Archive for February, 2012
Back in December, during a brief podcast, I got the chance to speak with Tracy Cooley, a blogger at BIO (the Biotechnology Industry Organization), about some of the Foundation’s works-in-progress. Among other efforts, BIO, which has more than 1,100 members worldwide, advocates for those of us trying to improve the health and lives of people with disabilities. Tracy interviewed me after FFB had announced it was committing $8.25 million to six new gene therapy projects.
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You know, it seems like every month there’s a national campaign raising awareness about one important health-related cause or another, and January, as National Eye Care Month, was no exception. Just because it’s ended doesn’t mean we can forget about the importance of eye care, which is at the very heart of the Foundation’s mission to bring an end to retinal degenerations that affect more than 10 million Americans.
The Foundation's 5 Most Asked Questions About Clinical Trials
At the Foundation, we get asked tons of questions – so many, in fact, that, on occasion, I’m going to address the “most asked” for a specific subject. This time around, it’s one that’s on many minds: the clinical trials necessary to obtain FDA approval of a drug or treatment.
How do I enroll in, and then keep apprised of, clinical trials?
To stay abreast of clinical trials, visit this Foundation web page, where you’ll need to be registered, if you aren’t already. But that’s quick and painless, and it gets you on the list to receive informative publications and news alerts on retinal research.
Breaking News: Positive Results for Second Eyes Treatment in Gene Therapy Trial

Drs. Albert Maguire and Jean Bennett lead the research team conducting the study.
I am very pleased to tell you that a Foundation-funded team at The Children’s Hospital of Philadelphia (CHOP) released positive results today regarding the treatment of the second eyes of three adult patients in an ongoing gene therapy trial for Leber congenital amaurosis (LCA). The results: After six months, it proved safe and improved light sensitivity, visual acuity and visual field.
Video Included
Remember the 1970s TV show The Six Million Dollar Man, featuring Lee Majors as Col. Steve Austin? Also known as the “Bionic Man,” he had a number of bionic – electronic and/or mechanical – body parts, including one eye, which gave him super-human powers to fight evildoers and save pets, small children and damsels in distress from imminent peril.






