award in 2005 for the finding. It was a monumental effort, namely because they screened thousands of proteins to come up with the gem.










Drawing Parallels Between Retinal and Non-Retinal Diseases
Back in February, in a post noting Rare Disease Day, I mentioned how the Foundation’s research has applications that go beyond our purview, mainly because the retina is, in fact, neural tissue, or an extension of the brain. So some treatments we fund may someday help people with conditions unrelated to the eye.
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